Guest guest Posted March 9, 2000 Report Share Posted March 9, 2000 Hi Garrett, Welcome to our fabulous and elite group! Everyone here has an inspiring story to share. Wow. I'm impressed by your level of activity despite the obstacles you've faced with surgeries, etc. Now I have a new role model to add to my mental list. Seriously, I have a list of people in my head whose stories inspire me to keep on plugging when I think about everything being too much. My Dad is at the top of that list. Another is a young dancer who lost a leg to a rare bone disease (and cointinued to ice skate and dance). Yet another is an older dancer who has a muscle disease that has put her in a wheelchair but she continues on in the performing arts and has written plays and choreographed dances to include the able-bodied and handicapped. Alisha sweetie - you are also on my mental list. I think of you often as an inspiration. My mental list of role models has been a tremendous coping tool for me. And with this list, I find it keeps growing!!!!! Welcome to our group Garrett! Ruth Warren gdevier@...> >Reply-To: CMTUS (AT) onelist (DOT) com >To: CMTUS (AT) onelist (DOT) com >Subject: New here... >Date: Fri, 10 Mar 2000 10:36:22 -0000 > > > >Hello I am new to CMTUS. I have been following the CMTA discussion >forum for awhile. > >Just to introduce myself. I am 28 and was diagnosed with CMT when I >was about 12 but first developed symptoms when I was 7. > >I have muscle atrophy in my hands and lower legs and have had >reconstructive surgeries for all. > >I also have paralysis of my vocal chord muscles. This has left my >vocal chords in a talking posistion (luckily I can still talk fine) >but I have difficulty breathing and have had a tracheotomy since I >was 14. > >I am very physically active and have made efforts not to let CMT stop >me. I work on a trail crew for North Cascades National park and have >been a wilderness backcountry ranger in the past. I bike, ski, >snowboard, and just returned from two months trekking in Nepal. > >I am looking forward to being apart of this group. > >Sincerely, > >Garrett > ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2000 Report Share Posted March 11, 2000 Hi Garrett, Joanie here Wow, you are amazing!!! I have never been able to do what you do even before CMT!!! New here... Hello I am new to CMTUS. I have been following the CMTA discussion forum for awhile. Just to introduce myself. I am 28 and was diagnosed with CMT when I was about 12 but first developed symptoms when I was 7. I have muscle atrophy in my hands and lower legs and have had reconstructive surgeries for all. I also have paralysis of my vocal chord muscles. This has left my vocal chords in a talking posistion (luckily I can still talk fine) but I have difficulty breathing and have had a tracheotomy since I was 14. I am very physically active and have made efforts not to let CMT stop me. I work on a trail crew for North Cascades National park and have been a wilderness backcountry ranger in the past. I bike, ski, snowboard, and just returned from two months trekking in Nepal. I am looking forward to being apart of this group. Sincerely, Garrett ------------------------------------------------------------------------------ ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2000 Report Share Posted May 26, 2000 Hi Ya , Welcome. This is a great list mail. I've learned so much and it's a wonderful support group. In Indy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2000 Report Share Posted May 26, 2000 In a message dated 5/26/00 3:53:56 PM Central Daylight Time, dmillerman@... writes: << HI YA'll !!!!!!!!.....I'm Just >> Hi : welcome to the list. It's a great place to be. I think you will benefit from so many with the CMT experience. Keep on posting. Regards, Bud in TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2000 Report Share Posted May 26, 2000 In a message dated 5/26/00 3:53:56 PM Central Daylight Time, dmillerman@... writes: << HI YA'll !!!!!!!!.....I'm Just >> Hi : welcome to the list. It's a great place to be. I think you will benefit from so many with the CMT experience. Keep on posting. Regards, Bud in TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2000 Report Share Posted May 26, 2000 In a message dated 5/26/00 3:53:56 PM Central Daylight Time, dmillerman@... writes: << HI YA'll !!!!!!!!.....I'm Just >> Hi : welcome to the list. It's a great place to be. I think you will benefit from so many with the CMT experience. Keep on posting. Regards, Bud in TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2000 Report Share Posted May 26, 2000 Hi , I am Lamar, a 52 y/0 single male with CMT who lives in S. GA. I am a retired RN on disability after 30 years in mental health. I am overweight (300 at 6-2). Bypasses scare me, it seems a lot to go through for a few years weight loss, and I have yet to see someone that did not regain their weight. At any rate I wish you luck and welcome you. Sounds like we have a lot in common. You did not share what your medical status was, but we can always use those with medical backgrounds. I will say that my CMT has a much greater effect on my social life than my weight. I am attaching a portion of a post I made on another list that will show how it effects me and what I am doing to cope. It was in response to a request for more " male " things on the list. For some on both lists, it is a repeat, but others may not have seen it: Sports: I like to play cards if I have someone to play with, also Backgammon on the computer. baseball, basketball, soccer, football are things I once liked but can no longer participate in due to CMT. Going to games is out of the question as parking miles away and climbing bleachers is a thing of the past. Sure there is TV, but watching a game on TV alone is not much fun and tends to further isolate me. I wonder if the millions of dollars spent on salaries for players were used for the good of humanity (like CMT research, etc.) what the results would be. ly I don't think any player is worth more per minute than the average income of the fan's per year. Fishing: One thing I love, and that was once a stress reliever. Then along came CMT. No longer can I go up and down banks or climb fences to go fishing. I can't stand and cast a rod or bait a hook. I can't carry my tackle and a chair. Walking in a rolling boat is out of the question and getting one in and out of the water is certainly a thing of the past. I've heard that some places have areas to fish that are assessable to handicapped but the only one around here leaves you to fish in about 4 inches of water. I fell three times the last time I really tried to go fishing and then I realized it was likely my last. Cars: Gosh they cost!!! Sure wish I could still do the service on mine like changing oil, plugs, belts, hoses, etc. I have 4 vehicles and the air conditioning is out on all of them. (two will soon be classified as antiques and perhaps then I will be able to get their true value out of them.) Doing repairs like that is now impossible for me and even finding someone to help me take one to the shop for repair is hard, not to mention the astronomical cost. I hate having to have mine detailed to clean and wax it. Frightens me when I try to brake and miss the pedal, I know hand controls will soon be required. You did not mention a garden or yard work, but they are limited. I do manage to mow some on a rider but can no longer stand to trim safely with a chain saw or string trimmer. I've destroyed a lot of the decorative plants here as well as over 100 of my grape vines simply because I can't maintain them It's rough having to pay up to $200.00 a month to get yard work done that I once did easily, and it still is not as good as I would like it to be. I had to let my garden go because I can't run the tiller or walk in soft plowed dirt, not to mention picking the veggies. The last time I tried I had to crawl to pick my beans. When I did get them I saw it was too dangerous for me to try to can them. Moving the pressure cooker and hot jars was too risky. I did a few, but gave away over 100 quarts. I tried to dig a few holes with a shovel to plant tomatoes, but could not. Another major stress reliever is a thing of the past. Also little upkeep like painting and re-roofing are now things I have to try to afford to hire someone to do. Even had to hire someone to hang ceiling fans. I did manage to replace my water heater without help.other than having someone load and unload them for me. You left out the other things that men talk about and in fact the most common topics, women and sex, in fact the most common " man " topics. I refuse to be demeaning to females as most men are. I cant jog, play tennis, go for walks in the mountains or woods, ride bicycles or dance anymore. therefore my social life is virtually nil. Even a hug from a friend (abet a married one) becomes a thing to treasure. When a male with physical limitations encounters a new female he is often ruled out before the introduction. At the least this leaves a huge mountain to climb with weak legs. My luck has been encountering the users and takers. They do not care about you. They talk good talk and smile------UNTIL................(The last took me for over $20,000. and disappeared while I had gone to the MDA clinic....with a lot of my personal items. Only after did I find that I was not the first, five others had experienced the same) Even establishing a platonic dating relationship is virtually impossible. Taking in groceries and out garbage is hard. One bag at a time seems to take forever. So CMT has taken most of the " man " things from my life. I am thankful that I did learn some of the things often done by the woman of the house. I am a fair cook and know how to do laundry. Sure wish I had learned to sew more. Even minor things like hemming slacks, replacing pockets and zippers or altering waist sizes are very costly. Mopping is sure a job from a chair and some 2500 sq. ft has to be done. I do manage to survive. Psychology has shown that the female can adapt to a handicapping condition (or even retirement) better than a male. Their strengths allow them to cope better, even though they have their own problems. Most males are taught from birth to be the breadwinner, and have a " macho " image. Have you ever thought that the only place it is generally acceptable for two men to hug is on the athletic field?? Both males and females carry inside of them a part of the opposite sex. In today's world the female is learning to identify with the male part of themselves. They excel in things that once were considered strictly " male " . sadly to say males are far behind. Many never learn to accept a feminine part of their personality. Tenderness and a life void of the aforementioned things are often viewed on as " un-manly. " Even retirement usually strikes a blow. Thankfully, I was reared that no part of life was strictly " male " or " female " . Each sex did some of it all. The division of labor was minimal. If it had not been, my life would be much harder today. So, what has CMT done for me? My muscles are weak, my main stress relief's are now impossible; BUT, it has made me a stronger person. I cope daily with things many could not. I have learned to slow down and smell the beauty of the rose. A sunset can be a peak experience. I have learned to really value the platonic friendship of true friends, male or female. I am learning to enjoy and take pride in many things that were once considered primarily for females. While my body may be a slave of CMT, my heart and spirit do not have to be. (Not to mention that I find lost money on the ground others overlook, because I am looking at the ground each step---.LOL). No longer is my goal to win at athletics or other " masculine " accomplishments, they are less important. My goal is trying to learn to survive and find happiness even with my physical limitations. I look for true inner contentment, the laughter and smiles in life. In doing so I am climbing the highest mountain a man can climb, and I WILL meet the challenge. I may be physically behind and in the last quarter of my life, but the game is not over!! I am just learning the new rules. So now you have it from a man. I am open to comments from you, other males, or females. There is still a lot I can learn. New Here... > Hi Group > > I'm new to the list and wanted to introduce myself....I'm ...55 yo retired medical professional (on disability).....have had CMT since approx the age of 8 or 9......am presently single and living in Wisconsin...moved here from Tennessee 3 months ago...still trying to adjust. > > I was morbidly obese and on the verge of not caring for myself till Nov. 15 1999..when I had gastric By pass surgery......since that time I have lost 108 lbs and am doing better than I have in years. > > I have no family except for 2 brothers with whom I'm not close....I'm looking forward to learning and sharing on the list......soooooo......HI YA'll !!!!!!!!.....I'm > > Just > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2000 Report Share Posted May 26, 2000 Hi , I am Lamar, a 52 y/0 single male with CMT who lives in S. GA. I am a retired RN on disability after 30 years in mental health. I am overweight (300 at 6-2). Bypasses scare me, it seems a lot to go through for a few years weight loss, and I have yet to see someone that did not regain their weight. At any rate I wish you luck and welcome you. Sounds like we have a lot in common. You did not share what your medical status was, but we can always use those with medical backgrounds. I will say that my CMT has a much greater effect on my social life than my weight. I am attaching a portion of a post I made on another list that will show how it effects me and what I am doing to cope. It was in response to a request for more " male " things on the list. For some on both lists, it is a repeat, but others may not have seen it: Sports: I like to play cards if I have someone to play with, also Backgammon on the computer. baseball, basketball, soccer, football are things I once liked but can no longer participate in due to CMT. Going to games is out of the question as parking miles away and climbing bleachers is a thing of the past. Sure there is TV, but watching a game on TV alone is not much fun and tends to further isolate me. I wonder if the millions of dollars spent on salaries for players were used for the good of humanity (like CMT research, etc.) what the results would be. ly I don't think any player is worth more per minute than the average income of the fan's per year. Fishing: One thing I love, and that was once a stress reliever. Then along came CMT. No longer can I go up and down banks or climb fences to go fishing. I can't stand and cast a rod or bait a hook. I can't carry my tackle and a chair. Walking in a rolling boat is out of the question and getting one in and out of the water is certainly a thing of the past. I've heard that some places have areas to fish that are assessable to handicapped but the only one around here leaves you to fish in about 4 inches of water. I fell three times the last time I really tried to go fishing and then I realized it was likely my last. Cars: Gosh they cost!!! Sure wish I could still do the service on mine like changing oil, plugs, belts, hoses, etc. I have 4 vehicles and the air conditioning is out on all of them. (two will soon be classified as antiques and perhaps then I will be able to get their true value out of them.) Doing repairs like that is now impossible for me and even finding someone to help me take one to the shop for repair is hard, not to mention the astronomical cost. I hate having to have mine detailed to clean and wax it. Frightens me when I try to brake and miss the pedal, I know hand controls will soon be required. You did not mention a garden or yard work, but they are limited. I do manage to mow some on a rider but can no longer stand to trim safely with a chain saw or string trimmer. I've destroyed a lot of the decorative plants here as well as over 100 of my grape vines simply because I can't maintain them It's rough having to pay up to $200.00 a month to get yard work done that I once did easily, and it still is not as good as I would like it to be. I had to let my garden go because I can't run the tiller or walk in soft plowed dirt, not to mention picking the veggies. The last time I tried I had to crawl to pick my beans. When I did get them I saw it was too dangerous for me to try to can them. Moving the pressure cooker and hot jars was too risky. I did a few, but gave away over 100 quarts. I tried to dig a few holes with a shovel to plant tomatoes, but could not. Another major stress reliever is a thing of the past. Also little upkeep like painting and re-roofing are now things I have to try to afford to hire someone to do. Even had to hire someone to hang ceiling fans. I did manage to replace my water heater without help.other than having someone load and unload them for me. You left out the other things that men talk about and in fact the most common topics, women and sex, in fact the most common " man " topics. I refuse to be demeaning to females as most men are. I cant jog, play tennis, go for walks in the mountains or woods, ride bicycles or dance anymore. therefore my social life is virtually nil. Even a hug from a friend (abet a married one) becomes a thing to treasure. When a male with physical limitations encounters a new female he is often ruled out before the introduction. At the least this leaves a huge mountain to climb with weak legs. My luck has been encountering the users and takers. They do not care about you. They talk good talk and smile------UNTIL................(The last took me for over $20,000. and disappeared while I had gone to the MDA clinic....with a lot of my personal items. Only after did I find that I was not the first, five others had experienced the same) Even establishing a platonic dating relationship is virtually impossible. Taking in groceries and out garbage is hard. One bag at a time seems to take forever. So CMT has taken most of the " man " things from my life. I am thankful that I did learn some of the things often done by the woman of the house. I am a fair cook and know how to do laundry. Sure wish I had learned to sew more. Even minor things like hemming slacks, replacing pockets and zippers or altering waist sizes are very costly. Mopping is sure a job from a chair and some 2500 sq. ft has to be done. I do manage to survive. Psychology has shown that the female can adapt to a handicapping condition (or even retirement) better than a male. Their strengths allow them to cope better, even though they have their own problems. Most males are taught from birth to be the breadwinner, and have a " macho " image. Have you ever thought that the only place it is generally acceptable for two men to hug is on the athletic field?? Both males and females carry inside of them a part of the opposite sex. In today's world the female is learning to identify with the male part of themselves. They excel in things that once were considered strictly " male " . sadly to say males are far behind. Many never learn to accept a feminine part of their personality. Tenderness and a life void of the aforementioned things are often viewed on as " un-manly. " Even retirement usually strikes a blow. Thankfully, I was reared that no part of life was strictly " male " or " female " . Each sex did some of it all. The division of labor was minimal. If it had not been, my life would be much harder today. So, what has CMT done for me? My muscles are weak, my main stress relief's are now impossible; BUT, it has made me a stronger person. I cope daily with things many could not. I have learned to slow down and smell the beauty of the rose. A sunset can be a peak experience. I have learned to really value the platonic friendship of true friends, male or female. I am learning to enjoy and take pride in many things that were once considered primarily for females. While my body may be a slave of CMT, my heart and spirit do not have to be. (Not to mention that I find lost money on the ground others overlook, because I am looking at the ground each step---.LOL). No longer is my goal to win at athletics or other " masculine " accomplishments, they are less important. My goal is trying to learn to survive and find happiness even with my physical limitations. I look for true inner contentment, the laughter and smiles in life. In doing so I am climbing the highest mountain a man can climb, and I WILL meet the challenge. I may be physically behind and in the last quarter of my life, but the game is not over!! I am just learning the new rules. So now you have it from a man. I am open to comments from you, other males, or females. There is still a lot I can learn. New Here... > Hi Group > > I'm new to the list and wanted to introduce myself....I'm ...55 yo retired medical professional (on disability).....have had CMT since approx the age of 8 or 9......am presently single and living in Wisconsin...moved here from Tennessee 3 months ago...still trying to adjust. > > I was morbidly obese and on the verge of not caring for myself till Nov. 15 1999..when I had gastric By pass surgery......since that time I have lost 108 lbs and am doing better than I have in years. > > I have no family except for 2 brothers with whom I'm not close....I'm looking forward to learning and sharing on the list......soooooo......HI YA'll !!!!!!!!.....I'm > > Just > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2000 Report Share Posted May 26, 2000 Hi , I am Lamar, a 52 y/0 single male with CMT who lives in S. GA. I am a retired RN on disability after 30 years in mental health. I am overweight (300 at 6-2). Bypasses scare me, it seems a lot to go through for a few years weight loss, and I have yet to see someone that did not regain their weight. At any rate I wish you luck and welcome you. Sounds like we have a lot in common. You did not share what your medical status was, but we can always use those with medical backgrounds. I will say that my CMT has a much greater effect on my social life than my weight. I am attaching a portion of a post I made on another list that will show how it effects me and what I am doing to cope. It was in response to a request for more " male " things on the list. For some on both lists, it is a repeat, but others may not have seen it: Sports: I like to play cards if I have someone to play with, also Backgammon on the computer. baseball, basketball, soccer, football are things I once liked but can no longer participate in due to CMT. Going to games is out of the question as parking miles away and climbing bleachers is a thing of the past. Sure there is TV, but watching a game on TV alone is not much fun and tends to further isolate me. I wonder if the millions of dollars spent on salaries for players were used for the good of humanity (like CMT research, etc.) what the results would be. ly I don't think any player is worth more per minute than the average income of the fan's per year. Fishing: One thing I love, and that was once a stress reliever. Then along came CMT. No longer can I go up and down banks or climb fences to go fishing. I can't stand and cast a rod or bait a hook. I can't carry my tackle and a chair. Walking in a rolling boat is out of the question and getting one in and out of the water is certainly a thing of the past. I've heard that some places have areas to fish that are assessable to handicapped but the only one around here leaves you to fish in about 4 inches of water. I fell three times the last time I really tried to go fishing and then I realized it was likely my last. Cars: Gosh they cost!!! Sure wish I could still do the service on mine like changing oil, plugs, belts, hoses, etc. I have 4 vehicles and the air conditioning is out on all of them. (two will soon be classified as antiques and perhaps then I will be able to get their true value out of them.) Doing repairs like that is now impossible for me and even finding someone to help me take one to the shop for repair is hard, not to mention the astronomical cost. I hate having to have mine detailed to clean and wax it. Frightens me when I try to brake and miss the pedal, I know hand controls will soon be required. You did not mention a garden or yard work, but they are limited. I do manage to mow some on a rider but can no longer stand to trim safely with a chain saw or string trimmer. I've destroyed a lot of the decorative plants here as well as over 100 of my grape vines simply because I can't maintain them It's rough having to pay up to $200.00 a month to get yard work done that I once did easily, and it still is not as good as I would like it to be. I had to let my garden go because I can't run the tiller or walk in soft plowed dirt, not to mention picking the veggies. The last time I tried I had to crawl to pick my beans. When I did get them I saw it was too dangerous for me to try to can them. Moving the pressure cooker and hot jars was too risky. I did a few, but gave away over 100 quarts. I tried to dig a few holes with a shovel to plant tomatoes, but could not. Another major stress reliever is a thing of the past. Also little upkeep like painting and re-roofing are now things I have to try to afford to hire someone to do. Even had to hire someone to hang ceiling fans. I did manage to replace my water heater without help.other than having someone load and unload them for me. You left out the other things that men talk about and in fact the most common topics, women and sex, in fact the most common " man " topics. I refuse to be demeaning to females as most men are. I cant jog, play tennis, go for walks in the mountains or woods, ride bicycles or dance anymore. therefore my social life is virtually nil. Even a hug from a friend (abet a married one) becomes a thing to treasure. When a male with physical limitations encounters a new female he is often ruled out before the introduction. At the least this leaves a huge mountain to climb with weak legs. My luck has been encountering the users and takers. They do not care about you. They talk good talk and smile------UNTIL................(The last took me for over $20,000. and disappeared while I had gone to the MDA clinic....with a lot of my personal items. Only after did I find that I was not the first, five others had experienced the same) Even establishing a platonic dating relationship is virtually impossible. Taking in groceries and out garbage is hard. One bag at a time seems to take forever. So CMT has taken most of the " man " things from my life. I am thankful that I did learn some of the things often done by the woman of the house. I am a fair cook and know how to do laundry. Sure wish I had learned to sew more. Even minor things like hemming slacks, replacing pockets and zippers or altering waist sizes are very costly. Mopping is sure a job from a chair and some 2500 sq. ft has to be done. I do manage to survive. Psychology has shown that the female can adapt to a handicapping condition (or even retirement) better than a male. Their strengths allow them to cope better, even though they have their own problems. Most males are taught from birth to be the breadwinner, and have a " macho " image. Have you ever thought that the only place it is generally acceptable for two men to hug is on the athletic field?? Both males and females carry inside of them a part of the opposite sex. In today's world the female is learning to identify with the male part of themselves. They excel in things that once were considered strictly " male " . sadly to say males are far behind. Many never learn to accept a feminine part of their personality. Tenderness and a life void of the aforementioned things are often viewed on as " un-manly. " Even retirement usually strikes a blow. Thankfully, I was reared that no part of life was strictly " male " or " female " . Each sex did some of it all. The division of labor was minimal. If it had not been, my life would be much harder today. So, what has CMT done for me? My muscles are weak, my main stress relief's are now impossible; BUT, it has made me a stronger person. I cope daily with things many could not. I have learned to slow down and smell the beauty of the rose. A sunset can be a peak experience. I have learned to really value the platonic friendship of true friends, male or female. I am learning to enjoy and take pride in many things that were once considered primarily for females. While my body may be a slave of CMT, my heart and spirit do not have to be. (Not to mention that I find lost money on the ground others overlook, because I am looking at the ground each step---.LOL). No longer is my goal to win at athletics or other " masculine " accomplishments, they are less important. My goal is trying to learn to survive and find happiness even with my physical limitations. I look for true inner contentment, the laughter and smiles in life. In doing so I am climbing the highest mountain a man can climb, and I WILL meet the challenge. I may be physically behind and in the last quarter of my life, but the game is not over!! I am just learning the new rules. So now you have it from a man. I am open to comments from you, other males, or females. There is still a lot I can learn. New Here... > Hi Group > > I'm new to the list and wanted to introduce myself....I'm ...55 yo retired medical professional (on disability).....have had CMT since approx the age of 8 or 9......am presently single and living in Wisconsin...moved here from Tennessee 3 months ago...still trying to adjust. > > I was morbidly obese and on the verge of not caring for myself till Nov. 15 1999..when I had gastric By pass surgery......since that time I have lost 108 lbs and am doing better than I have in years. > > I have no family except for 2 brothers with whom I'm not close....I'm looking forward to learning and sharing on the list......soooooo......HI YA'll !!!!!!!!.....I'm > > Just > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2000 Report Share Posted May 26, 2000 Hi, : Please email me direct at donnabrooks@.... I, too, am morbidly obese. In February I had a total hysterecomy. It has been 3 mos. now and after my check up I'm cancer free. I have to have 4 mos. check ups until it's been 5 yrs. My biggest problem is my weight. I'm really interested in the surgery you had performed. I have not snapped back from the hysterectomy yet and my Neuro told me it might take a year to get over the fatigue problem. Since I'm in a scooter most of the time my figure has taken on a different shape - mainly a belly which I really didn't have before and since the other surgery, well, you get the picture. My doctor told me he was against the surgery because of infection and they had not perfected it yet. Have you heard of banding or balloon inside your stomach? Donna New Here... >Hi Group > >I'm new to the list and wanted to introduce myself....I'm ...55 yo retired medical professional (on disability).....have had CMT since approx the age of 8 or 9......am presently single and living in Wisconsin...moved here from Tennessee 3 months ago...still trying to adjust. > >I was morbidly obese and on the verge of not caring for myself till Nov. 15 1999..when I had gastric By pass surgery......since that time I have lost 108 lbs and am doing better than I have in years. > >I have no family except for 2 brothers with whom I'm not close....I'm looking forward to learning and sharing on the list......soooooo......HI YA'll !!!!!!!!.....I'm > >Just > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2000 Report Share Posted May 26, 2000 Hi, : Please email me direct at donnabrooks@.... I, too, am morbidly obese. In February I had a total hysterecomy. It has been 3 mos. now and after my check up I'm cancer free. I have to have 4 mos. check ups until it's been 5 yrs. My biggest problem is my weight. I'm really interested in the surgery you had performed. I have not snapped back from the hysterectomy yet and my Neuro told me it might take a year to get over the fatigue problem. Since I'm in a scooter most of the time my figure has taken on a different shape - mainly a belly which I really didn't have before and since the other surgery, well, you get the picture. My doctor told me he was against the surgery because of infection and they had not perfected it yet. Have you heard of banding or balloon inside your stomach? Donna New Here... >Hi Group > >I'm new to the list and wanted to introduce myself....I'm ...55 yo retired medical professional (on disability).....have had CMT since approx the age of 8 or 9......am presently single and living in Wisconsin...moved here from Tennessee 3 months ago...still trying to adjust. > >I was morbidly obese and on the verge of not caring for myself till Nov. 15 1999..when I had gastric By pass surgery......since that time I have lost 108 lbs and am doing better than I have in years. > >I have no family except for 2 brothers with whom I'm not close....I'm looking forward to learning and sharing on the list......soooooo......HI YA'll !!!!!!!!.....I'm > >Just > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2000 Report Share Posted May 26, 2000 Hi, : Please email me direct at donnabrooks@.... I, too, am morbidly obese. In February I had a total hysterecomy. It has been 3 mos. now and after my check up I'm cancer free. I have to have 4 mos. check ups until it's been 5 yrs. My biggest problem is my weight. I'm really interested in the surgery you had performed. I have not snapped back from the hysterectomy yet and my Neuro told me it might take a year to get over the fatigue problem. Since I'm in a scooter most of the time my figure has taken on a different shape - mainly a belly which I really didn't have before and since the other surgery, well, you get the picture. My doctor told me he was against the surgery because of infection and they had not perfected it yet. Have you heard of banding or balloon inside your stomach? Donna New Here... >Hi Group > >I'm new to the list and wanted to introduce myself....I'm ...55 yo retired medical professional (on disability).....have had CMT since approx the age of 8 or 9......am presently single and living in Wisconsin...moved here from Tennessee 3 months ago...still trying to adjust. > >I was morbidly obese and on the verge of not caring for myself till Nov. 15 1999..when I had gastric By pass surgery......since that time I have lost 108 lbs and am doing better than I have in years. > >I have no family except for 2 brothers with whom I'm not close....I'm looking forward to learning and sharing on the list......soooooo......HI YA'll !!!!!!!!.....I'm > >Just > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2000 Report Share Posted May 26, 2000 , Welcome and congrats on that great weight loss, no small feat when your exercise potential is greatly compromised by CMT. I have a daughter 13, who has CMT, so I joined the the group to learn stuff on her behalf. Welcome and you will learn lots through this group! a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2000 Report Share Posted May 27, 2000 Hi Group I wanted to thank all of ya for making me feel so very welcome......and to Lamar....thank you so much for your long sweet letter.....it was so informative and a great relief to know that I'm not the only one giving up things, losing in relationships and just generally having a tough time of it. I have become so totally withdrawn, afraid to trust anyone it really bothers me.....we people in this CMT world are the only one's that can relate to each other one on one as to how the world can really be. I am a lot more fortunate than a lot of others with CMT...I can walk short distances and able to stand with only the assistance of Bi lat AFO's....I do have a scooter for when I have longer distances and shopping and such...its a real plus in my life. I forgot to mention I am retired chief tech in Radiation Oncology from Vanderbilt University Hosp in Nashville......before that I did everything in the world .from Truck driver...cop.....fireman.......LOTS of things.......I have also missed some very good jobs because of my CMT......and a 4f classification from the military. Again I want to thank everyone for the warm welcome and making me feel so much like I'm among friends.......if I can be of help or assistance to anyone please don't hesitate to ask.....or if you want to know anything please ask...my life is an open book... Sorry about the rattling on and the poor typing....please forgive me . Happy to be here Just Re: New Here... > Hi Ya , > Welcome. This is a great list mail. I've learned so much and it's a wonderful > support group. > In Indy > > ------------------------------------------------------------------------ > Savings + service + convenience = beMANY! > http://click.egroups.com/1/4116/10/_/616793/_/959375347/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
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