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RE: FW: Foot surgery - Terry

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<< Much to my surprise I thought this was going to be in and out surgery but

found out I will be overnight/perhaps a few nights in the hospital. >>

Moving tendons around sounds like seriious stuff to me. I think some hospital

time is necessary. Won't you be in a cast afterwards?

From what I've heard, most CMTers do not do well with hinged AFOs. We need

the stability of fixed ones.

I don't think you've ever mentioned what part of the world you are in.

I'm in Seattle USA.

Good luck!

Kat

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<< Much to my surprise I thought this was going to be in and out surgery but

found out I will be overnight/perhaps a few nights in the hospital. >>

Moving tendons around sounds like seriious stuff to me. I think some hospital

time is necessary. Won't you be in a cast afterwards?

From what I've heard, most CMTers do not do well with hinged AFOs. We need

the stability of fixed ones.

I don't think you've ever mentioned what part of the world you are in.

I'm in Seattle USA.

Good luck!

Kat

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Terry,

Just thought I 'd let you know that my daughter has had great luck with

hinged AFO's. She snapped the first pair (that weren't hinged) in 2 months,

pretty expensive lesson $850.00 down the drain. I switched orthotist and he

said she was very active and needed the hinged ones.(what do we know, we are

still learning) and she has down great. They did put a stop in it so she

won't hyperextend her knees. anyway, good luck with your surgery.

a

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I live in Frederick MD but work in Bethesda, MD. (USA) I guess it is turning

out to be more serious than I thought. Yes, he mentioned I would be in a

partial cast first and then a solid one afterwards. I had a fixed AFO to

start, but my ankle turned out more and more and then was fitted with hinged

one. When it was real tight it kept my foot in, however, I could not flex

my foot thus I could not drive and the hinge on the outside killed my anke.

My orthotist kept adjusting it but after some time even the hinged one did

not help. Surgery is the only thing left.

Terry

littlet@...

RE: FW: Foot surgery - Terry

<< Much to my surprise I thought this was going to be in and out surgery but

found out I will be overnight/perhaps a few nights in the hospital. >>

Moving tendons around sounds like seriious stuff to me. I think some

hospital

time is necessary. Won't you be in a cast afterwards?

From what I've heard, most CMTers do not do well with hinged AFOs. We need

the stability of fixed ones.

I don't think you've ever mentioned what part of the world you are in.

I'm in Seattle USA.

Good luck!

Kat

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I live in Frederick MD but work in Bethesda, MD. (USA) I guess it is turning

out to be more serious than I thought. Yes, he mentioned I would be in a

partial cast first and then a solid one afterwards. I had a fixed AFO to

start, but my ankle turned out more and more and then was fitted with hinged

one. When it was real tight it kept my foot in, however, I could not flex

my foot thus I could not drive and the hinge on the outside killed my anke.

My orthotist kept adjusting it but after some time even the hinged one did

not help. Surgery is the only thing left.

Terry

littlet@...

RE: FW: Foot surgery - Terry

<< Much to my surprise I thought this was going to be in and out surgery but

found out I will be overnight/perhaps a few nights in the hospital. >>

Moving tendons around sounds like seriious stuff to me. I think some

hospital

time is necessary. Won't you be in a cast afterwards?

From what I've heard, most CMTers do not do well with hinged AFOs. We need

the stability of fixed ones.

I don't think you've ever mentioned what part of the world you are in.

I'm in Seattle USA.

Good luck!

Kat

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thanks. My ortho dr. told me if my ankle was not rigid but supple it would

have been great, however my foot is not. With it being supple it would have

let the hinged splint keep the ankle in, but being so rigid it went against

the splint and the splint could not hold the ankle from turning out. thanks!

Re: FW: Foot surgery - Terry

Terry,

Just thought I 'd let you know that my daughter has had great luck with

hinged AFO's. She snapped the first pair (that weren't hinged) in 2 months,

pretty expensive lesson $850.00 down the drain. I switched orthotist and he

said she was very active and needed the hinged ones.(what do we know, we are

still learning) and she has down great. They did put a stop in it so she

won't hyperextend her knees. anyway, good luck with your surgery.

a

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Terry -- Hi this is nne -- I had fairly extensive tendon transfer,

splitting and bundling surgery last October, along with fusions in the

mid-foot and toes. This was done on an outpatient basis at the hospital

(went in at 6 am and was out by 12:30 pm). The results have been great for

the surgery, however, I took a nasty spill and broke my big toe and am back

in the boot cast for another 3-4 weeks. At least I didn't damage any of the

surgical repairs. Best of luck with your surgery. Feel free to ask any

questions. nne

RE: FW: Foot surgery - Terry

>

>

>

> << Much to my surprise I thought this was going to be in and out surgery

but

> found out I will be overnight/perhaps a few nights in the hospital. >>

>

> Moving tendons around sounds like seriious stuff to me. I think some

hospital

> time is necessary. Won't you be in a cast afterwards?

>

> >From what I've heard, most CMTers do not do well with hinged AFOs. We

need

> the stability of fixed ones.

>

> I don't think you've ever mentioned what part of the world you are in.

> I'm in Seattle USA.

>

> Good luck!

>

> Kat

>

> ------------------------------------------------------------------------

> Easter Made Simple

> Click Here ->

> http://click.egroups.com/1/3122/7/_/616793/_/955726572/

> ------------------------------------------------------------------------

>

>

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Terry -- Hi this is nne -- I had fairly extensive tendon transfer,

splitting and bundling surgery last October, along with fusions in the

mid-foot and toes. This was done on an outpatient basis at the hospital

(went in at 6 am and was out by 12:30 pm). The results have been great for

the surgery, however, I took a nasty spill and broke my big toe and am back

in the boot cast for another 3-4 weeks. At least I didn't damage any of the

surgical repairs. Best of luck with your surgery. Feel free to ask any

questions. nne

RE: FW: Foot surgery - Terry

>

>

>

> << Much to my surprise I thought this was going to be in and out surgery

but

> found out I will be overnight/perhaps a few nights in the hospital. >>

>

> Moving tendons around sounds like seriious stuff to me. I think some

hospital

> time is necessary. Won't you be in a cast afterwards?

>

> >From what I've heard, most CMTers do not do well with hinged AFOs. We

need

> the stability of fixed ones.

>

> I don't think you've ever mentioned what part of the world you are in.

> I'm in Seattle USA.

>

> Good luck!

>

> Kat

>

> ------------------------------------------------------------------------

> Easter Made Simple

> Click Here ->

> http://click.egroups.com/1/3122/7/_/616793/_/955726572/

> ------------------------------------------------------------------------

>

>

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hi my name is and I have turned out feer also, I had 2 surgerys and one

foot still keeps turning out, I was wondering what type of surgery you had.?

what is a tendon transfer? Did it help keep your foot straight? Do you still

need braces? i don't want to fuse my ankle so what can I do and has anyone out

there had anything else that might help me thanks

Re: FW: Foot surgery - Terry

Terry,

Just thought I 'd let you know that my daughter has had great luck with

hinged AFO's. She snapped the first pair (that weren't hinged) in 2 months,

pretty expensive lesson $850.00 down the drain. I switched orthotist and he

said she was very active and needed the hinged ones.(what do we know, we are

still learning) and she has down great. They did put a stop in it so she

won't hyperextend her knees. anyway, good luck with your surgery.

a

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hi my name is and I have turned out feer also, I had 2 surgerys and one

foot still keeps turning out, I was wondering what type of surgery you had.?

what is a tendon transfer? Did it help keep your foot straight? Do you still

need braces? i don't want to fuse my ankle so what can I do and has anyone out

there had anything else that might help me thanks

Re: FW: Foot surgery - Terry

Terry,

Just thought I 'd let you know that my daughter has had great luck with

hinged AFO's. She snapped the first pair (that weren't hinged) in 2 months,

pretty expensive lesson $850.00 down the drain. I switched orthotist and he

said she was very active and needed the hinged ones.(what do we know, we are

still learning) and she has down great. They did put a stop in it so she

won't hyperextend her knees. anyway, good luck with your surgery.

a

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In a message dated 4/14/2000 8:44:05 AM Pacific Daylight Time,

mikerobertac@... writes:

<< Terry,

Just thought I 'd let you know that my daughter has had great luck with

hinged AFO's. She snapped the first pair (that weren't hinged) in 2 months,

pretty expensive lesson $850.00 down the drain. I switched orthotist and he

said she was very active and needed the hinged ones.(what do we know, we are

still learning) and she has down great. They did put a stop in it so she

won't hyperextend her knees. anyway, good luck with your surgery.

a

>>

They should have been guaranteed for 3 months. I know casue Adam breaks his

all the time.

jenny

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In a message dated 4/14/2000 8:44:05 AM Pacific Daylight Time,

mikerobertac@... writes:

<< Terry,

Just thought I 'd let you know that my daughter has had great luck with

hinged AFO's. She snapped the first pair (that weren't hinged) in 2 months,

pretty expensive lesson $850.00 down the drain. I switched orthotist and he

said she was very active and needed the hinged ones.(what do we know, we are

still learning) and she has down great. They did put a stop in it so she

won't hyperextend her knees. anyway, good luck with your surgery.

a

>>

They should have been guaranteed for 3 months. I know casue Adam breaks his

all the time.

jenny

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In a message dated 4/14/2000 8:44:05 AM Pacific Daylight Time,

mikerobertac@... writes:

<< Terry,

Just thought I 'd let you know that my daughter has had great luck with

hinged AFO's. She snapped the first pair (that weren't hinged) in 2 months,

pretty expensive lesson $850.00 down the drain. I switched orthotist and he

said she was very active and needed the hinged ones.(what do we know, we are

still learning) and she has down great. They did put a stop in it so she

won't hyperextend her knees. anyway, good luck with your surgery.

a

>>

They should have been guaranteed for 3 months. I know casue Adam breaks his

all the time.

jenny

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Haven't had it yet. They transfer good tendons to areas where there are bad

tendons. The high arch will also be adjusted to flatten my foot. will let

everyone know how it worked after surgery on 4/26 - 4 to 6 weeks healing

time. I may still need some sort of a brace for the foot drop, then again

maybe not. will be a bit before I can give you the status, but I will.

I'm keeping my fingers crossed that it is a big improvement.

Re: FW: Foot surgery - Terry

Terry,

Just thought I 'd let you know that my daughter has had great luck with

hinged AFO's. She snapped the first pair (that weren't hinged) in 2

months,

pretty expensive lesson $850.00 down the drain. I switched orthotist and

he

said she was very active and needed the hinged ones.(what do we know, we

are

still learning) and she has down great. They did put a stop in it so she

won't hyperextend her knees. anyway, good luck with your surgery.

a

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you could try a hinged brace.....if your ankle is not rigid it might help to

keep the foot from turning outward. if your foot is rigid, it might help a

little, but the foot will have a tendency to get used to the hinged brace

and keep turning outward.

Re: FW: Foot surgery - Terry

Terry,

Just thought I 'd let you know that my daughter has had great luck with

hinged AFO's. She snapped the first pair (that weren't hinged) in 2

months,

pretty expensive lesson $850.00 down the drain. I switched orthotist and

he

said she was very active and needed the hinged ones.(what do we know, we

are

still learning) and she has down great. They did put a stop in it so she

won't hyperextend her knees. anyway, good luck with your surgery.

a

------------------------------------------------------------------------

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Buy one today at Corbis.com

http://click.egroups.com/1/3357/7/_/616793/_/955726969/

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you could try a hinged brace.....if your ankle is not rigid it might help to

keep the foot from turning outward. if your foot is rigid, it might help a

little, but the foot will have a tendency to get used to the hinged brace

and keep turning outward.

Re: FW: Foot surgery - Terry

Terry,

Just thought I 'd let you know that my daughter has had great luck with

hinged AFO's. She snapped the first pair (that weren't hinged) in 2

months,

pretty expensive lesson $850.00 down the drain. I switched orthotist and

he

said she was very active and needed the hinged ones.(what do we know, we

are

still learning) and she has down great. They did put a stop in it so she

won't hyperextend her knees. anyway, good luck with your surgery.

a

------------------------------------------------------------------------

25% Off All Prints!

Buy one today at Corbis.com

http://click.egroups.com/1/3357/7/_/616793/_/955726969/

------------------------------------------------------------------------

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you could try a hinged brace.....if your ankle is not rigid it might help to

keep the foot from turning outward. if your foot is rigid, it might help a

little, but the foot will have a tendency to get used to the hinged brace

and keep turning outward.

Re: FW: Foot surgery - Terry

Terry,

Just thought I 'd let you know that my daughter has had great luck with

hinged AFO's. She snapped the first pair (that weren't hinged) in 2

months,

pretty expensive lesson $850.00 down the drain. I switched orthotist and

he

said she was very active and needed the hinged ones.(what do we know, we

are

still learning) and she has down great. They did put a stop in it so she

won't hyperextend her knees. anyway, good luck with your surgery.

a

------------------------------------------------------------------------

25% Off All Prints!

Buy one today at Corbis.com

http://click.egroups.com/1/3357/7/_/616793/_/955726969/

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so sorry to hear that, what a bad stroke of luck. do your work? how long

were you out?

littlet@...

Re: FW: Foot surgery - Terry

Terry -- Hi this is nne -- I had fairly extensive tendon transfer,

splitting and bundling surgery last October, along with fusions in the

mid-foot and toes. This was done on an outpatient basis at the hospital

(went in at 6 am and was out by 12:30 pm). The results have been great for

the surgery, however, I took a nasty spill and broke my big toe and am back

in the boot cast for another 3-4 weeks. At least I didn't damage any of the

surgical repairs. Best of luck with your surgery. Feel free to ask any

questions. nne

RE: FW: Foot surgery - Terry

>

>

>

> << Much to my surprise I thought this was going to be in and out surgery

but

> found out I will be overnight/perhaps a few nights in the hospital. >>

>

> Moving tendons around sounds like seriious stuff to me. I think some

hospital

> time is necessary. Won't you be in a cast afterwards?

>

> >From what I've heard, most CMTers do not do well with hinged AFOs. We

need

> the stability of fixed ones.

>

> I don't think you've ever mentioned what part of the world you are in.

> I'm in Seattle USA.

>

> Good luck!

>

> Kat

>

> ------------------------------------------------------------------------

> Easter Made Simple

> Click Here ->

> http://click.egroups.com/1/3122/7/_/616793/_/955726572/

> ------------------------------------------------------------------------

>

>

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Hello Terry --

Yes, I work -- mostly a sit down job. My background is a nursing facility

administrator who now works at the corporate office providing support for

the administrators in our facilities (seven). I was out of the office for

two weeks after my surgery, however, I " borrowed " an overbed table from one

facility and was able to set up a laptop computer and do some work from

home. When I went back to the office, I was only able to do part days for a

while, but was soon working about the same length of days as usual.

When is your surgery scheduled? I'm hoping that it goes well for you and

that you have good results. Keep in touch.

nne

RE: FW: Foot surgery - Terry

>

>

> >

> >

> >

> > << Much to my surprise I thought this was going to be in and out surgery

> but

> > found out I will be overnight/perhaps a few nights in the hospital. >>

> >

> > Moving tendons around sounds like seriious stuff to me. I think some

> hospital

> > time is necessary. Won't you be in a cast afterwards?

> >

> > >From what I've heard, most CMTers do not do well with hinged AFOs. We

> need

> > the stability of fixed ones.

> >

> > I don't think you've ever mentioned what part of the world you are in.

> > I'm in Seattle USA.

> >

> > Good luck!

> >

> > Kat

> >

> > ------------------------------------------------------------------------

> > Easter Made Simple

> > Click Here ->

> > http://click.egroups.com/1/3122/7/_/616793/_/955726572/

> > ------------------------------------------------------------------------

> >

> >

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HI TERRY , YOU WILL DO GREAT, I WENT THREW TWO SURGERYS LAST YEAR AND A NOTHER

ONE THIS SEPTEMBER COMING UP. IT'S NOT BAD AT ALL, AND YOU KNOW THE HARDEST PART

IS THE HARD CAST, IT'S A LITTLE ROUGH GETTING AROUND BUT IT ALL GOES SO FAST AND

IT IS SO WORTH IT. I WILL KEEP IN TOUCH WITH YOU, I WOULD LIKE TO SEE HOW THE

TENDON TRANSFER GOES I DIDN'T HAVE THAT ONE, BUT THE ARCH DROP FASHIA PLANTAR

RELEASE IS GREAT , IT REALLY HELPS ALOT. I JUST WANT TO TELL YOU YOUR FEET MIGHT

BE BIGGER, MINE GREW A WHOLE SIZE. THEY NEVER TOLD ME EATHER AND I WAS SO

SHOCKED. I'M NOT SURE IT HAPPENS TO ALL OF US BUT IT MIGHT. I ALSO HAD MY HEEL

BROKEN AND MOVED OVER, AND A PIN PUT IN,STARTING AT MY HEEL TO MID WAY THREW MY

FOOT.AND A FIRST AND 5TH MEDATARCIAL REPAIR, THAT IS WHERE THEY BALANCE YOUR

FOOT. THEY DO IT THREW YOUR TOES AND ON TOP OF YOUR FOOT,

SO I HAVE BEEN THERE. THEY DIDN'T DO THE MEDATARCIAL REPAIR ON MY RIGHT FOOT AND

THATS WHY I NEED TO GO BACK IN. I WAS WONDERING IF ANYONE OR YOUR SELF STILL

NEED TO WEAR BRACES ETC. OR IS THE SURGERY ENOUGH. ALSO HOW LONG DOES IT LAST, I

HOPE FOREVER THANKS MONICA

Re: FW: Foot surgery - Terry

Terry,

Just thought I 'd let you know that my daughter has had great luck with

hinged AFO's. She snapped the first pair (that weren't hinged) in 2

months,

pretty expensive lesson $850.00 down the drain. I switched orthotist and

he

said she was very active and needed the hinged ones.(what do we know, we

are

still learning) and she has down great. They did put a stop in it so she

won't hyperextend her knees. anyway, good luck with your surgery.

a

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4/26. I WAS TOLD 4-6 WEEKS OFF. I WILL BE BORED TO TEARS FOR AWHILE, BUT

IF IT WORKS, IT WILL BE WORTH IT. HAVING TROUBLE WEARING ANY SHOES ON MY

RIGHT FOOT. DON'T FEEL STABLE IN ANY SHOE ANYMORE. I WILL BE GETTING MY

EMAIL FROM WORK AT HOME SO I WILL BE KEEPING EVERYONE POSTED ON MY PROGRESS.

Re: FW: Foot surgery - Terry

Hello Terry --

Yes, I work -- mostly a sit down job. My background is a nursing facility

administrator who now works at the corporate office providing support for

the administrators in our facilities (seven). I was out of the office for

two weeks after my surgery, however, I " borrowed " an overbed table from one

facility and was able to set up a laptop computer and do some work from

home. When I went back to the office, I was only able to do part days for a

while, but was soon working about the same length of days as usual.

When is your surgery scheduled? I'm hoping that it goes well for you and

that you have good results. Keep in touch.

nne

RE: FW: Foot surgery - Terry

>

>

> >

> >

> >

> > << Much to my surprise I thought this was going to be in and out surgery

> but

> > found out I will be overnight/perhaps a few nights in the hospital. >>

> >

> > Moving tendons around sounds like seriious stuff to me. I think some

> hospital

> > time is necessary. Won't you be in a cast afterwards?

> >

> > >From what I've heard, most CMTers do not do well with hinged AFOs. We

> need

> > the stability of fixed ones.

> >

> > I don't think you've ever mentioned what part of the world you are in.

> > I'm in Seattle USA.

> >

> > Good luck!

> >

> > Kat

> >

> > ------------------------------------------------------------------------

> > Easter Made Simple

> > Click Here ->

> > http://click.egroups.com/1/3122/7/_/616793/_/955726572/

> > ------------------------------------------------------------------------

> >

> >

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In a message dated 4/21/2000 11:43:56 AM Pacific Daylight Time,

arew@... writes:

<< By age 5 my feet were so crooked the Dr. said I’d be in a wheelchair by

age 6. However, my parents (bless them both) thought otherwise. My father

made

aluminum splints, padded with dense foam which my mother bound to my feet

EVERY

night for years. >>

WOW Your parents are wonderful. How did your Dad think of this?

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In a message dated 4/21/2000 11:43:56 AM Pacific Daylight Time,

arew@... writes:

<< By age 5 my feet were so crooked the Dr. said I’d be in a wheelchair by

age 6. However, my parents (bless them both) thought otherwise. My father

made

aluminum splints, padded with dense foam which my mother bound to my feet

EVERY

night for years. >>

WOW Your parents are wonderful. How did your Dad think of this?

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In a message dated 4/21/2000 11:43:56 AM Pacific Daylight Time,

arew@... writes:

<< By age 5 my feet were so crooked the Dr. said I’d be in a wheelchair by

age 6. However, my parents (bless them both) thought otherwise. My father

made

aluminum splints, padded with dense foam which my mother bound to my feet

EVERY

night for years. >>

WOW Your parents are wonderful. How did your Dad think of this?

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Hi Terry, , a,

I never had a tendon transfer but understand they are temporary, lasting only as

long as the transferred tendon keeps its strength. I’ve had CMT since age 3, I’m

now 61. By age 5 my feet were so crooked the Dr. said I’d be in a wheelchair by

age 6. However, my parents (bless them both) thought otherwise. My father made

aluminum splints, padded with dense foam which my mother bound to my feet EVERY

night for years. My feet slowly straightened and now they are still straight

without high arches. It was painful, I hated it, and begged not to wear them.

Mother never relented, made me understand that this would keep me walking.

I wore heavy metal braces for 6 years. I had many sprained ankles when I didn’t

wear them. I did have a triple arthrodesis on both feet at age 12. My left ankle

was so stiff it wouldn’t bend at all, the right one a little less so. My ballet

teacher helped me limber them up so I could dance and alternate feet on stairs.

I have foot drop but my ankles did not turn over & sprain anymore.

I’ve been wearing fixed ankle AFOs (about 15+ years) for the foot drop plus they

keep me from walking on the outside edges of my feet.

My operation was a success, but I’ve heard of others not lasting.

Whatever you choose to do I wish you the best.

Alice

" Little, Terry (CSR) " wrote:

> Haven't had it yet. They transfer good tendons to areas where there are bad

> tendons. The high arch will also be adjusted to flatten my foot. will let

> everyone know how it worked after surgery on 4/26 - 4 to 6 weeks healing

> time. I may still need some sort of a brace for the foot drop, then again

> maybe not. will be a bit before I can give you the status, but I will.

> I'm keeping my fingers crossed that it is a big improvement.

>

> RE: FW: Foot surgery - Terry

>

>

> thanks. My ortho dr. told me if my ankle was not rigid but supple it

> would

> have been great, however my foot is not. With it being supple it would

> have

> let the hinged splint keep the ankle in, but being so rigid it went

> against

> the splint and the splint could not hold the ankle from turning out.

> thanks!

>

>

>

>

>

>

>

>

>

>

>

>

>

> ----------------------------------------------------------------------------

>

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