Latex

[Guest guest]

My daughter, Remi, has spina bifida and has latex allergy. About 70% of spina

bifida kids do, but all kids are treated as though they do. Most of these kids

are cathed and have multiple surgeries which brings about the allergy. They

treat AJ as though she does too, since she is allergic to most other things and

has numerous procedures. Remi was tested thru blood, but she has had reactions

before we had a confirmed latex allergy.

The food issue really scares me. I know someone who ate a pizza and ended up in

the hospital from the latex in the food handlers.

Her dental appt are the first ones in the morning so no latex powder is floating

in the air. Childrens Hospital of Philly and St. have rooms, crash

carts, operating rooms-all latex free. It is no big deal going there. If we

need to go to the local hospital, there is hesitation and that look-now where

are those latex free gloves.

In Remi's school, there are big signs in the nurses office and school office.

My nightmare there, is that she will fall, bleed and the first thing someone

will do in don the latex gloves which will cause more damage than the original

fall. I am in the mist of getting the girls medic id bracelets, but I can't

figure out what to put on AJ's. I am switching allergists, so maybe he will

help.

Sharon-did you ever hear of a dr. cogan in haddonfield? He is an allergist. Do

you use one? Who? AJ has her first appt with him on 12/23.

-AJ's blood eos was 2 on a scale of 0-6. Also, you mentioned

Mitochondrial diseases. I don't know much about them, except I know some kids

on the list have them.

Phyllis