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Hi Kat, great info on tremors - anyone out there have tremors BEFORE

their 30's - mine started in my late teens, also anyone with children

like Brad with tremors?

Gretchen

KathleenLS@... wrote:

>

> This is all quotes from other sources. I don't have tremors.

>

> " CMTA Handbook for Primary Care Physicians says:

>

> " Essential Tremors "

> " Tremor is not usually a complaint in patients with CMT, but, when

> specifically asked, 40% of the patients respond positively. The tremor

> involves mainly the hands, and it may be present at any age but is usually

> first noted in the mid-30's. The tremor is not related to the severity of the

> symptoms of CMT and has all the clinical features of essential tremor. These

> features along with the high frequency of family history of tremor suggest

> that CMT and essential tremor are either due to separate genes or are a

> variable expression of the same gene. What Roussy-Levy described as a

> separate entity seems to be a combination of CMT and essential tremor. "

>

> And from someone else.

>

> " For those who have written about twitching... I would think that twitching

> is not tremors. For instance, we can have a muscle in our face twitch, like

> around the mouth or the eyes. Even 'normal' people have those. Unless they

> get bad and become a TIC they are usually just that... a twitch that is very

> very annoying but nothing like tremors. If you have them bad they can become

> a big part of your disability. "

>

> >From another CMTer elsewhere:

>

> " ... speaking of tremors.... Dr. Sampson spoke to our CMT support group

> meeting this last Saturday and one of the interesting things he said was

> there was three things with CMT that was hard to treat. He listed them as

> Pain, Balance and Tremors. Just thought I'd pass that along! Think all of

> you already knew that but nice to have it validated huh?!:-) "

>

> Gretchen, I think you are intereested in first-hand accounts, but this is the

> best I can do.

>

> Kat

>

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I've had tremors since childhood. I was diagnosed at 6 and tremors have

always been part of me.

Ruth

>

>Reply-To: CMTUS (AT) e

>To: CMTUS (AT) e

>Subject: tremors info

>Date: Sun, 09 Apr 2000 10:18:51 -0700

>

>Hi Kat, great info on tremors - anyone out there have tremors BEFORE

>their 30's - mine started in my late teens, also anyone with children

>like Brad with tremors?

>

>Gretchen

>

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