Guest guest Posted October 28, 1998 Report Share Posted October 28, 1998 >>> I have a request...suggestion..whatever. It might help if when we talk about a medicine or treatment really working " miracles " for us, that we specify how long we've been using it with such great results. <<<< Dear Group, Sorry for being a bit brief in my Mirapex success reply. I had previously stated my medication history and wasnt sure it should be repeated. I was on Sinemet 10/100 for aprox 5 years taking it as needed. Since it worked as soon as I took it, I only took it when I had RLS I could not stand. After 5 years I started taking Sinemet 25/100 as needed. Usually once in the early evening and again at bedtime, but this did not hold me thru the night. After another 2 years and symptoms getting worse - RLS during the day.. all night.. and beginning in my arms also, I asked for a different medicatin and was referred by my MP to a neurologist. He was not familiar with rebound and augmentation and insisted I begin using Sinemet CR 50/200 and was sure this would be better. Still not being able to sleep, he gave me klonpin ... I was not happy with this neurologist and found another one. The new dr. agreed to remove me off try something else. Peramax. I was thrilled. I took ONE Pill... slept thru the night, but woke up real stuffy headed and with the WORSE pain in my face I had ever had. Took 2 hours to get rid of the pain just so I could move. ( I had a severe reaction to my sinus's from this medication ) .. I stopped taking it and called the Dr. on Monday and insisted he try Mirapex. He agreed this time. I started one month ago on Mirapex taking it 3 times a day. After 2 days, I was RLS free. No daytime RLS at all and sleep completely thru the night. I had alittle insomonia at first and it has lessened. I have cut back to 2 Mirapex a day and am still RLS free. IF I forget to take my 7 pm dose, sometimes I get a slight RLS feeling befor going to bed a Midnight. Otherwise I feel Normal again. My dr is shocked at the results of this medication. He feared giving it to me because of the lack of time it has been on the market. If this medication only works for a certain period of time, I will still be very glad for that time of not having RLS at all. I know everyone is different and has different reactions to medications. Im still praying for everyone to find the correct medication that works for them. Some people are doing great on Peramax.. but I will never take it again. HOpe this helps alittle better to those still searching... 46 So. California 30 days free of RLS ___________________________________________________________________ You don't need to buy Internet access to use free Internet e-mail. Get completely free e-mail from Juno at http://www.juno.com/getjuno.html or call Juno at (800) 654-JUNO [654-5866] Quote Link to comment Share on other sites More sharing options...
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