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Re: Takes guts I guess

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Yahoo! Jane go for it and keep us posted in detail when you get back.

A wish for luck and a pat on the back to you!!!!!!!\

CHEERS!

Jeanne and Mr. Biggles in Poultney, VT

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June, You go girl! Sometimes it does pay off to be gutsy. Let us know

how it goes.

You'll be in my thoughts and prayers...

Debbie

, Ca.

41 and holding

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June and all:

Well, I guess they went back through their old contact files, as I had

volunteered to be a test subject in the RLS Research at NIH back in March of

this year. Dr. Bara-Jimenez called me tonight, interviewed me and placed me on

the schedule to make the trip up there on Dec. 16-18. I feel kind of honored

that he wants me to partake in the research going on with RLS/PLMD. If I can

shed any light or do anything that will help these doctors and researchers find

a rhyme, reason and/or cure for this disorder, then it's worth the trip up

there for the testing. Way to go, June, guess you started something here.....

Restful Nights,

Jodi

jwharton@... wrote:

> From: jwharton@...

>

> Dear Group

> Do you remember when I posted to the group the email that I wrote to the

> National Institute of Neurology Disorders and Stroke, and received a brief

> reply that came back, thanking me for my insightful info and that he would

> pass it on to the proper person in the research department? And then the

> Night came out with the article on the front page in the November

> copy , on the research program at the National Institutes of Health.

>

> You're not going to believe this, but today I received a phone call from

> Dr. Bara-Jimenez', The doctor that's doing the research. (read the

> article again)

> He wants to bring me to the National Institutes of Health in Bethesda, Md.

> I am going to be part of the research. I can't believe it. It will be for

> 3 days and 3 nights. He wants me to come tomorrow. I will be flying. I

> guess it does take guts to write to big institutions (as someone in our

> group told me) I never dreamed they would want me to be a candidate for

> the research. The doctor talked to me almost an hour and believes I'll

> make a good candidate. I plan to print out a few of our letters to give

> him. He may even want more RLS candidates for the research.

>

> Please wish me luck, I feel as though I'm doing this for all of us. In

> fact I asked him if this would help me, and he said " It will help many

> people "

>

> Love,

> June 65, Delaware

>

>

> ------------------------------------------------------------------------

>

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