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I don' remember my post about Neurontin making the list last week. Heck, I

can't remember much

these days. Maybe I can blame it on the Klonipin.

I tried Neurontin one day last week. Took one at 6 p.m. and legs started

shaking about 8. Took

another one. Legs started dancing right here at the computer. I really got

panicky worrying

about what I would do when I went to bed. At 11 I went to bed and legs were

still dancing. Then

my arms started, hands and what seemed like my ears had RLS. I felt I was going

crazy. I took

a Tylenol/codeine and it put me to sleep. When the alarm went off at 5 a.m. and

I was lying

there trying to wake up, my legs started at it again. That is the first time I

have ever had

RLS in the a.m. I guess there was still some of the Neurontin in my system. I

had a drug

hangover for about three hours. It made me want to cry and when someone told me

some bad news

at school, I started crying. I probably wouldn't have otherwise. Neurontin is

definitely NOT

for me. I guess this could be called augmentation in a BIG way. It was far

worse than when I

tried the Sinemet, which settled my legs at night but gave me the wiggles in my

legs and arms

during the day, too.

I called the neuro the next day and his nurse told me, of all things, that he

couldn't do

anything else for me anymore. He just washed his hands of me. Welcome to the

world of RLS. He

said there was a new neuro coming to town who knew more about RLS. So I asked

what I was to do

in the meantime? She said, just stay on your Mirapex until you can see the new

doctor. Well, I

went back to him because the Mirapex is not working anymore.

Oh, the things we go through with this thing called RLS. My heart goes out to

all of you who

have this terrible affliction.

Lindy B. in Southeast Texas

MetaMom123@... wrote:

> From: MetaMom123@...

>

> Neurontin (Gabapentin) is classed as an anticonvulsant, and does not seem to

> have a lot of bad side effects.

>

> Connie

>

> ------------------------------------------------------------------------

> If you like orange and blue, then you will love our new web site!

> http://www.onelist.com

> Onelist: ing connections and information exchange

> ------------------------------------------------------------------------

> This forum is for support only. The information posted to this List is for

support purposes

> and is not intended to replace the examination, diagnosis and treatment of a

licensed

> physician and no such claims are inferred.

--

Lindy Bingham, Business Technology Dept. Chair/Technology Coordinator

Conroe High School, 3200 West , Conroe, Texas 77304

lindyb@... lbingham@...

" 1998 National Tech Corps Leadership in the Classroom Award "

" 1997-98 Texas Computer Education Assn. Teacher of the Year "

" 1997 Technology & Learning/Microsoft Texas Teacher of the Year "

*************

" Don't let weeds grow around your dreams. " --H. Brown, Jr.

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lindy b - just shows us once again how different we all are since neurontin

is 'supposed' to be the most benign of all the major rls drugs with the

least side effects. maybe your primary physician can put you on something

else (requip/permax??) until the new neurologist comes to town - anyway i

do hope you get relief soon!!!!!!

JACK

still happily married after 2 days

At 11:14 PM 3/28/99 -0600, you wrote:

>

>

>I don' remember my post about Neurontin making the list last week. Heck,

I can't remember much

>these days. Maybe I can blame it on the Klonipin.

>

>I tried Neurontin one day last week. Took one at 6 p.m. and legs started

shaking about 8. Took

>another one. Legs started dancing right here at the computer. I really

got panicky worrying

>about what I would do when I went to bed. At 11 I went to bed and legs

were still dancing. Then

>my arms started, hands and what seemed like my ears had RLS. I felt I was

going crazy. I took

>a Tylenol/codeine and it put me to sleep. When the alarm went off at 5

a.m. and I was lying

>there trying to wake up, my legs started at it again. That is the first

time I have ever had

>RLS in the a.m. I guess there was still some of the Neurontin in my

system. I had a drug

>hangover for about three hours. It made me want to cry and when someone

told me some bad news

>at school, I started crying. I probably wouldn't have otherwise.

Neurontin is definitely NOT

>for me. I guess this could be called augmentation in a BIG way. It was

far worse than when I

>tried the Sinemet, which settled my legs at night but gave me the wiggles

in my legs and arms

>during the day, too.

>

>I called the neuro the next day and his nurse told me, of all things, that

he couldn't do

>anything else for me anymore. He just washed his hands of me. Welcome to

the world of RLS. He

>said there was a new neuro coming to town who knew more about RLS. So I

asked what I was to do

>in the meantime? She said, just stay on your Mirapex until you can see

the new doctor. Well, I

>went back to him because the Mirapex is not working anymore.

>

>Oh, the things we go through with this thing called RLS. My heart goes

out to all of you who

>have this terrible affliction.

>

>Lindy B. in Southeast Texas

>

>MetaMom123@... wrote:

>

>> From: MetaMom123@...

>>

>> Neurontin (Gabapentin) is classed as an anticonvulsant, and does not

seem to

>> have a lot of bad side effects.

>>

>> Connie

>>

>> ------------------------------------------------------------------------

>> If you like orange and blue, then you will love our new web site!

>> http://www.onelist.com

>> Onelist: ing connections and information exchange

>> ------------------------------------------------------------------------

>> This forum is for support only. The information posted to this List is

for support purposes

>> and is not intended to replace the examination, diagnosis and treatment

of a licensed

>> physician and no such claims are inferred.

>

>--

>

>Lindy Bingham, Business Technology Dept. Chair/Technology Coordinator

>Conroe High School, 3200 West , Conroe, Texas 77304

>lindyb@... lbingham@...

> " 1998 National Tech Corps Leadership in the Classroom Award "

> " 1997-98 Texas Computer Education Assn. Teacher of the Year "

> " 1997 Technology & Learning/Microsoft Texas Teacher of the Year "

> *************

> " Don't let weeds grow around your dreams. " --H. Brown, Jr.

>

>

>

>------------------------------------------------------------------------

>Did you know that we have over 85,000 e-mail communities at Onelist?

>http://www.onelist.com

>Come visit our new web site and explore a new interest

>------------------------------------------------------------------------

>This forum is for support only. The information posted to this List is

for support purposes

>and is not intended to replace the examination, diagnosis and treatment of

a licensed

>physician and no such claims are inferred.

>

>

PLEASE LOOK AT OUR APRIL FOOL'S DAY SOOPER DOOPER HOMEPAGE!!!!!!!!!

NEW - homepage URL

http://www.frontiernet.net/~goviers

updated 3/21/99.

On the Internet, nobody knows you're a cat.

The total sum of the world's IQ is constant. If the population is

increasing, then intelligence is ...

" Millions yearn for immortality who don't know what to do with themselves

on a rainy Sunday afternoon. "

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Guest guest

Thanks, Jack, for the kind words. Have been thinking of going back to my

primary doc for the

RLS anyway. He was the one who gave me my first prescription for Valium back in

1980 when I

told him my legs wouldn't stay still at night and kept me awake. Of course, he

didn't know what

it was, but helped me anyway. Then we went our separate ways due to HMO's etc.

I was able to

get back with him when he moved to a large Houston based clinic. By now I was

getting RLS

treatment from my OB/GYN who also has RLS. He was my hero. He actually

understood what I was

going through. His mother also had RLS until her recent death and I was the one

to tell him

about Maripex--for his mom. Before Maripex, we both went over the meds in Sleep

Thief and

decided what was best for me. I left the book with him for a while and when he

returned it he

was quite grateful. Since then he felt I should see a neuro because the RLS was

getting worse.

Now that the neuro has washed his hands of me, I am seriously thinking of

educating my primary

doc. He not only is our family doc, but our neighbor and friend. I don't like

to discuss

medical stuff when we are meeting socially, but my husband and I helped him get

his computer on

line and I think it is time I got back with him on the RLS--after almost 20

years--gives him the

addresses of the the web sites and get him signed on to " The List. "

BTW. I'm glad you are still a happy camper after all these hours of marriage!

Lindy B. in Southeast Texas

Jack or Sue or Jackie wrote:

>

>

> lindy b - just shows us once again how different we all are since neurontin

> is 'supposed' to be the most benign of all the major rls drugs with the

> least side effects. maybe your primary physician can put you on something

> else (requip/permax??) until the new neurologist comes to town - anyway i

> do hope you get relief soon!!!!!!

>

> JACK

> still happily married after 2 days

>

> At 11:14 PM 3/28/99 -0600, you wrote:

> >

> >

> >I don' remember my post about Neurontin making the list last week. Heck,

> I can't remember much

> >these days. Maybe I can blame it on the Klonipin.

> >

> >I tried Neurontin one day last week. Took one at 6 p.m. and legs started

> shaking about 8. Took

> >another one. Legs started dancing right here at the computer. I really

> got panicky worrying

> >about what I would do when I went to bed. At 11 I went to bed and legs

> were still dancing. Then

> >my arms started, hands and what seemed like my ears had RLS. I felt I was

> going crazy. I took

> >a Tylenol/codeine and it put me to sleep. When the alarm went off at 5

> a.m. and I was lying

> >there trying to wake up, my legs started at it again. That is the first

> time I have ever had

> >RLS in the a.m. I guess there was still some of the Neurontin in my

> system. I had a drug

> >hangover for about three hours. It made me want to cry and when someone

> told me some bad news

> >at school, I started crying. I probably wouldn't have otherwise.

> Neurontin is definitely NOT

> >for me. I guess this could be called augmentation in a BIG way. It was

> far worse than when I

> >tried the Sinemet, which settled my legs at night but gave me the wiggles

> in my legs and arms

> >during the day, too.

> >

> >I called the neuro the next day and his nurse told me, of all things, that

> he couldn't do

> >anything else for me anymore. He just washed his hands of me. Welcome to

> the world of RLS. He

> >said there was a new neuro coming to town who knew more about RLS. So I

> asked what I was to do

> >in the meantime? She said, just stay on your Mirapex until you can see

> the new doctor. Well, I

> >went back to him because the Mirapex is not working anymore.

> >

> >Oh, the things we go through with this thing called RLS. My heart goes

> out to all of you who

> >have this terrible affliction.

> >

> >Lindy B. in Southeast Texas

> >

> >MetaMom123@... wrote:

> >

> >> From: MetaMom123@...

> >>

> >> Neurontin (Gabapentin) is classed as an anticonvulsant, and does not

> seem to

> >> have a lot of bad side effects.

> >>

> >> Connie

> >>

> >> ------------------------------------------------------------------------

> >> If you like orange and blue, then you will love our new web site!

> >> http://www.onelist.com

> >> Onelist: ing connections and information exchange

> >> ------------------------------------------------------------------------

> >> This forum is for support only. The information posted to this List is

> for support purposes

> >> and is not intended to replace the examination, diagnosis and treatment

> of a licensed

> >> physician and no such claims are inferred.

> >

> >--

> >

> >Lindy Bingham, Business Technology Dept. Chair/Technology Coordinator

> >Conroe High School, 3200 West , Conroe, Texas 77304

> >lindyb@... lbingham@...

> > " 1998 National Tech Corps Leadership in the Classroom Award "

> > " 1997-98 Texas Computer Education Assn. Teacher of the Year "

> > " 1997 Technology & Learning/Microsoft Texas Teacher of the Year "

> > *************

> > " Don't let weeds grow around your dreams. " --H. Brown, Jr.

> >

> >

> >

> >------------------------------------------------------------------------

> >Did you know that we have over 85,000 e-mail communities at Onelist?

> >http://www.onelist.com

> >Come visit our new web site and explore a new interest

> >------------------------------------------------------------------------

> >This forum is for support only. The information posted to this List is

> for support purposes

> >and is not intended to replace the examination, diagnosis and treatment of

> a licensed

> >physician and no such claims are inferred.

> >

> >

>

> PLEASE LOOK AT OUR APRIL FOOL'S DAY SOOPER DOOPER HOMEPAGE!!!!!!!!!

> NEW - homepage URL

> http://www.frontiernet.net/~goviers

> updated 3/21/99.

>

> On the Internet, nobody knows you're a cat.

>

> The total sum of the world's IQ is constant. If the population is

> increasing, then intelligence is ...

>

> " Millions yearn for immortality who don't know what to do with themselves

> on a rainy Sunday afternoon. "

>

> ------------------------------------------------------------------------

> Ideas on how we can improve ONElist?

> http://www.onelist.com

> Check out the Suggestion Box feature on our new web site

> ------------------------------------------------------------------------

> This forum is for support only. The information posted to this List is for

support purposes

> and is not intended to replace the examination, diagnosis and treatment of a

licensed

> physician and no such claims are inferred.

--

Lindy Bingham, Business Technology Dept. Chair/Technology Coordinator

Conroe High School, 3200 West , Conroe, Texas 77304

lindyb@... lbingham@...

" 1998 National Tech Corps Leadership in the Classroom Award "

" 1997-98 Texas Computer Education Assn. Teacher of the Year "

" 1997 Technology & Learning/Microsoft Texas Teacher of the Year "

*************

" Don't let weeds grow around your dreams. " --H. Brown, Jr.

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