RE: FW: Foot surgery - Terry

[Guest guest]

Hi Terry, , a,

I never had a tendon transfer but understand they are temporary, lasting only as

long as the transferred tendon keeps its strength. I’ve had CMT since age 3, I’m

now 61. By age 5 my feet were so crooked the Dr. said I’d be in a wheelchair by

age 6. However, my parents (bless them both) thought otherwise. My father made

aluminum splints, padded with dense foam which my mother bound to my feet EVERY

night for years. My feet slowly straightened and now they are still straight

without high arches. It was painful, I hated it, and begged not to wear them.

Mother never relented, made me understand that this would keep me walking.

I wore heavy metal braces for 6 years. I had many sprained ankles when I didn’t

wear them. I did have a triple arthrodesis on both feet at age 12. My left ankle

was so stiff it wouldn’t bend at all, the right one a little less so. My ballet

teacher helped me limber them up so I could dance and alternate feet on stairs.

I have foot drop but my ankles did not turn over & sprain anymore.

I’ve been wearing fixed ankle AFOs (about 15+ years) for the foot drop plus they

keep me from walking on the outside edges of my feet.

My operation was a success, but I’ve heard of others not lasting.

Whatever you choose to do I wish you the best.

Alice

" Little, Terry (CSR) " wrote:

> Haven't had it yet. They transfer good tendons to areas where there are bad

> tendons. The high arch will also be adjusted to flatten my foot. will let

> everyone know how it worked after surgery on 4/26 - 4 to 6 weeks healing

> time. I may still need some sort of a brace for the foot drop, then again

> maybe not. will be a bit before I can give you the status, but I will.

> I'm keeping my fingers crossed that it is a big improvement.

>

> RE: FW: Foot surgery - Terry

>

>

> thanks. My ortho dr. told me if my ankle was not rigid but supple it

> would

> have been great, however my foot is not. With it being supple it would

> have

> let the hinged splint keep the ankle in, but being so rigid it went

> against

> the splint and the splint could not hold the ankle from turning out.

> thanks!

>

>

>

>

>

>

>

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>

>

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[Guest guest]

Hi Terry, , a,

I never had a tendon transfer but understand they are temporary, lasting only as

long as the transferred tendon keeps its strength. I’ve had CMT since age 3, I’m

now 61. By age 5 my feet were so crooked the Dr. said I’d be in a wheelchair by

age 6. However, my parents (bless them both) thought otherwise. My father made

aluminum splints, padded with dense foam which my mother bound to my feet EVERY

night for years. My feet slowly straightened and now they are still straight

without high arches. It was painful, I hated it, and begged not to wear them.

Mother never relented, made me understand that this would keep me walking.

I wore heavy metal braces for 6 years. I had many sprained ankles when I didn’t

wear them. I did have a triple arthrodesis on both feet at age 12. My left ankle

was so stiff it wouldn’t bend at all, the right one a little less so. My ballet

teacher helped me limber them up so I could dance and alternate feet on stairs.

I have foot drop but my ankles did not turn over & sprain anymore.

I’ve been wearing fixed ankle AFOs (about 15+ years) for the foot drop plus they

keep me from walking on the outside edges of my feet.

My operation was a success, but I’ve heard of others not lasting.

Whatever you choose to do I wish you the best.

Alice

" Little, Terry (CSR) " wrote:

> Haven't had it yet. They transfer good tendons to areas where there are bad

> tendons. The high arch will also be adjusted to flatten my foot. will let

> everyone know how it worked after surgery on 4/26 - 4 to 6 weeks healing

> time. I may still need some sort of a brace for the foot drop, then again

> maybe not. will be a bit before I can give you the status, but I will.

> I'm keeping my fingers crossed that it is a big improvement.

>

> RE: FW: Foot surgery - Terry

>

>

> thanks. My ortho dr. told me if my ankle was not rigid but supple it

> would

> have been great, however my foot is not. With it being supple it would

> have

> let the hinged splint keep the ankle in, but being so rigid it went

> against

> the splint and the splint could not hold the ankle from turning out.

> thanks!

>

>

>

>

>

>

>

>

>

>

>

>

>

> ----------------------------------------------------------------------------

>

[Guest guest]

> In a message dated 4/21/2000 11:43:56 AM Pacific Daylight Time,

> arew@l... writes:

>

> << By age 5 my feet were so crooked the Dr. said I’d be in a

wheelchair by

> age 6. However, my parents (bless them both) thought otherwise. My

father

> made

> aluminum splints, padded with dense foam which my mother bound to

my feet

> EVERY

> night for years. >>

> WOW Your parents are wonderful. How did your Dad think of this?

>

[Guest guest]

Thanks for the info.............will just have to pray that the transferred

tendons keep their strength.

RE: FW: Foot surgery - Terry

>

>

> thanks. My ortho dr. told me if my ankle was not rigid but supple it

> would

> have been great, however my foot is not. With it being supple it

would

> have

> let the hinged splint keep the ankle in, but being so rigid it went

> against

> the splint and the splint could not hold the ankle from turning out.

> thanks!

>

>

>

>

>

>

>

>

>

>

>

>

>

>

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