WELCOME !

[Guest guest]

WELCOME ! Your heartfelt story of your Mom and you really touched

me. I know of nothing where you can diagnose yourself as having CMT, and

I would suggest you find a good, competent neurologist for this. Only 3

types of CMT can be found via the DNA blood test. But you seem to

already know about the genetic (Hereditary aspects) - Although there are

people who have CMT without others in the family having it. A good

neurologist could perform a EMG test (sorry I can't spell this) and NCV

(nerve conduction velocity) tests. Depending on how these tests go, this

is a good measure of CMT in you. I have had those tests, and years ago I

also had a muscle and nerve biopsy, which didn't show much. I don't know

if that has been done before. There are MANY different types of CMT AND

MANY different ways in which we all have symptoms. Take a look at some

of our CMT Links on our main page

http://www.onelist.com/community/CMTUS My own CMT has been with me

since I was a kid. Except for bad feet, one surgery and intermittent

pain which is now under control, I am leading a active life. But like I

said CMT symptoms are so diverse, so many are so different. Again, I

suggest visiting a neurologist and getting a complete checkup. If you

live in So. Calif. I can recommend one. You might also see if there is

an MDA clinic near you. They help CMT people, too.

Gretchen