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Dear Group,

If anyone knows of a neurologist that knows about rls at one of the

military hospitals in Baltimore or Washington, please let me know. Either

Walter , Bethesda Hosp. or s Hosp. I have access to a shuttle

bus out of Dover AFB hospital which is 50 miles from where I live.

I'm a 65 year old female that has had restless legs as long as I can

remember, but it's gotten worse as I get older. It is with me 24 hrs. a day

now. I believe it's even in my stomach. My legs feel like there is a

vibration creeping and then the vibration grabs, and I can time when the

next one is coming. I'm constantly tensed to the very limit, The only

time I can get any relief other than walking or staying busy on my feet, is

when I do about 20 deep knee bends. At night, if I don't fall asleep

during the time I'm exhausted from the knee bends, then I'm miserable until

I can do them again (that's hard on a 65 year old with arthritis). I

haven't had a good nights sleep, without waking up several times. If I had

to be confined to a wheelchair I would go crazy. It would be better to be

paralyzed from the waist down than to have that claustrophobic feeling of

not being able to get up and walk or kick.

So far no doctor has been able (or really tried very hard) to help me.

I've tried Sinemet and Baclafin together, Klonopin, Neurontin. Nothing has

helped yet. I'm just praying I'll get some help through this support

group. Thanks for listening.

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