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Hello everyone,

I had an appointment yesterday for my five year old. He needed to go

for his pre school check up and immunizations. When the weighed him, he

weighed 36 pounds and his height is 41 " . The family doctor is concerned

because of his weight. He has not gained since this summer when we had

another visit for him. I called my Matt's GI and asked them to chart

him. They said that his height was at the tenth percentile but that his

weight was off of the charts.

I should back track some and explain that at birth, tested

positive to the PKU. He was admitted to ICU and thought to have Maple

Sugar Urine disease. When his blood work was done, it was found to match

Matt's. We were hopeful that if we found out what was wrong with we

would also know what was wrong with Matt. (Matt was not diagnosed with

eos. entropothy until a year and a half ago.) As it was, had been

misdiagnosed and we were sent home, very relieved. was supposed to

have the blood work repeated at a year old but because he was doing so

well, we decided against it.

Now, I am rethinking that decision. I am waiting for the family doc

to return my call. The only question that I have is... is very

active and he has shown none of the illnesses that have plagued Matt.

Has anyone else with family members ever been diagnosed without

displaying any symptoms? Just curious and now beginning to be concerned.

Lynn, We have looked at Fleishman's light and for some reason, we

were not able to have it. I do not recall the ingredients or why we

could not use it. Thanks.

Jacque

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