Guest guest Posted December 4, 1998 Report Share Posted December 4, 1998 Yo group, I have been able to take up to 1600mg of Neurontin before I pay for it the next morning. I thought that another group member besides from myself has posted that although Neurontin is fairly mild compared to benzos and Parkinson remedies, it can leave someone feeling like their sleep was not " rejuvenating. " I have found that a combination of Xanax and Neurontin helps me IF relief is to be had any given evening. I say, " any given evening " because RLS/PLMS seems to adapt to meds sporadically. I am curious what the exact stabilizing factor is when the meds do actually work. It seems strange that meds work one time and the very next evening they don't. Didn't mean to ramble but a couple of you mentioned that there were no responses to Neurontin questions. Consider my " two cents " given................ Ed-Cyberphilly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 1998 Report Share Posted December 4, 1998 Hey Ed, I had mentioned a few weeks ago that I was going through a period where my sleep was not " rejuvenating " and asked if anyone else was having that experience with Neurontin. Seems I go through cycles in that regard, feeling more rejuvenated at some times than at others. I'm not sure if that is Neurontin-related. Jeff P. 45 Co. Spgs. where winter's comin' (take heart Meg, we're about to get ours!) Re: Neurontin > > > > >Yo group, > >I have been able to take up to 1600mg of Neurontin before I pay for it the >next morning. I thought that another group member besides from myself has >posted that although Neurontin is fairly mild compared to benzos and Parkinson >remedies, it can leave someone feeling like their sleep was not > " rejuvenating. " I have found that a combination of Xanax and Neurontin helps >me IF relief is to be had any given evening. I say, " any given evening " >because RLS/PLMS seems to adapt to meds sporadically. I am curious what the >exact stabilizing factor is when the meds do actually work. It seems strange >that meds work one time and the very next evening they don't. > >Didn't mean to ramble but a couple of you mentioned that there were no >responses to Neurontin questions. Consider my " two cents " >given................ > >Ed-Cyberphilly > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 1998 Report Share Posted December 4, 1998 hello, I gave my hubby Bob 69/3/? a neurontin 400mg just a couple of hours ago because his left leg was really bothering him..rls...normally he takes this capsule at nite with reg sinemet 25/100 and quinine. But his left leg was really getting to him.. I hope it doesn't bother his sleep tonite. Coleen :-) Reunited adoptee fax..let me know first... Missing Links adoption support group Grants Pass, Or. fredmom@... or fredmom@... http://www.barysoftware.com ******************************************** One Nation Under a Groove Rush for our Records! December 3rd, 1998 http://www.ibar.com/DEC_3/ ******************************************* Oregon Adoptee Rights Initiative Measure 58 Our Birth Certificate: Our Right http://www.plumsite.com/oregon/ Re: Neurontin > > >> >> >> >> >>Yo group, >> >>I have been able to take up to 1600mg of Neurontin before I pay for it the >>next morning. I thought that another group member besides from myself has >>posted that although Neurontin is fairly mild compared to benzos and >Parkinson >>remedies, it can leave someone feeling like their sleep was not >> " rejuvenating. " I have found that a combination of Xanax and Neurontin >helps >>me IF relief is to be had any given evening. I say, " any given evening " >>because RLS/PLMS seems to adapt to meds sporadically. I am curious what the >>exact stabilizing factor is when the meds do actually work. It seems >strange >>that meds work one time and the very next evening they don't. >> >>Didn't mean to ramble but a couple of you mentioned that there were no >>responses to Neurontin questions. Consider my " two cents " >>given................ >> >>Ed-Cyberphilly >> > > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 1998 Report Share Posted December 4, 1998 Hi Coleen, Personally, I have found Neurontin to be incredibly benign compared to just about any other medication I've ever taken. If anything, I have found 400mg. to be ineffective in my case, but I've never had Neurontin actually cause sleep problems. I seem to be good enough at causing my own insomnia without the help of meds. :-) Nighty, night hubby. Jeff P. 45 in Co. Spgs. Re: Neurontin >> >> >>> >>> >>> >>> >>>Yo group, >>> >>>I have been able to take up to 1600mg of Neurontin before I pay for it the >>>next morning. I thought that another group member besides from myself has >>>posted that although Neurontin is fairly mild compared to benzos and >>Parkinson >>>remedies, it can leave someone feeling like their sleep was not >>> " rejuvenating. " I have found that a combination of Xanax and Neurontin >>helps >>>me IF relief is to be had any given evening. I say, " any given evening " >>>because RLS/PLMS seems to adapt to meds sporadically. I am curious what >the >>>exact stabilizing factor is when the meds do actually work. It seems >>strange >>>that meds work one time and the very next evening they don't. >>> >>>Didn't mean to ramble but a couple of you mentioned that there were no >>>responses to Neurontin questions. Consider my " two cents " >>>given................ >>> >>>Ed-Cyberphilly >>> >> >> >>------------------------------------------------------------------------ >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 1998 Report Share Posted December 6, 1998 Ed: Have you ever tried keeping track of how much phosphorus-containing protein ( as in meat, fisg or poultry) you eat for dinner? I find that if I eat more than about 3 or 4 oz. of meat with dinner, it really aggravates my RLS in the evening, and maybe on into the night, even though I take a Sinemet about 7 pm and another CR Sinemt about 10 pm. Don in Albuquerque, NM EJude958@... wrote: > From: EJude958@... > > Yo group, > > I have been able to take up to 1600mg of Neurontin before I pay for it the > next morning. I thought that another group member besides from myself has > posted that although Neurontin is fairly mild compared to benzos and Parkinson > remedies, it can leave someone feeling like their sleep was not > " rejuvenating. " I have found that a combination of Xanax and Neurontin helps > me IF relief is to be had any given evening. I say, " any given evening " > because RLS/PLMS seems to adapt to meds sporadically. I am curious what the > exact stabilizing factor is when the meds do actually work. It seems strange > that meds work one time and the very next evening they don't. > > Ed-Cyberphilly > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 1998 Report Share Posted December 6, 1998 Gee, maybe you've got something there. I'm going to keep track and see if I stick to my vegetarian diet it helps the RLS Jeanne and Mr. Biggles in Poultney, VT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 1998 Report Share Posted December 7, 1998 i'm currently taking 1200mg of neurontin daily and i take 1 400mg capsule 3x daily......seems that after about 6 hours the twitching/spasms begin so next time i see the doc i'm going for 1600mg. p.s. i don't really have trouble falling asleep (usually) its staying asleep thats my problem due to plmd which the neurontin isn't helping at all. JACK finally colder in western nys At 01:41 PM 12/7/98 EST, you wrote: >From: EJude958@... > > > > >Yo Jeff, > >I can certainly relate to the C6 neck herniation and cord compression. I had a >nasty fall and had to have my C5-C6 fused. I also had cord compression. I >asked about the RLS in the arms because every neck injury, RLS-related case I >have come into contact with has had arm RLS also. It is also interesting to >note that almost every case like yours has one side dominated with the RLS. >Yours is the left, mine is the right, although, probably like you, it does >crossover. I usually will feel it in the arms first. > >Glad to hear Neurontin works for you. Mine is 50/50. Is anyone out there >getting on and off success with Neurontin or is it all or nothing? > >Jeff, do you work or does RLS/PLMS interfere too much? > >Ed-Cyberphilly > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 1998 Report Share Posted December 7, 1998 i'm currently taking 1200mg of neurontin daily and i take 1 400mg capsule 3x daily......seems that after about 6 hours the twitching/spasms begin so next time i see the doc i'm going for 1600mg. p.s. i don't really have trouble falling asleep (usually) its staying asleep thats my problem due to plmd which the neurontin isn't helping at all. JACK finally colder in western nys At 01:41 PM 12/7/98 EST, you wrote: >From: EJude958@... > > > > >Yo Jeff, > >I can certainly relate to the C6 neck herniation and cord compression. I had a >nasty fall and had to have my C5-C6 fused. I also had cord compression. I >asked about the RLS in the arms because every neck injury, RLS-related case I >have come into contact with has had arm RLS also. It is also interesting to >note that almost every case like yours has one side dominated with the RLS. >Yours is the left, mine is the right, although, probably like you, it does >crossover. I usually will feel it in the arms first. > >Glad to hear Neurontin works for you. Mine is 50/50. Is anyone out there >getting on and off success with Neurontin or is it all or nothing? > >Jeff, do you work or does RLS/PLMS interfere too much? > >Ed-Cyberphilly > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 1998 Report Share Posted December 7, 1998 Re: Neurontin >> >> >>> >>> >>> >>> >>>Yo group, >>> >>>I have been able to take up to 1600mg of Neurontin before I pay for it the >>>next morning. I thought that another group member besides from myself has >>>posted that although Neurontin is fairly mild compared to benzos and >>Parkinson >>>remedies, it can leave someone feeling like their sleep was not >>> " rejuvenating. " I have found that a combination of Xanax and Neurontin >>helps >>>me IF relief is to be had any given evening. I say, " any given evening " >>>because RLS/PLMS seems to adapt to meds sporadically. I am curious what >the >>>exact stabilizing factor is when the meds do actually work. It seems >>strange >>>that meds work one time and the very next evening they don't. >>> >>>Didn't mean to ramble but a couple of you mentioned that there were no >>>responses to Neurontin questions. Consider my " two cents " >>>given................ >>> >>>Ed-Cyberphilly >>> >> >> >>------------------------------------------------------------------------ >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 1999 Report Share Posted May 16, 1999 Hi le - I know you are never going to believe this but I have some of the same side effects to the Neurontin that you have, especially the dry mouth and I was only taking 300 mgs. at bed time. I was prescribed the Neurontin to decreae my pain and that it did. I have since cut it back to 100 mg. at bedtime and I actually take it around 9:30 because it also make me very groggy in the morning, so if I take it earlier I don't have the problem, the same with the dry mouth effect. One other thing I noticed when I was on the 300 mg. was that I had to get up at 3x's a night to go the the bathroom. Again, that stopped when I cut back to 100 mg. and BTW the 100 mg. still seems to stop my pain. As long as it does and my side effects are nill if I take it early one then I will continue it. I also take 1 mg. of Klonopin at bedtime and have been taking that for about 2 years now. I don't know how much, if any, it still helps but since it's not hurting me, that I know of, I'll stay on that dose which is still a pretty small dose. I do take 2 Tyl #3 as well, but lately my liver function tests have been slightly abnormal. At this point they are not something the doctor is overly concerned about but she is repeating the tests every three months. The last time it was normal, go figure. I am thinking about asking my doc to change me to Ultram and I need to do some research on that. I know a number of you are on it and if anyone has any information on it or anyplace I might be able to look it up please email me separately so that I can check it out. The weather here in Boston has been great and I'm sure that it too has something to do with my decreased pain and my newly diagnosed Fibro...aaaargh! Have a good day all or a good night's sleep whichever. Kathy/Cambrdge 51 and counting the days to 52. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 1999 Report Share Posted May 16, 1999 Kathy (and all who are interested) I have a " medications page " that I created as an " add-on " to the medications listed at the Southern Cal. Support Group Page. The reason that I did this was because on their page, they listed a brief summary of each medication, primarily concerning the dosages that are commonly prescribed for RLS patients. I found several really I found several very detailed pharmocological sites on the internet that include all of the information about these medications (side effects, interactions, etc.). So, if any of you want to know a little more about the medications that you are on, the URL for the page is http://www.mLists.net/judson/Medications.html and Kathy, the URL for the information on Ultram is http://www.rxlist.com/cgi/generic/tramadol.htm. From my page, just click on the name of whatever medication you are interested in and it will take you to the site. If you're interested in finding information on any other medication, you can go down to the bottom of any medication page you're on and you'll find a " search " button. Click on it and type in the name (brand or generic) and it will give you the information. Hope this helps.. Restful Nights, Jodi KMTW4825@... wrote: > From: KMTW4825@... > > Hi le - I know you are never going to believe this but I have some of > the same side effects to the Neurontin that you have, especially the dry > mouth and I was only taking 300 mgs. at bed time. I was prescribed the > Neurontin to decreae my pain and that it did. I have since cut it back to > 100 mg. at bedtime and I actually take it around 9:30 because it also make me > very groggy in the morning, so if I take it earlier I don't have the problem, > the same with the dry mouth effect. One other thing I noticed when I was on > the 300 mg. was that I had to get up at 3x's a night to go the the bathroom. > Again, that stopped when I cut back to 100 mg. and BTW the 100 mg. still > seems to stop my pain. As long as it does and my side effects are nill if I > take it early one then I will continue it. I also take 1 mg. of Klonopin at > bedtime and have been taking that for about 2 years now. I don't know how > much, if any, it still helps but since it's not hurting me, that I know of, > I'll stay on that dose which is still a pretty small dose. I do take 2 Tyl > #3 as well, but lately my liver function tests have been slightly abnormal. > At this point they are not something the doctor is overly concerned about but > she is repeating the tests every three months. The last time it was normal, > go figure. I am thinking about asking my doc to change me to Ultram and I > need to do some research on that. I know a number of you are on it and if > anyone has any information on it or anyplace I might be able to look it up > please email me separately so that I can check it out. The weather here in > Boston has been great and I'm sure that it too has something to do with my > decreased pain and my newly diagnosed Fibro...aaaargh! Have a good day all > or a good night's sleep whichever. Kathy/Cambrdge 51 and counting the days > to 52. > > ------------------------------------------------------------------------ > With more than 14 million emails exchanged daily... > http://www.onelist.com > ...ONElist IS the place where the world talks! > ------------------------------------------------------------------------ > This forum is for support only. The information posted to this List is for support purposes > and is not intended to replace the examination, diagnosis and treatment of a licensed > physician and no such claims are inferred. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2000 Report Share Posted February 8, 2000 Hi , glad to see you back! Neurontin is a medication that helps some people with CMT with their pain. It is not opiate or addicting drug and does not pass through the liver. Some Medline abstracts on Neurontin are available on our main CMTUS page under " links " . There have been NO CMT specific studies done on CMT persons and Neurontin use, although I for one, have been helped immensly by it. We also now have a email list for CMT persons using Neurontin. It is at http://www.onelist.com/community/CMTNeurontin You can read the basics about this medication at http://www.PlanetRx.com Neurontin was originally founded by Japanese scientists to help epilepsy. Secondary uses have shown it CAN also help people with types of Neuropathy and depression. Gretchen Gpdevries@... wrote: > > From: Gpdevries@... > > Hi! I have been out of contact for a while and have missed the prior messages > about Neurotin. I do not know anything about it and would like more info!! > > Thank you, > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2000 Report Share Posted February 8, 2000 Hi , glad to see you back! Neurontin is a medication that helps some people with CMT with their pain. It is not opiate or addicting drug and does not pass through the liver. Some Medline abstracts on Neurontin are available on our main CMTUS page under " links " . There have been NO CMT specific studies done on CMT persons and Neurontin use, although I for one, have been helped immensly by it. We also now have a email list for CMT persons using Neurontin. It is at http://www.onelist.com/community/CMTNeurontin You can read the basics about this medication at http://www.PlanetRx.com Neurontin was originally founded by Japanese scientists to help epilepsy. Secondary uses have shown it CAN also help people with types of Neuropathy and depression. Gretchen Gpdevries@... wrote: > > From: Gpdevries@... > > Hi! I have been out of contact for a while and have missed the prior messages > about Neurotin. I do not know anything about it and would like more info!! > > Thank you, > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2000 Report Share Posted February 8, 2000 Hi , glad to see you back! Neurontin is a medication that helps some people with CMT with their pain. It is not opiate or addicting drug and does not pass through the liver. Some Medline abstracts on Neurontin are available on our main CMTUS page under " links " . There have been NO CMT specific studies done on CMT persons and Neurontin use, although I for one, have been helped immensly by it. We also now have a email list for CMT persons using Neurontin. It is at http://www.onelist.com/community/CMTNeurontin You can read the basics about this medication at http://www.PlanetRx.com Neurontin was originally founded by Japanese scientists to help epilepsy. Secondary uses have shown it CAN also help people with types of Neuropathy and depression. Gretchen Gpdevries@... wrote: > > From: Gpdevries@... > > Hi! I have been out of contact for a while and have missed the prior messages > about Neurotin. I do not know anything about it and would like more info!! > > Thank you, > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
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