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Hello everybody!

My name is , I am 28 years old and I live in Germany.

I have cmt x as I found out in 1998 by genetic testing.

Next week I will go to hospital to have an achilles-tendon-lengthening

and a transfer of the tibialis-posterior-tendon done. This will be the

only surgery because of cmt for me so far.

The surgery will be done to make me walk better :-)). I have a pair of

afos but I only wore them once because it made me feel worse. So I hope

the surgery will end up fine.

The problem here in Germany is that it is difficult to find doctor who

know about the disease other persons who have cmt. I have to say that my

mother also has cmt but she does not want to get in touch with it. She

is not so heavily affected and is not really interested in the disease.

I hope that I can share some of my experiences with you.

Bye,

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