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Re: Danieta's story

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<< So I quit. I decided that I wanted to take what energy I had during the

day and put toward raising my family. We don't have all the extra money and

may not be able to do everything we want to but when we have time together I

am not so worn out and sore that I can't enjoy it with everyone else. >>

You are a smart lady, choosing to do what's best for you and for your family.

That is far more important than having or doing " things. " Your children are

learning an important lesson, too. Your CMT may progress much more slowly now

that you aren't stressing yourself so much, too. It can make a big

difference.

<< My aunt who really needs AFOs will not get them because she doesn't want

look funny. What I told her was that I would rather have people stare than

not be able to get around. If it comes to going to a wheel chair or scooter I

really don't think that will bother me either. >>

This is an important concept also. AFOs may not only add safety, but also

often allow a person to walk more naturally - attracting far less attention

than the classic steppage gait or other forms of CMT walk attract. Or

falling!!!! Whatever it takes to keep getting around safely should be the

priority.

Having a good support system truly does help. If a person doesn't have one at

home, or needs a bit more, we are here!

It was good to hear from you again.

Kat in Seattle

>^,^<

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