new member questions

[Guest guest]

Hello there.  I'm completely new to RLS and haven't been officially

diagnosed.  I'll give you a brief history and then I have a couple of

questions if any of you wouldn't mind answering them for me.

 

I'm 25, married, a teacher and live in Arkansas.

 

Three years ago I was diagnosed with endometriosis.  I have had 2

laparoscopies to diagnosis and treat.  I have been through a whirlwind of

hormonal treatments.  The one which seemed to have sent me into a tailspin

was depo provera injections.  Since the injections (monthly) which I

discontinued after 8 months (last spring) I have had migraines and numerous

side effects which continued even after the injections had been over for

more than 9 months.  Migraines were the most prevalent.  Also since the

injections initially began, I started having these creepy crawly restless

feelings in my legs.  I first noticed it during a 3 hour car ride and all of

a sudden my left leg started jumping....stomping.  There was nothing I could

do to stop it.  I had to just let it exhaust itself.  I was so tired.  After

that episode, it occurred more frequently, at night while watching TV (from

7-9 or so in the evening) and then at night in bed sometimes while trying to

go to sleep or waking me up.  It seems like in looking back that I had the

trouble shortly after stoppiing taking St 's Wort but I wasn't sure.  I

seemed to have relief after starting it up again.  I have a lot of trouble

(I think) if I take Soma (a mild muscle relaxer).  I think I have heard

connections between these two medications and symptoms.  Lately, I have been

having the twitchy, creepy, tired, crawly, feels like my legs are going to

break or jump off my body, kind of sensations all the time...all day even

when I'm active   WHAT DO I DO????  This is making me crazy...it just wont

stop.  no one gets it...how do i make it stop?  After all my run around with

drs with endo, I dont want to start this dr thing over.  I just started

feeling better!  5 months ago, I quit all medications...birth control and St

's included and the endo pain stopped.  Now this.  Could there be a

connection??  I have had allergies lately and been taking Sudafed on a

regular basis )for about 2 weeks) but quit taking it over a week ago.  For a

week now, I have had this....crap (what do you call it???) non stop.  I want

to beat my legs  or squirm (cant sit still for more than 5 minutes) or cry

or scream...jump up and down...anything to make it stop.  I can't relax.

 

Okay...I've gone on long enough.  I hope I haven't overwhelmed you.  I just

need to know if this sounds like RLS.  Should I pursue it medically?  I'd

rather not get started on meds....maybe st johns if you think it might help

but not prescription if possible.  Am I too young for this?  Any suggestions

would be appreciated.  I feel like I'm losing my mind...

 

Thanks!