Happy New Year CMTUS, I'm back

January 6, 2000

Hi everyone, Ruth warren here,

I haven't posted since early December, but I have been reading

the posts. I have a small crafts business and am swamped at Christmas -

talk about managing stress!!! I'm back to a manageable level of

work/family/personal time now.

Happy New Year to all you great people at CMTUS! Welcome to all the

newcomers since December. I'll reintroduce myself briefly.

I'm 41, diagnosed at age 6 (Type 2), leg braces at night as child and teen,

strong family history (father, several siblings) and wear AFOs now full time

(just started those this year.) My sister was in a wheelchair before she

passed away. I see the whole range of symptoms in my family.

I have 3 daughters, 12,11 and 9. The 9-year old is a definite diagnosis and

wears AFOs to correct chronic toe-walking. The 11-year-old has suspicious

symptoms but is extremely athletic so I don't pursue any medical treatment

for her. All of my kids dance

(jazz, ballet, acrobatic) - even the one in AFO's. (She doesn't

wear them when she dances...) We go to a great dance studio that

does not audition for it's performing company - any kid who wants to perform

and compete is welcome. So they all get to compete which is something I

never would have thought possible when I was growing up

with CMT. Annd.... I am even going to be in one of the competition numbers

this year - AFOs, clunky walk and all. The choreographer is

making sure I don't have to walk too fast (at one point I'm a cowboy with a

limp ). We're having a blast.

For those who are new to a diagnosis - CMT is only a small part of

who you are!!! It may seem big at some times, but we have the choice to put

it in perspective. We all have CMT - it does not have us...

It's great to be back and posting. You guys are all the best.

Ruth Warren

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