Guest guest Posted April 9, 2000 Report Share Posted April 9, 2000 HI Becca here. I also grew up diagnosed as Reussey-Levi Syndrome. Now, the neuro's tell me the term isn't even used they just go by CMT with a tremor. being that RLS I was told was different from CMT because of the tremor. They seem to think it is outdated now.... This is what I was told. http://www.onelist.com/subscribe/CMTweightmanagement Re: tremors anyone? Kathleen > Hi Kathleen, > Welcome to CMTUS. > I know of one other person with Roussy-Levy Syndrome, a man in West Virginia. > What part of the world do you call home? > Do you have a family history of CMT or Roussy-Levy? > Your email addy is clever. > Kat in Seattle > > ------------------------------------------------------------------------ > LOW RATE, NO WAIT! > Get a NextCard Visa, in 30 seconds! Get rates > as low as 2.9% Intro or 9.9% Fixed APR and no hidden fees. > Apply NOW! > http://click.egroups.com/1/2122/7/_/616793/_/955298903/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2000 Report Share Posted April 10, 2000 becca I was told the same thing that I had rls but I was 13yrs old and my ortho whom I love told me with that label I'd have a better chance of pursuing my goals in airline travel.However now at 40 I'm thrilled to be walking & working in a field I love just as much as I thought I'd love being a stewardess. I have had several surgeries 3 on each foot,tendon tie ins, and carpal-tunnel release on both hands and I also am in discomfort but always keep busy with people less fortunate than myself, it makes me feel truly BLESSED. AMY > >Reply-To: CMTUS (AT) e >To: CMTUS (AT) e> >Subject: Reussey-Levi Syndrome >Date: Sun, 9 Apr 2000 22:11:21 -0700 > >HI Becca here. >I also grew up diagnosed as Reussey-Levi Syndrome. Now, the neuro's tell me >the term isn't even used they just go by CMT with a tremor. being that RLS >I was told was different from CMT because of the tremor. They seem to think >it is outdated now.... >This is what I was told. > > > >http://www.onelist.com/subscribe/CMTweightmanagement > Re: tremors anyone? Kathleen > > > > Hi Kathleen, > > Welcome to CMTUS. > > I know of one other person with Roussy-Levy Syndrome, a man in West >Virginia. > > What part of the world do you call home? > > Do you have a family history of CMT or Roussy-Levy? > > Your email addy is clever. > > Kat in Seattle > > > > ------------------------------------------------------------------------ > > LOW RATE, NO WAIT! > > Get a NextCard Visa, in 30 seconds! Get rates > > as low as 2.9% Intro or 9.9% Fixed APR and no hidden fees. > > Apply NOW! > > http://click.egroups.com/1/2122/7/_/616793/_/955298903/ > > ------------------------------------------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2000 Report Share Posted April 10, 2000 becca I was told the same thing that I had rls but I was 13yrs old and my ortho whom I love told me with that label I'd have a better chance of pursuing my goals in airline travel.However now at 40 I'm thrilled to be walking & working in a field I love just as much as I thought I'd love being a stewardess. I have had several surgeries 3 on each foot,tendon tie ins, and carpal-tunnel release on both hands and I also am in discomfort but always keep busy with people less fortunate than myself, it makes me feel truly BLESSED. AMY > >Reply-To: CMTUS (AT) e >To: CMTUS (AT) e> >Subject: Reussey-Levi Syndrome >Date: Sun, 9 Apr 2000 22:11:21 -0700 > >HI Becca here. >I also grew up diagnosed as Reussey-Levi Syndrome. Now, the neuro's tell me >the term isn't even used they just go by CMT with a tremor. being that RLS >I was told was different from CMT because of the tremor. They seem to think >it is outdated now.... >This is what I was told. > > > >http://www.onelist.com/subscribe/CMTweightmanagement > Re: tremors anyone? Kathleen > > > > Hi Kathleen, > > Welcome to CMTUS. > > I know of one other person with Roussy-Levy Syndrome, a man in West >Virginia. > > What part of the world do you call home? > > Do you have a family history of CMT or Roussy-Levy? > > Your email addy is clever. > > Kat in Seattle > > > > ------------------------------------------------------------------------ > > LOW RATE, NO WAIT! > > Get a NextCard Visa, in 30 seconds! Get rates > > as low as 2.9% Intro or 9.9% Fixed APR and no hidden fees. > > Apply NOW! > > http://click.egroups.com/1/2122/7/_/616793/_/955298903/ > > ------------------------------------------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.