Guest guest Posted July 4, 2000 Report Share Posted July 4, 2000 In a message dated 7/3/00 8:50:04 PM Pacific Daylight Time, tandv@... writes: << I have a few more questions. Since vitiam deffeciency is a potential problem post-op did any of you start to " load up " on vitiamins a few weeks before your surgery? Do you think that would be a good idea? I'll ask Dr. R but I wondered if any of you did that. >> Hi Bubbly girlfriend! I have been taking vitamins for 9 years to battle chronic fatigue and can attest to their importance, surgery or not! ! A build up of vitamins in your body can only help, believe me. Regards, Debbie in IL Cigna approved on 3rd appeal for daughter (BMI 45) Counting on Cigna for Debbie (BMI 40) correct online info re-sent 6/29 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2000 Report Share Posted July 4, 2000 Dear Tuleta, To be able to go " out of region " , which you are, you need to switch to Tricare Standard. This does mean a $150 deductable, 20% co-pay for visits ( dr.visit charge $60 - you pay $12) and most important $25 for inpatient care ( MGB - cost you $25). You can not re-enroll in Prime for one year - so for one year you go to a civilian Dr. (the same one who is going to give you your referal to Dr. R) and pay your 20% co-pay, you can still get your lab work and meds thru your military facility. Depending on your sponser's rank/rate under Prime your co-pay is $5 or $12. My friend tells me that her 20% co-pay is usually $10. I am going to drop my Tricare Prime for Standard so that I will be able to receive this medical " benefit " that I am entitled to. There is more than one way to skin a cat! And this is one way. Best of Luck Dee Trudell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2001 Report Share Posted February 11, 2001 , One thing you need to remember is that metal and ceramic do not absorb while (most)plastic and wood do. Plastic or wood bowls, utensils, etc. should be purchased new and used exclusively for cf/gf cooking/serving/storing. We use the dishwasher with this discretion for both with no apparent problems. Pat in Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2001 Report Share Posted May 17, 2001 - Please understand that your primary care doctor is simply not up-to-date with the facts. That said, you need to find a new primary care doctor who knows that recent bariatric studies have proven that: (1) morbid obesity is a disease with its own physiology, and (2) that the physiology includes the fact that DIETING WILL NOT WORK for us! (3) And while its true that social pressures might over time cause psychological dysfunction, the psychological usually follows the disease, not the other way around. Most of us are well-adjusted people who have recently found out that our obesity was not caused by our lack of will-power, or any other self-imposed reason. Now we find out that there is a permanent tool which can help us to control our disease. You owe it to yourself and those who love you to pursue a program which can keep you healthy, without having a sometimes under-informed medical professional unknowingly stand in your way. Continue to research and promote your own health. Best of luck to you and all of your loved ones. Deb in Philadelphia (where by-the-way, there are NO DS surgeons) Pre-op, Dr. Ren (New York City) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2001 Report Share Posted May 17, 2001 - Please understand that your primary care doctor is simply not up-to-date with the facts. That said, you need to find a new primary care doctor who knows that recent bariatric studies have proven that: (1) morbid obesity is a disease with its own physiology, and (2) that the physiology includes the fact that DIETING WILL NOT WORK for us! (3) And while its true that social pressures might over time cause psychological dysfunction, the psychological usually follows the disease, not the other way around. Most of us are well-adjusted people who have recently found out that our obesity was not caused by our lack of will-power, or any other self-imposed reason. Now we find out that there is a permanent tool which can help us to control our disease. You owe it to yourself and those who love you to pursue a program which can keep you healthy, without having a sometimes under-informed medical professional unknowingly stand in your way. Continue to research and promote your own health. Best of luck to you and all of your loved ones. Deb in Philadelphia (where by-the-way, there are NO DS surgeons) Pre-op, Dr. Ren (New York City) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2001 Report Share Posted May 17, 2001 - Please understand that your primary care doctor is simply not up-to-date with the facts. That said, you need to find a new primary care doctor who knows that recent bariatric studies have proven that: (1) morbid obesity is a disease with its own physiology, and (2) that the physiology includes the fact that DIETING WILL NOT WORK for us! (3) And while its true that social pressures might over time cause psychological dysfunction, the psychological usually follows the disease, not the other way around. Most of us are well-adjusted people who have recently found out that our obesity was not caused by our lack of will-power, or any other self-imposed reason. Now we find out that there is a permanent tool which can help us to control our disease. You owe it to yourself and those who love you to pursue a program which can keep you healthy, without having a sometimes under-informed medical professional unknowingly stand in your way. Continue to research and promote your own health. Best of luck to you and all of your loved ones. Deb in Philadelphia (where by-the-way, there are NO DS surgeons) Pre-op, Dr. Ren (New York City) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2001 Report Share Posted August 21, 2001 Re DesOwen: When I was first diagnosed with mild acne-style rosacea, I was prescribed the DesOwen to use for only the intitial 2 weeks, to be followed by Metrogel, thereafter. This was because DesOwen is a steroid cream and should not be used continuosly. ANyway, it had very little effect, and I started on the Metrogel, which has helped a LITTLE. Really, nothing has seemed to help very much. I have been on 100 mg Doxycilline as well, and though continuing with the MEtrogel, have also applied various " spot " treatments (mostly steroidal) to the few pimples that appear. It is a merry-go-round. I also have the occular component, for which I use Refresh Plus preservative free drops (I think Murine has preservatives) and REfresh PM Ointment for overnight, which prevents the crusties in the AM. This did not stop me, however, from getting an acute flareup in the form of my first stye last week, for which I used compresses and Tobradex drops. (prescription). I think my eyes might be doing better if I could stop wearing my contact lenses, which I only stop after a flare up and then start again. I know how everyone feels, like this thing just takes over your life, and you want it to go away. I have the same feeling and I hate it, but there could be much worse things to deal with!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2003 Report Share Posted January 14, 2003 I think you were probably thinking of one of my recent posts regarding an artery in the brain being kinked. What I have is a basilar impression (or basilar invagination), which is essentially a kinking, or curving, of the basilar artery. It has a role in my chiari, but did not cause it. There is a bone in my skull (the clivus) which is mis-shapen, which caused my vertebrae to curve, which made the basilar artery curve, which pushed my brain backwards, which caused it to herniate downward. It does sound to me like your neurologist is talking about a basilar invagination/impression. If you want any more info just ask. I also have a pic. from one of my MRI's that I would be glad to share with you if that would help better explain things. Let me know. a in WA More Questions > Hi group- > > I feel like I'm getting shoved into the proverbial rock and a hard place! > > Let me recap and ask a few questions. > > I've had fibromyalgia since March 27, 1997 (know the exact date). So, I've had > Chiari like symptoms since that time. In October 2002, I started having rather > bizarre symptoms--wild jerking movements that were not controllable and often > made me sit down or fall down. They never last more than a minute. This was > witnessed by my husband (and now my son and some other people). Which is what > brought me to the neurologist to begin with. > > First he ruled out TIAs (mini strokes) with an ultra sound of my neck. He has > ruled out seizure disorders with a sleep deprived EEG. My first MRI shows a > Chiari Type 1 malformation with no herniation--according to the neurologist. > That MRI also shows an empty sella. > > My blood work is normal for me--except that one time my ACTH was very low. The > latest ACTH test they tell me is normal--but I don't know the exact score. When > I did some research on ACTH, I found that I should also have a cortisol test, > which has not been done. The other blood work that was recommended has already > been done several times over the last few years. It is all normal for ME. > > The neurologist has turned me back over to my cold and staunchy GP for the > hormone issues. I think I should request the ACTH be done over again with a > cortisol test. Right? Are there any other hormone related blood work that you > might recommend? > > Or, should I just start taking supplements to boost my adrenal glands? I've > already done that research and had to rule out many recommended supplements due > to my other health issues. But, I finally came up with a combination I can try: > skull cap, oats and Licorice DGL. > > On Wednesday, I go for a 2nd MRI to look at my cervical spine. He is looking > for two things that I know of: a syrinx and a possible twist in one of my > arteries. He describe it thusly: > > " There is a very rare condition, perhaps even hypothetical (as I > have never seen a case of it or made the diagnosis), where one of the > arteries that goes up to the back of your brain gets kinked or otherwise > out of line with either tipping the head back or turning it to the side. > I know that some of your spells have occurred with looking up, but others > not. Were the others with the head in any off-kilter position? " > > I thought I just read about someone with a similar situation that actually > CAUSED her Chiari--maybe I'm wrong--I read so much, I sometimes get mixed up. > > I know the neurologist will stick with me until we figure this out. However my > GP has a horrid attitude and I always feel like she never believes me and only > gives me what I ask for to appease me and make me go away. > > I'll let you know the results of the MRI on Wednesday. I see the neurologist > the very next morning to go over the newest MRI. > > Thanks for any thoughts and free advice! My brain is very muddled today. I can > use all the help I can get! LOL > > > administrator/creator/moderator > alt.med.fibromyalgia.recovery.info (moderated) > alt.support.depression.manic.moderated > > to email me from news groups, just remove the Z. > > > Help section: http://www.yahoogroups.com/help/ > > NOTE: NCC refers to posts with No Chiari Content > > To Unsubscribe Yourself: > chiari-unsubscribe > > WACMA Home: Http://www.wacma.com > > WACMA Online Group: http://groups.yahoo.com/group/chiari/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2003 Report Share Posted September 20, 2003 , I did not have my gallbladder removed, but during surgery my sugeon discovered an umbillica (sp) hernia and repaired that. Debbie R., WI RNY 8/7/03 286/250/150 More questions I am wondering if anyone here is from western Washington. I have my first consult at the the University of Washington on Monday, only game in town that takes Medicare, and was wondering if anyone has gone through them. Also, has anyone had anything else done in addition to the bypass at the same time, other than gallbladder, which I heard is common. I have a hernia right down my front (strangulated fat only), and wondered if they take care of that also at the same time? Anyone got any ideas? boogie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2003 Report Share Posted September 20, 2003 , I did not have my gallbladder removed, but during surgery my sugeon discovered an umbillica (sp) hernia and repaired that. Debbie R., WI RNY 8/7/03 286/250/150 More questions I am wondering if anyone here is from western Washington. I have my first consult at the the University of Washington on Monday, only game in town that takes Medicare, and was wondering if anyone has gone through them. Also, has anyone had anything else done in addition to the bypass at the same time, other than gallbladder, which I heard is common. I have a hernia right down my front (strangulated fat only), and wondered if they take care of that also at the same time? Anyone got any ideas? boogie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2013 Report Share Posted January 27, 2013 I have been using soma a muscle spasm pill for neck and back pain but I am wondering if this also intensifies rls. Has anyone had any experience. Quote Link to comment Share on other sites More sharing options...
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