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Re: self-diagnosis

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In a message dated 5/27/99 12:43:44 AM !!!First Boot!!!,

susanne2740@... writes:

<< With the information explosion via the

internet, we do not need to be totally dependent on the medical

profession and the sometimes overuse of prescription meds.

>>

IMHO, is seems that most RLS'ers experience inadequate prescription of meds

by their health care providers at best and mis-prescription of meds by many

at worst.

No one should be " totally " dependent on the medical profession.......patients

must be proactive and pursue self-education about their medical problems.

For example, diabetes care & management definitely demands a health-team

effort but guess what, the diabetic patient has to do 98% of the " work " if

you know what I mean. Accepting the fact that probably 60-70% of medical

conditions are stress-related, you hold your state of health in your own

hands.

RAINBOWPED@...

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Accepting the fact that probably 60-70% ofmedical

conditions are stress-related, you hold your state of

health in yourown hands.

RAINBOWPED@...

I have heard 90-100% on this issue, and makes me wonder if

we're barking up the wrong tree. Maybe instead of looking

for the right med, we should be doing something about

coping with stress. Any suggestions? Bio-feedback,

counseling, self-help books? Seriously, I feel like I'm

coping, and my life has no more stress than anyone else's

(and less than many), but if your statistic is correct, I

shouldn't have rls or hypertension.

_________________________________________________________

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When I was diagnosed with RLS, which I had never heard of, I didn't tell the

doctor that I needed to move my legs all the time. For many years I had

thought that I was just a nervous individual. I went to the sleep physician

because I kept going to sleep all the time. Since I don't remember what

questions were asked, I don't know if the doctor had already figured out the

RLS bit, but it is my understanding that he needed the sleep study to

diagnose PLMD.

As far as doing our own research, I wasn't even online at the time I was

diagnosed. I had read a lot in books at the library, but apparently there

was nothing in the files regarding RLS, or else I just overlooked it.

I agree that we need to stay well informed. Recently I read that the patient

has an average time of 28 seconds to tell the doctor why he/she is there, and

I think that is due mostly to the HMO's applying pressure to the doctors to

limit the amount of time they can spend with the patient. In my case it

seems to be particularly true of my PCP. Therefore, the more knowledgeable

we are the more we can help a physician who is not well-versed in RLS.

Also, in my case, I do not have the typical textbook symptoms of RLS, so it

was very necessary that I have a doctor who could diagnose and treat me.

Joyce F.

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When I was diagnosed with RLS, which I had never heard of, I didn't tell the

doctor that I needed to move my legs all the time. For many years I had

thought that I was just a nervous individual. I went to the sleep physician

because I kept going to sleep all the time. Since I don't remember what

questions were asked, I don't know if the doctor had already figured out the

RLS bit, but it is my understanding that he needed the sleep study to

diagnose PLMD.

As far as doing our own research, I wasn't even online at the time I was

diagnosed. I had read a lot in books at the library, but apparently there

was nothing in the files regarding RLS, or else I just overlooked it.

I agree that we need to stay well informed. Recently I read that the patient

has an average time of 28 seconds to tell the doctor why he/she is there, and

I think that is due mostly to the HMO's applying pressure to the doctors to

limit the amount of time they can spend with the patient. In my case it

seems to be particularly true of my PCP. Therefore, the more knowledgeable

we are the more we can help a physician who is not well-versed in RLS.

Also, in my case, I do not have the typical textbook symptoms of RLS, so it

was very necessary that I have a doctor who could diagnose and treat me.

Joyce F.

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When I was diagnosed with RLS, which I had never heard of, I didn't tell the

doctor that I needed to move my legs all the time. For many years I had

thought that I was just a nervous individual. I went to the sleep physician

because I kept going to sleep all the time. Since I don't remember what

questions were asked, I don't know if the doctor had already figured out the

RLS bit, but it is my understanding that he needed the sleep study to

diagnose PLMD.

As far as doing our own research, I wasn't even online at the time I was

diagnosed. I had read a lot in books at the library, but apparently there

was nothing in the files regarding RLS, or else I just overlooked it.

I agree that we need to stay well informed. Recently I read that the patient

has an average time of 28 seconds to tell the doctor why he/she is there, and

I think that is due mostly to the HMO's applying pressure to the doctors to

limit the amount of time they can spend with the patient. In my case it

seems to be particularly true of my PCP. Therefore, the more knowledgeable

we are the more we can help a physician who is not well-versed in RLS.

Also, in my case, I do not have the typical textbook symptoms of RLS, so it

was very necessary that I have a doctor who could diagnose and treat me.

Joyce F.

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