Guest guest Posted July 16, 2000 Report Share Posted July 16, 2000 Dear Sue, I can trace the CMT in my family, so far, back to the early 1800's, although, of course, they didn't know what it was then. I have traced, by symptoms, as in clawed fingers and malformed feet. If you like some of the stories I was told throughout the years, I would gladly provide what I know. I am now trying to obtain more information about my great grandmothers brothers and sisters and if her mother, or father had CMT. They lived in Sweden, which is where my great gram was born. What a wonderful lady. With her stories and other realitives, I have antidotes, both happy and sad. So, if you would like and more info, please contact me. May kindness and love guide you, Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2000 Report Share Posted July 16, 2000 Many thanks for your support Rick. The story is not by any means set in stone so any ideas etc are more than welcome. At present the granddaughter discovers the disease using modern technology eg the internet etc and then realises that her own children have it - which in itself is a shock but also there is the horror of living with it for years and not knowing etc. Have fun and take care and I'll be in touch Sue XXXX CMT Novel > Please let me know any way I might help you complete your novel, Sue. It's a > wonderful idea and would both help awareness of CMT in the rest of our busy > world, and provide some inspiration and information to children growing up > with the disorder. I have a 9-year-old daughter, Flannery, who has CMT 1A > though nobody else in her family, including her 4-year-old brother have it. > I'm helping Gretchen Glick, the moderator of the CMTUS group, put together a > book on childhood CMT experiences now. I can help with some publishing > funds, editing, layout, whatever. > > Ideas that occur to me - the story needs, obviously, to be compelling in its > plot aside from the CMT aspects. Perhaps the disease threading through the > family tree might be traced by a young person today who contracts CMT, uses > recently discovered genetic information about it to identify the path > through his or her family, then solves some long-standing family mystery by > using what he's found. Just a thought ... > > I'll keep thinking about it. Meanwhile, let me know how I might help. > > --------- Rick Alber, San , CA > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2000 Report Share Posted July 16, 2000 Michele, I would love as much as you can tell me and thank you. As I said earlier it maybe easier to send your stories direct to hordermason@... and thank again Much love Sue XXXX Re: Fw: CMT Novel Dear Sue, I can trace the CMT in my family, so far, back to the early 1800's, although, of course, they didn't know what it was then. I have traced, by symptoms, as in clawed fingers and malformed feet. If you like some of the stories I was told throughout the years, I would gladly provide what I know. I am now trying to obtain more information about my great grandmothers brothers and sisters and if her mother, or father had CMT. They lived in Sweden, which is where my great gram was born. What a wonderful lady. With her stories and other realitives, I have antidotes, both happy and sad. So, if you would like and more info, please contact me. May kindness and love guide you, Michele -------------------------------------------------------------------------------- -------------------------------------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.