Re: questions of a novice

[Guest guest]

Hi Joan and welcome to our list...

I too suffer from PLMD and when I wake up in the morning, my legs will be

tight just as you described. I have RLS also, but that is a different

feeling for me. It's more like ant's crawling around inside my legs, as

soon as I get up and move, it will quit until I sit down again.

My Dr. recently put me on Naproxin to see if it would help the RLS, it

doesn't help that so much, but it does help the PLMD. I don't wake up

with sore, achey legs in the morning. Naproxin is a heavy duty NSAID and

can cause stomach problems, if you try it, be careful. I take mine at

dinner time so I have plenty of food in my stomach.

I have never taken sinemet, but I understand that after awhile it can

cause rebound affect, or worsening of your symptoms during the day. I'm

sure someone on the list can better tell you about that.

Good luck, peacful, easy days and nights.

Debbie

, Ca

42

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[Guest guest]

Joan, I think almost everyone in this group has had the same experience

with Sinemet. I works for awhile, then causes rebound (symptoms start

earlier) and augmentation (symptoms get worse). Eventually you take more

and more until the augmentation and rebound become so severe that you start

on a different drug. Someone in this group asked why we all seem to have to

go through Sinemet before taking more appropriate medications. I guess

because Sinemet was one of the first drugs prescribed for rls, doctors feel

comfortable with it. There are four other Parkinson's drugs that work well

for some people. Go on line to www.rls.org. There is a wealth of

information about Sinemet and all of the other medications used. Good luck,

Kathy, 56, PA

questions of a novice

>

>

>I'm new to the list and fairly newly diagnosed w/ PLMD. I have enjoyed the

>wealth of information here. What a wonderful resource! And to the

>questions....

>

>I have been diagnosed w/ PLMD but I wonder if I have RLS too. In the

>evening and in the morning my legs ache - sort of a muscle ache like I've

>run quite a ways or something. A bit like a muscle cramp but no way near

as

>bad. Does this sound like RLS?

>

>I'm taking Sinamet. It seemed to work well for a little while, and now

less

>so. Has anyone else encountered this? Thanks!

>

>Joan

>joankeith@...

>

>

>

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