food/allergy vs EE

[Guest guest]

Hi,

After a shaky start last month, food is going well for iel, we

seem to be successful with canned peaches, pears, mandarin oranges,

pineapple, fresh grapes, and potatoes. It's looking like fruits are

good, as I suspected. If corn and rice go well we are going to do a

great big happy dance! We know that dairy, eggs, meat, gluten, soy,

shellfish, and nuts are out for quite a while if not permanently. My

question is: It's starting to look like iel's EE/EG is directly

caused by foods that he is significantly allergic to. His Rast tests (

three different times from three different labs) are all very consistent

both with each other and in showing which foods he is most reactive to.

This seems different than most of the people on the list, where allergy

tests aren't consistent with symptoms. Almost nothing is not reactive,

on Rast or skin tests, but the degree of allergic response, from slight

to severe, is the same every time. I wonder if there are different

" strains " of this disease. Is he an exception with this pattern or is

there so much variation that this isn't unusual?

Can't wait to see the article when it comes out. I hope it's Sunday,

that's the only edition our bookstore carries.

Vicki

[Guest guest]

Vicki-

When we started with this disease, AJ was just like iel. She tested

positive to every food that also made her sick. At one time or another, she

has tested positive to 44 foods. And at one point, whatever she ate for

more than a few weeks, her system would suddenly react to it and shut down.

We ran out of formulas and that is one of the reasons we ended up on

Neocate. I don't know if it is because she has had very little food for so

many years, (like she is so old) or what, but she only tests positive to

milk now. She is so allergic to milk though, that she can't eat beef

either. We can't kiss her if we have just had a dairy product or share

glasses, silverware......When you avoid a food for a long period, you can

outgrow an allergy. You never outgrow shellfish, peanut and tree nut

allergies though. AJ still has the disease now, but without the allergies.

She can eat very little and when she eats too much she is in pain. I don't

know if this helps any.

Phyllis--mom to

AJ (12/22/95) EG, GERD, Asthma, Allergies, speech delay and bilateral

sensori neural hearing loss

Remi (8/3/92) Spina Bifida, LATEX, avacodo, broccoli, chocolate, mushrooms,

peanuts, shellfish, & tree nut allergies