Guest guest Posted January 13, 1999 Report Share Posted January 13, 1999 Colds, flu, and pain do not seem to have any effect on my rls. I have noticed, strangely enough, that when I have a chest cold I don't have problems with asthma. I hack and cough, but I don't wheeze. ___________________________________________________________________ You don't need to buy Internet access to use free Internet e-mail. Get completely free e-mail from Juno at http://www.juno.com/getjuno.html or call Juno at (800) 654-JUNO [654-5866] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 1999 Report Share Posted January 13, 1999 Colds, flu, and pain do not seem to have any effect on my rls. I have noticed, strangely enough, that when I have a chest cold I don't have problems with asthma. I hack and cough, but I don't wheeze. ___________________________________________________________________ You don't need to buy Internet access to use free Internet e-mail. Get completely free e-mail from Juno at http://www.juno.com/getjuno.html or call Juno at (800) 654-JUNO [654-5866] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 1999 Report Share Posted January 13, 1999 Colds, flu, and pain do not seem to have any effect on my rls. I have noticed, strangely enough, that when I have a chest cold I don't have problems with asthma. I hack and cough, but I don't wheeze. ___________________________________________________________________ You don't need to buy Internet access to use free Internet e-mail. Get completely free e-mail from Juno at http://www.juno.com/getjuno.html or call Juno at (800) 654-JUNO [654-5866] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 1999 Report Share Posted January 13, 1999 Colds, flu, and pain do not seem to have any effect on my rls. I have noticed, strangely enough, that when I have a chest cold I don't have problems with asthma. I hack and cough, but I don't wheeze. ___________________________________________________________________ You don't need to buy Internet access to use free Internet e-mail. Get completely free e-mail from Juno at http://www.juno.com/getjuno.html or call Juno at (800) 654-JUNO [654-5866] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 1999 Report Share Posted January 13, 1999 Colds, flu, and pain do not seem to have any effect on my rls. I have noticed, strangely enough, that when I have a chest cold I don't have problems with asthma. I hack and cough, but I don't wheeze. ___________________________________________________________________ You don't need to buy Internet access to use free Internet e-mail. Get completely free e-mail from Juno at http://www.juno.com/getjuno.html or call Juno at (800) 654-JUNO [654-5866] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 1999 Report Share Posted January 13, 1999 Colds, flu, and pain do not seem to have any effect on my rls. I have noticed, strangely enough, that when I have a chest cold I don't have problems with asthma. I hack and cough, but I don't wheeze. ___________________________________________________________________ You don't need to buy Internet access to use free Internet e-mail. Get completely free e-mail from Juno at http://www.juno.com/getjuno.html or call Juno at (800) 654-JUNO [654-5866] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 1999 Report Share Posted January 15, 1999 its facinating to me how different we humans all are at times...........i'm finally feeling better after taking plenty of drugs for pneumonia and for the first time in a week my rls is back AND when i get a chest cold my asthma is always worse......go figure. JACK its finally stopped snowing after almost 3 feet of fluffy stuff in western nys At 09:24 AM 1/13/99 -0600, you wrote: >From: parizade@... (Kate R Fitzgerald) > >Colds, flu, and pain do not seem to have any effect on my rls. I have >noticed, strangely enough, that when I have a chest cold I don't have >problems with asthma. I hack and cough, but I don't wheeze. >___________________________________________________________________ >You don't need to buy Internet access to use free Internet e-mail. >Get completely free e-mail from Juno at http://www.juno.com/getjuno.html >or call Juno at (800) 654-JUNO [654-5866] > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 1999 Report Share Posted January 15, 1999 its facinating to me how different we humans all are at times...........i'm finally feeling better after taking plenty of drugs for pneumonia and for the first time in a week my rls is back AND when i get a chest cold my asthma is always worse......go figure. JACK its finally stopped snowing after almost 3 feet of fluffy stuff in western nys At 09:24 AM 1/13/99 -0600, you wrote: >From: parizade@... (Kate R Fitzgerald) > >Colds, flu, and pain do not seem to have any effect on my rls. I have >noticed, strangely enough, that when I have a chest cold I don't have >problems with asthma. I hack and cough, but I don't wheeze. >___________________________________________________________________ >You don't need to buy Internet access to use free Internet e-mail. >Get completely free e-mail from Juno at http://www.juno.com/getjuno.html >or call Juno at (800) 654-JUNO [654-5866] > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 1999 Report Share Posted January 15, 1999 its facinating to me how different we humans all are at times...........i'm finally feeling better after taking plenty of drugs for pneumonia and for the first time in a week my rls is back AND when i get a chest cold my asthma is always worse......go figure. JACK its finally stopped snowing after almost 3 feet of fluffy stuff in western nys At 09:24 AM 1/13/99 -0600, you wrote: >From: parizade@... (Kate R Fitzgerald) > >Colds, flu, and pain do not seem to have any effect on my rls. I have >noticed, strangely enough, that when I have a chest cold I don't have >problems with asthma. I hack and cough, but I don't wheeze. >___________________________________________________________________ >You don't need to buy Internet access to use free Internet e-mail. >Get completely free e-mail from Juno at http://www.juno.com/getjuno.html >or call Juno at (800) 654-JUNO [654-5866] > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 1999 Report Share Posted February 17, 1999 Ninette, My knee pain is on and in the knees, feels like the bones are hurting rather than muscle. The upper shin also hurts. If I let it go on without pain relievers, then my whole leg will hurt, muscle and all. Sometimes it is sharp pain, most times it aches. I don't get the thigh pain. I thank God because it sounds miserable. Last night I woke up with RLS. I had to move the covers off and tossed and turned, over and over. When this happens, and I don't move, my knee or leg will jerk and it feels like an electric current going through my legs, knees, and ankles, and sometimes my body. I have come close to nausea at times. Really, nausea doesn't describe the feeling - just weird, funny. Something I don't like. Last night, I finally got mad at it (something I remember from Jill's web page) - I got up and went to the bathroom, came back to bed determined it was not going to get me - it must have worked - I ended up asleep at some point. Well, I guess it was my turn to ramble. Will talk to ya'll later. Lynn Ga. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 I've read about all sorts of nerve pain from CMT and other peripheral neuropathies, and I experience many of them every day. Some descriptive phrases of how the nerve pain may feel: burning freezing wrenching spasms cramping muscles zapping electric jolts firecrackers under the skin bee stings shooting, stabbing pains being electrocuted from inside hot electric wires stinging Neurontin or other meds may reduce the various pains (or not), but most CMTers who have pain learn they must live with it at some level. It won't normally be eliminated, but may become tolerable. We are all different in how much we may be helped as well as by how much we can or will tolerate. The scale doctors use for evaluating pain is helpful for an individual, but it's still subjective. My 10 (worst pain) will probably not be the same as your 10. Pain is very subjective. What doesn't seem too bad to me may seem to be almost impossible to bear for someone else. Or vice versa. Speaking subjectively, women who have given birth are more pain tolerant than people who haven't. The pain may be comparable, but moms are more apt to know that they can tolerate more (usually! - in life I have learned absolutes are rare). Some CMTers have no significant pain, or only have it occasionally. Even that is quite different from the CMTers who have it 24 hours a day, every day. We are all so different. Those are my thoughts on the matter (subjective, I know) Kat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 I've read about all sorts of nerve pain from CMT and other peripheral neuropathies, and I experience many of them every day. Some descriptive phrases of how the nerve pain may feel: burning freezing wrenching spasms cramping muscles zapping electric jolts firecrackers under the skin bee stings shooting, stabbing pains being electrocuted from inside hot electric wires stinging Neurontin or other meds may reduce the various pains (or not), but most CMTers who have pain learn they must live with it at some level. It won't normally be eliminated, but may become tolerable. We are all different in how much we may be helped as well as by how much we can or will tolerate. The scale doctors use for evaluating pain is helpful for an individual, but it's still subjective. My 10 (worst pain) will probably not be the same as your 10. Pain is very subjective. What doesn't seem too bad to me may seem to be almost impossible to bear for someone else. Or vice versa. Speaking subjectively, women who have given birth are more pain tolerant than people who haven't. The pain may be comparable, but moms are more apt to know that they can tolerate more (usually! - in life I have learned absolutes are rare). Some CMTers have no significant pain, or only have it occasionally. Even that is quite different from the CMTers who have it 24 hours a day, every day. We are all so different. Those are my thoughts on the matter (subjective, I know) Kat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 Gretchen -- FYI -- I did some reading on CMT and blood sugar levels. Diabetics deal with peripheral neuropathy, but the cause is different from CMT. However, some research has been done that indicates people with CMT may also be intolerant to high sugar intake. I don't have diabetes, but when I've been over-indulging (the holidays!!) it seems that the burning pain in my feet increases. While my experience isn't as a result of " scientific study " , I know that my foot pain is less when I eat a well-balanced diet with minimal refined sugar. nne pain > > >Hi Becky and Dimitrios, I also wonder about pain. Anyone who doesn't >have CMT can't possibly know it DOES mean pain! (probably most of the >researchers/doctors) etc. My pain has gotten better, tho, but standing >on my feet (in one place) for any length of time will bring it back >quickly, and then the pain is in my feet and back. If I keep moving, I >mean, moving my feet, the pain doesn't come back. The Neurontin works >well for me, also helps with sleep. I used to take Elavil (also known as >amitriptyline) which helped also. My feet still can do that " burn " at >night, for no reason, but if I lie on the floor, with knees bent on the >couch, then cross my feet, so feet are higher that knees and hips, this >burning goes away. In the summer I ice my feet. >Gretchen > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 Gretchen -- FYI -- I did some reading on CMT and blood sugar levels. Diabetics deal with peripheral neuropathy, but the cause is different from CMT. However, some research has been done that indicates people with CMT may also be intolerant to high sugar intake. I don't have diabetes, but when I've been over-indulging (the holidays!!) it seems that the burning pain in my feet increases. While my experience isn't as a result of " scientific study " , I know that my foot pain is less when I eat a well-balanced diet with minimal refined sugar. nne pain > > >Hi Becky and Dimitrios, I also wonder about pain. Anyone who doesn't >have CMT can't possibly know it DOES mean pain! (probably most of the >researchers/doctors) etc. My pain has gotten better, tho, but standing >on my feet (in one place) for any length of time will bring it back >quickly, and then the pain is in my feet and back. If I keep moving, I >mean, moving my feet, the pain doesn't come back. The Neurontin works >well for me, also helps with sleep. I used to take Elavil (also known as >amitriptyline) which helped also. My feet still can do that " burn " at >night, for no reason, but if I lie on the floor, with knees bent on the >couch, then cross my feet, so feet are higher that knees and hips, this >burning goes away. In the summer I ice my feet. >Gretchen > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2000 Report Share Posted January 28, 2000 Hi all, Ruth warren here, I am fascinated hearing about the hot, burning pain that some of you experience. My 9-yr-old Katey complains constantly of being hot or " burning. " This is not a kind of pain that I experience with my CMT so I am not always very sympathetic. Now I have a better reference to understand what she may be trying to tell me. Thank you! Ruth > >Reply-To: CMTUS (AT) onelist (DOT) com >To: CMTUS CMTUS (AT) onelist (DOT) com> >Subject: pain >Date: Thu, 27 Jan 2000 10:49:18 -0800 > > > >Hi Becky and Dimitrios, I also wonder about pain. Anyone who doesn't >have CMT can't possibly know it DOES mean pain! (probably most of the >researchers/doctors) etc. My pain has gotten better, tho, but standing >on my feet (in one place) for any length of time will bring it back >quickly, and then the pain is in my feet and back. If I keep moving, I >mean, moving my feet, the pain doesn't come back. The Neurontin works >well for me, also helps with sleep. I used to take Elavil (also known as >amitriptyline) which helped also. My feet still can do that " burn " at >night, for no reason, but if I lie on the floor, with knees bent on the >couch, then cross my feet, so feet are higher that knees and hips, this >burning goes away. In the summer I ice my feet. >Gretchen > ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2000 Report Share Posted January 28, 2000 Hi all, Ruth warren here, I am fascinated hearing about the hot, burning pain that some of you experience. My 9-yr-old Katey complains constantly of being hot or " burning. " This is not a kind of pain that I experience with my CMT so I am not always very sympathetic. Now I have a better reference to understand what she may be trying to tell me. Thank you! Ruth > >Reply-To: CMTUS (AT) onelist (DOT) com >To: CMTUS CMTUS (AT) onelist (DOT) com> >Subject: pain >Date: Thu, 27 Jan 2000 10:49:18 -0800 > > > >Hi Becky and Dimitrios, I also wonder about pain. Anyone who doesn't >have CMT can't possibly know it DOES mean pain! (probably most of the >researchers/doctors) etc. My pain has gotten better, tho, but standing >on my feet (in one place) for any length of time will bring it back >quickly, and then the pain is in my feet and back. If I keep moving, I >mean, moving my feet, the pain doesn't come back. The Neurontin works >well for me, also helps with sleep. I used to take Elavil (also known as >amitriptyline) which helped also. My feet still can do that " burn " at >night, for no reason, but if I lie on the floor, with knees bent on the >couch, then cross my feet, so feet are higher that knees and hips, this >burning goes away. In the summer I ice my feet. >Gretchen > ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2000 Report Share Posted January 28, 2000 Hi all, Ruth warren here, I am fascinated hearing about the hot, burning pain that some of you experience. My 9-yr-old Katey complains constantly of being hot or " burning. " This is not a kind of pain that I experience with my CMT so I am not always very sympathetic. Now I have a better reference to understand what she may be trying to tell me. Thank you! Ruth > >Reply-To: CMTUS (AT) onelist (DOT) com >To: CMTUS CMTUS (AT) onelist (DOT) com> >Subject: pain >Date: Thu, 27 Jan 2000 10:49:18 -0800 > > > >Hi Becky and Dimitrios, I also wonder about pain. Anyone who doesn't >have CMT can't possibly know it DOES mean pain! (probably most of the >researchers/doctors) etc. My pain has gotten better, tho, but standing >on my feet (in one place) for any length of time will bring it back >quickly, and then the pain is in my feet and back. If I keep moving, I >mean, moving my feet, the pain doesn't come back. The Neurontin works >well for me, also helps with sleep. I used to take Elavil (also known as >amitriptyline) which helped also. My feet still can do that " burn " at >night, for no reason, but if I lie on the floor, with knees bent on the >couch, then cross my feet, so feet are higher that knees and hips, this >burning goes away. In the summer I ice my feet. >Gretchen > ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2000 Report Share Posted January 28, 2000 Hello, I find that when I eat something extra salty like pretzels or popcorn I have more pain in my hands and feet than usual. Also, if I walk a few minutes on my treadmill before I go to sleep my feet and legs feel better at night. My neighbor told me to put a drawer handle, the c-shaped kind, on the wood around my front door, in a vertical position. It makes an excellent handle to hold on to when I go up the entry step to my house. My husband also put one on piano bench type hinges so it can swing out of the way and not get in the way of closing the door. Hope this is helpful. Joan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2000 Report Share Posted January 28, 2000 Hello, I find that when I eat something extra salty like pretzels or popcorn I have more pain in my hands and feet than usual. Also, if I walk a few minutes on my treadmill before I go to sleep my feet and legs feel better at night. My neighbor told me to put a drawer handle, the c-shaped kind, on the wood around my front door, in a vertical position. It makes an excellent handle to hold on to when I go up the entry step to my house. My husband also put one on piano bench type hinges so it can swing out of the way and not get in the way of closing the door. Hope this is helpful. Joan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2000 Report Share Posted January 28, 2000 Hello, I find that when I eat something extra salty like pretzels or popcorn I have more pain in my hands and feet than usual. Also, if I walk a few minutes on my treadmill before I go to sleep my feet and legs feel better at night. My neighbor told me to put a drawer handle, the c-shaped kind, on the wood around my front door, in a vertical position. It makes an excellent handle to hold on to when I go up the entry step to my house. My husband also put one on piano bench type hinges so it can swing out of the way and not get in the way of closing the door. Hope this is helpful. Joan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2000 Report Share Posted February 19, 2000 Hi Alisha, I also think that the pain is not in your head it is real. Since 1997 I also have pain. It started with a lumbago and became fibromyalgia. The problem with pain is that the body is able not to notice the pain anymore after a time, it hurts but on a lower level. In 1997 I was at home for three months, in 1998 I couldn' t go to work for 4 months (and therefor I lost my job). In my case I also had " big " depressions and my neurologist tried to lower the pain by giving me fluctin (prozac). It helped for the depression but not for the pain, but I found out that the pain is a sign of too much stress for my body. Reducing the stress meant reducing the pain. At the moment I am lucky: After the surgery my nerves have to work so much in coping with my operated feet (the surgery-pain, the missing balance), I don't feel pain in the rest of my body (not true: sometimes I notice pain in my back but it is not so strong). But this will change as soon as my feet belong to my body again. What the doctor told you is probably not true. Always remember: He is a doctor but does not have to live with cmt and it is possible that his knowledge of cmt is " old-fashioned " . Perhaps, as Gretchen said, you should look for a new doctor. Bye, Alisha Peckham schrieb: > > > alisha here, > i am able to talk to my friends and psychologist. my GP thinks that it is in > my head. i just have been about to get on the computer today b/c the pain is > less in my hands. i haven't been at school in about 10 days and i am being > asked to go back but i don't want to. i have been using via voice and its > hard to use it since i haven't used it in a while. > > " I am not crazy, I am just a teenager! " > http://home.talkcity.com/OceanBlvd/cmtx/index.html > ICQ # 47695812 > for information on CMT go here > www.cmtint.org/ > are u a kid or teenager with CMT??? > wanna talk to others with CMT???? > join here if u want to > CMTchildren-subscribe (AT) onelist (DOT) com > > ______________________________________________________ > Get Your Private, Free Email at http://www.hotmail.com > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2000 Report Share Posted February 19, 2000 Hi Alisha, I also think that the pain is not in your head it is real. Since 1997 I also have pain. It started with a lumbago and became fibromyalgia. The problem with pain is that the body is able not to notice the pain anymore after a time, it hurts but on a lower level. In 1997 I was at home for three months, in 1998 I couldn' t go to work for 4 months (and therefor I lost my job). In my case I also had " big " depressions and my neurologist tried to lower the pain by giving me fluctin (prozac). It helped for the depression but not for the pain, but I found out that the pain is a sign of too much stress for my body. Reducing the stress meant reducing the pain. At the moment I am lucky: After the surgery my nerves have to work so much in coping with my operated feet (the surgery-pain, the missing balance), I don't feel pain in the rest of my body (not true: sometimes I notice pain in my back but it is not so strong). But this will change as soon as my feet belong to my body again. What the doctor told you is probably not true. Always remember: He is a doctor but does not have to live with cmt and it is possible that his knowledge of cmt is " old-fashioned " . Perhaps, as Gretchen said, you should look for a new doctor. Bye, Alisha Peckham schrieb: > > > alisha here, > i am able to talk to my friends and psychologist. my GP thinks that it is in > my head. i just have been about to get on the computer today b/c the pain is > less in my hands. i haven't been at school in about 10 days and i am being > asked to go back but i don't want to. i have been using via voice and its > hard to use it since i haven't used it in a while. > > " I am not crazy, I am just a teenager! " > http://home.talkcity.com/OceanBlvd/cmtx/index.html > ICQ # 47695812 > for information on CMT go here > www.cmtint.org/ > are u a kid or teenager with CMT??? > wanna talk to others with CMT???? > join here if u want to > CMTchildren-subscribe (AT) onelist (DOT) com > > ______________________________________________________ > Get Your Private, Free Email at http://www.hotmail.com > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2000 Report Share Posted February 29, 2000 -- I had surgery about four months ago and experienced a real problem with balance. It is getting better though and I think the problems came as a result of reorienting my foot to walk on the whole foot in a fairly normal configuration. My body was so trained to compensate for the bad walking that it was taken by surprise and needed time to adjust. Keep up your courage. It sounds like you got a good result from the surgery as to your foot position and the balance should get better over time. nne Re: pain > > >Hi Dimitrios, > >welcome to the list. >The surgery that I had made in january was a achilles-tendon-lenghtening and a transfer of the tibialis-posterior tendon. It >was done because of my pes cavus and it should make me walk better. It is not a pain therapy but it could help to lower the >pain thar exists because of wrong walking. I have a lot of problems with my spine, my hips and my knees (it is often very >painful) and my doctors believe that I have this pain because of wrong walking (I walked on my toes). After the surgery I >should be able to walk in a " normal " way (on my whole foot) and this could/should lower the pain. > >But I have to say that I am very desperate at the moment. Through the surgery I lost my balance and it didn' t come back yet. >So walking is very hard for me and I still use crutches to walk outside. Because of all that I am very depressed at the >moment. I hope this soon will change. > >Best wishes, > > >ÐáðáäïêùóôÜêçò Ðïëýâéïò schrieb: > >> From: =?iso-8859-7?Q?=D0=E1=F0=E1=E4=EF=EA=F9=F3=F4=DC=EA=E7=F2=20=D0=EF=EB=FD=E2= E9=EF=F2?= polyvios@...> >> >> HI SANDRA >> >> I AM DIMITRIOS FROM GREECE( WITH CMT 2). >> MY GREAT PROBLEM IS THE PAIN THAT IS SO AWFUL THAT I COULD WORK. >> WHAT IS THIS << SURGERY>>? IS IT A THERAPY ABOUT THE PAIN? >> >> HAVE A GOOD TIME >> REGARDS >> DIMITRIOS >> > > >------------------------------------------------------------------------ >Get what you deserve with NextCard Visa! Rates as low as 2.9% >Intro or 9.9% Fixed APR, online balance transfers, Rewards Points, >no hidden fees, and much more! Get NextCard today and get the >credit you deserve! Apply now! Get your NextCard Visa at: >http://click.egroups.com/1/913/5/_/616793/_/951825113/ >------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2000 Report Share Posted February 29, 2000 -- I had surgery about four months ago and experienced a real problem with balance. It is getting better though and I think the problems came as a result of reorienting my foot to walk on the whole foot in a fairly normal configuration. My body was so trained to compensate for the bad walking that it was taken by surprise and needed time to adjust. Keep up your courage. It sounds like you got a good result from the surgery as to your foot position and the balance should get better over time. nne Re: pain > > >Hi Dimitrios, > >welcome to the list. >The surgery that I had made in january was a achilles-tendon-lenghtening and a transfer of the tibialis-posterior tendon. It >was done because of my pes cavus and it should make me walk better. It is not a pain therapy but it could help to lower the >pain thar exists because of wrong walking. I have a lot of problems with my spine, my hips and my knees (it is often very >painful) and my doctors believe that I have this pain because of wrong walking (I walked on my toes). After the surgery I >should be able to walk in a " normal " way (on my whole foot) and this could/should lower the pain. > >But I have to say that I am very desperate at the moment. Through the surgery I lost my balance and it didn' t come back yet. >So walking is very hard for me and I still use crutches to walk outside. Because of all that I am very depressed at the >moment. I hope this soon will change. > >Best wishes, > > >ÐáðáäïêùóôÜêçò Ðïëýâéïò schrieb: > >> From: =?iso-8859-7?Q?=D0=E1=F0=E1=E4=EF=EA=F9=F3=F4=DC=EA=E7=F2=20=D0=EF=EB=FD=E2= E9=EF=F2?= polyvios@...> >> >> HI SANDRA >> >> I AM DIMITRIOS FROM GREECE( WITH CMT 2). >> MY GREAT PROBLEM IS THE PAIN THAT IS SO AWFUL THAT I COULD WORK. >> WHAT IS THIS << SURGERY>>? IS IT A THERAPY ABOUT THE PAIN? >> >> HAVE A GOOD TIME >> REGARDS >> DIMITRIOS >> > > >------------------------------------------------------------------------ >Get what you deserve with NextCard Visa! Rates as low as 2.9% >Intro or 9.9% Fixed APR, online balance transfers, Rewards Points, >no hidden fees, and much more! Get NextCard today and get the >credit you deserve! Apply now! Get your NextCard Visa at: >http://click.egroups.com/1/913/5/_/616793/_/951825113/ >------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2000 Report Share Posted February 29, 2000 HI SANDRA ABOUT THE < >. I HANE A FRIEND WHO IS GYMNAST. SOME OF HIS CLIENTS ARE PEOPLE WITH DISABILITIES.SO HE MENTIONED A WOMAN WITH BALANCE PROBLEM AND HE TOLD ME THAT SHE WALK MUCH BETTER AFTER A SPECIAL TRAINNING. CAN YOU ASK SOMEONE ABOUT THAT? I BELIEVE THAT I CAN SEND YOU MORE INFORMATION ABOUT THAT IF YOU ARE INTERESTED. (I DON'T SPEAK ENGLISH VERY WELL, SO I HOPE YOU CAN UNDERSTAND ME) DIMITRIOS Theyskens wrote: > > > Hi Dimitrios, > > welcome to the list. > The surgery that I had made in january was a achilles-tendon-lenghtening and a transfer of the tibialis-posterior tendon. It > was done because of my pes cavus and it should make me walk better. It is not a pain therapy but it could help to lower the > pain thar exists because of wrong walking. I have a lot of problems with my spine, my hips and my knees (it is often very > painful) and my doctors believe that I have this pain because of wrong walking (I walked on my toes). After the surgery I > should be able to walk in a " normal " way (on my whole foot) and this could/should lower the pain. > > But I have to say that I am very desperate at the moment. Through the surgery I lost my balance and it didn' t come back yet. > So walking is very hard for me and I still use crutches to walk outside. Because of all that I am very depressed at the > moment. I hope this soon will change. > > Best wishes, > > > ÐáðáäïêùóôÜêçò Ðïëýâéïò schrieb: > > > From: =?iso-8859-7?Q?=D0=E1=F0=E1=E4=EF=EA=F9=F3=F4=DC=EA=E7=F2=20=D0=EF=EB=FD=E2=E9=E\ F=F2?= polyvios@...> > > > > HI SANDRA > > > > I AM DIMITRIOS FROM GREECE( WITH CMT 2). > > MY GREAT PROBLEM IS THE PAIN THAT IS SO AWFUL THAT I COULD WORK. > > WHAT IS THIS << SURGERY>>? IS IT A THERAPY ABOUT THE PAIN? > > > > HAVE A GOOD TIME > > REGARDS > > DIMITRIOS > > > > ------------------------------------------------------------------------ > Get what you deserve with NextCard Visa! Rates as low as 2.9% > Intro or 9.9% Fixed APR, online balance transfers, Rewards Points, > no hidden fees, and much more! Get NextCard today and get the > credit you deserve! Apply now! Get your NextCard Visa at: > http://click.egroups.com/1/913/5/_/616793/_/951825113/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
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