Re: Permax

[Guest guest]

Kathy:

Just wanted to relate my experience with Permax. After I started having the

rebound and augmentation from the Sinemet, my doctor switched me to Permax.

In my opinion, with the way my body reacted, that was the worst experience

that I'd ever had, although many people don't have the side effects, some

do. Thank God I didn't have the fainting and some of the things that you

went through, but I did have terrible problems with awful headaches, severe

fatigue, flu-like symptoms, body aches, night sweates and worse sinus

problems than I usually had, plus it didn't really help my RLS that much. It

was just a little too much for me to go through with so little relief.

I'm not knocking Permax, as so many RLS sufferers have had good relief from

it with few side effects, but in my case, it seems that my body just doesn't

want to tolerate any of the Parkinson's medications (Sinemet, Permax and

Mirapex). Haven't tried Requip yet, and I doubt very seriously that I will.

I hope that you're feeling better and can find something to help ease the

RLS. I'm not trying to give advice because I am not a doctor, but if you had

good results with the Mirapex, you could talk to your doctor about

prescribing something for you to help counteract the insomnia.

Take care,

Jodi, 39, Nashville, TN

Serdikof wrote:

> Hi group, I appreciate the information this group sent me concerning

> mirapex and insomnia. I saw my neurologist on Monday and he suggested

> that I try permax. I took one pill (,05) at bedtime. Woke up at 3:30

> a.m. with severe anxiety and sweating. I thought that if I went into the

> living room to watch some TV I could relieve some of the anxiety. I never

> made it that far. Fell to the floor in the hallway. My husband found

> me. By then I was extremely nauseous so he brought me a bucket. Then I

> fainted. Hubbie helped with cold compresses and eventually got me back

> into bed, where I was eventually able to get to sleep. He also told me

> that I was so hot (not the way you're thinking) that the carpet where I

> fell was actually hot to the touch. Now, I thought that I would do almost

> anything to get to sleep, but this is ridiculous. Needless to say I have

> not taken any more permax. Is my reaction to this medication unusual?

> What I took was the lowest dose. I was supposed to increase gradually to

> 5 pills a night over a two week period. I wonder if Parkinson's patients

> go through this kind of suffering regularly. I guess we should count our

> blessings, but frankly I sometimes find that difficult, if not

> impossible. Like many of you I find that this group is the only place to

> find solace, (not to mention valuable information). When I told my gp

> that I was reluctant to begin estrogen replacement therapy because it

> might aggravate the rls, she said " Well, wouldn't it be worse to suffer a

> fatal heart attack. " I bet some of you know exactly what my answer was to

> that. Thank you all for your help and support and humor. Kathy, 56,

> PA