VIsit with Dr.

[Guest guest]

In a message dated 2/5/99 6:39:30 AM Eastern Standard Time, SJHarlow@...

writes:

<< So.. we saw Dr. Mon morning (all 5of them). He wants four of the

kids to do the no-milk thing then the Neocate thing. He did not have

anything hopeful at all to say about Kody. His exact words were; " I;ve

seen these kids get this sick and some of them come back and some

don't " . BRUTALLY HONEST HUH? >>

That is one thing that he is - he is very straight forward. I have asked him

about Clayton being able to eat more than a couple foods and he always says

some kids can eventually eat almost everything and some kids only are ever

able to eat 5-6 foods.

I am glad that your vivst went well and sorry to hear that Kody was back in

the hospital and that you are going there again today. Please keep us posted

and know that you are in our thoughts and prayers.

Love,

Sharon

mommy to Jake (5) and fraternal twins (34.5 weeks) (3/30/97) - Cole -(nda)

and Clayton (eosinophilic gastroenteritis, food allergies (milk, soy, eggs,

wheat), g-tube, Nissen, latex allergy, mild DD, undiagnosed neuro issues,

sensory integration disorder and now tremors and suspected metabolic disorder,

WHEN WILL THIS END)

[Guest guest]

So.. we saw Dr. Mon morning (all 5of them). He wants four of the

kids to do the no-milk thing then the Neocate thing. He did not have

anything hopeful at all to say about Kody. His exact words were; " I;ve

seen these kids get this sick and some of them come back and some

don't " . BRUTALLY HONEST HUH?

He was certainly well educated on the disease in general and had tons of

good information for me.

We were only home about an hour when Kody spiked a temp and was admitted

Mon. night. It has been a really rough week.

SJHarlow@...

http://www.c4isr.com/harlow