CJD * Department's of Health * 50 PAGE CJD QUESTIONNAIR??????

[Guest guest]

Terry:

Many of us have tried to get a copy of the questionairre from Rawlings

with no luck. ;(

Liz.

[Guest guest]

Question and paragraph from book MADCOW U.S.A.

Has anyone recieved a CJD QUESTIONNAIRE FROM THEIR DEPARTMENT'S OF

HEALTH? I kept hearing about them when the TDH was interviewed in the

Media, But, never recieved one (not that I feel left out, but it just

seems to me it's the thing to do, I wish I had never heard of this DANG

DISEASE). I have talked to many families who has lost a loved one to

CJD. BUT, none have heard of the questionnaire. Are they just saying

this to the Media, to LOOK GOOD, or has anyone recieved one??? THIS IS

VERY IMPORTANT!!!------In November, reporter Gillian Bowditch conducted

a reassuring interview with Rober will, " the medical detective who is

looking for clues to a bizarre brain disorder.....No one can be better

qualified than Dr. Will, who began studying CJD more than 10 years ago

and examined every known case that occurred between 1980 and 1984, "

Bowditch enthused. " His team of 12 have gathered statistics going back

to 1970, and examined 600 cases. A member of his team visits each

victim's relatives with a 44-PAGE QUESTIONNAIRE. Information is elicited

on a quite extraordinary range of activities, from whether the deceased

had ever been in contact with ferrets to whether he or she had pierced

ears. " ------SO MANY IMPORTANT THINGS COULD BE LEARNED FROM A SIMPLE

QUESTIONNAIRE!!!!!