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TONSIL TEST & SPINAL TAP

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Hi Everyone:

I spoke with Dr. Gibbs yesterday... such a kind and gentle man. He has a

great sense of humor and was a pleasure to talk with.

I asked him about the Tonsil Test for CJD diagnosis. He said that for

sporadic cases, this test was not recommended. He said it almost always tests

negative.

As far as spinal taps are concerned... he said that in the case of a " low

positive " CJD result, the best direction would be to have another spinal tap

performed in a month.

Proper procedural requirements/specifics would need to be obtained from his

office prior to taking the tonsil biopsy or doing the spinal tap. Of course,

NIH does performs both tests....the Tonsil and spinal tap. testing.

As always, any questions/comments, please let me know.

Dolly

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