Re: Re: Heat~Yuck! But cold is worse - for me...

[Guest guest]

Thanks Becky and Kat: I did not know about the phrenic nerve involvment.

- Marti

[Guest guest]

Re: Heat~Yuck! But cold is worse - for me...

>

>

>

>

>My feet are icy cold even if the air temperature is over 100. I always knew

I

>was weird. Nothing warms my icy feet, so sorry, can't help you there. I

wear

>heavy socks and genuine fleece lined footwear from New Zealand in the

>daytime, and socks at night in a preheated bed. My feet ALWAYS say they are

>painfully frozen.

>

>We are all different!

>

>Kat

>

> Hi Kat, I sit in winter with my heating pad wrapped around my feet. I

keep it by my recliner always ready! LOL, Becky M.

[Guest guest]

In a message dated 7/13/00 7:55:31 PM Pacific Daylight Time,

KathleenLS@... writes:

<<

<< I don't think that CMT relates much except for the swelling and the fact

that the breathing may seem harder for us because we often need to exert

more

energy to get the same effect as others without CMT; that extra energy

required can make the stifling, hard to breathe air, all the worse. >>

On the other hand, if a CMTers phrenic nerve is affected by CMT it does

interfere with breathing, from what I've read. >>

*************************

My dad has CMT and it has affected his breathing. He only has 33% use of his

lungs. The Phrenic Nerves and muscles do not respond properly for him to

breath deeply. He uses a Bi-Pap machine at night to force air into him. And

in the hot summer he has to have a fan sitting beside him aiming directly at

his face to help push the air into his body. The heat makes him so tired

that it is that much harder to breath. Jeanie