RLS Disability DENIED Ray are you there???

[Guest guest]

Hello All,

I'm sending out an S.O.S. to Ray from Phil.Disability as to what to do next

re disability being denied. I know that I will need to get a lawyer, but how

do I know he/she won't screw me over. This SUCKS!!!! Why all this insult to

injury-why do I feel like an ASS right about now-because I am!! I don't want

this and I'm very FRUSTATED!! I can barely watch my niece after school for 2

1/2 hours , she's in kindergarten. I go through all these test and procedures

to try to find the cause of this pain and madness, and what do I get, well I

can't say with out being rude! I'm taking morphine now, but I suppose that's

okay, I'll go to work and make a serious mistake after a time-not

intentionally, but as you all know who work, the mind tends to wander and the

frustration of trying to function properly gets the best of you and then

what!? Yes, I know that I'm venting and yes, I knew that I would be denied,

but one more thing that I have to deal with is really going to make me go over

the edge-I don't know what edge yet, but I'm on my way over it!!!!!!!!

Please forgive the above message-it's just a lunitics rantings Last

Tuesday, I had an injection into my hip of Marcaine(sp), which did numb the

hip joint signifcantly. It lasted for approx. 18 hrs. The Rheumatalogist that

I'm seeing wants me to try Daypro ( an anti-inflammatory ) and Prevacid so

that my stomach can tolerate it. A pill for a pill LOL Anyway, when I asked

what he thought might be wrong, he said that he'd hoped that I didn't ask,

because he doesn't know! He seems to feel that because the Marcaine worked in

the hip joint itself, he feels that it's structual. Whatever... I'm not

getting my hopes up about anything. Who knows, maybe this will work taking the

Daypro, but so far I'm still needing the MSContin and the Daypro is killing my

stomach, even with the Previcid. Oh well, I'll just donate my body to science

when I die and maybe then they can figure out what's wrong. I wonder if the

spine is having excitability, does that affect the nervous system and travel

down the to the area of the femoral nerve, which is the area of my pain-I just

wonder....? I've started kicking again, much to my husbands dismay, so I'm

taking an extra Neurontin at bedtime to make it a whopping 1200mg at bed time-

not including what I take during the day. My Neuro was out on Fri, so I'm

doing this on my own-I'll call monday to let him know the scoop.

Ya know guys, this is ridiculous. I mean the whole RLS/PLMD thing!! This

past newsletter from the Foundation seemed to shed the most light on things,

as if we're finally going in the right direction! To have a disorder that

ruins our lives to varying degrees, yet not to have a finger on the problem

yet is tres frustrating. But the info to date seems the most hopeful.

So Ray, if you're out there, please help me out here-I like to hear the

rules in English, because I can look things up myself, but it helps to have

someone explain it. And to everyone else-the seasoned and the new-please

accept my apologies regarding this letter, but I'm expressing my current

problems as I know that many of you may have the same yet different-if you

know what I mean

Take care all and peaceful nights le 37 R.I.