Guest guest Posted July 19, 2000 Report Share Posted July 19, 2000 Hi Gretchen, Thank you for your response, but I'm a New Yorker, we are fighters. I had 2 heart attacks and after the last one, my doctors said, I had 3 clogged arteries and needed triple bypass surgery. If I would have given up and let them do it, then I would have a scar from the top of my chest to my navel, and still not be cured. I choose to fight it, and find an alternative. The doctors said I would die of congenial heart failure if I didn't get the operation. I decided to take my chances and fight. It has been 17 months since the doctors told me this. According to them I should be dead right now. I feel fine and even my ex primary care physician cannot believe I'm doing OK. I personally think if you give up and accept it, it will consume you. I chose to fight and not accept the tale that there is no cure. I believe there is a cure for every disease, you just have to find the right combination of ingredients, may it be vitamins, minerals, herbs, radionics, Rife Technology, psychic energy, or psychic surgery, etc. I won't give up, I will find a cure and will again amaze people. In Love & Light, Al Hasim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2000 Report Share Posted July 20, 2000 Go Al, go ... ) Ella Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2000 Report Share Posted July 20, 2000 Go Al, go ... ) Ella Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2000 Report Share Posted July 20, 2000 Go Al, go ... ) Ella Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2000 Report Share Posted July 20, 2000 Thanks Ella & , you know I'm not going to give in or accept that there is no cure. :-) In Love & Light, Al Hasim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2000 Report Share Posted July 20, 2000 Al, I feel compelled to comment: For such a long time, I fought so much in my life - not just the CMT, but just the way life was, as opposed to the way I wanted it to be. And you know what? All that fighting just tired me out and made me sicker! Acceptance has a peace and serenity that gives me hope. However, it doesn't mean letting myself get slapped around. For me, I can accept the fact that - at least at present - there's not a cure for this disease, but there are ways to cope, ways to manage, ways to survive and to do so with peace and serenity, and even comfort. I have a huge number of stressors in my life right now, and several of them are not going to go away. And I know they are affecting the progression of my disease. But my serenity is directly proportional to my level of acceptance about one and all these stressors. So I'm working on acceptance all the time. Otherwise, I would just crumble! This may be a can of worms - but I support the MDA, and I love Jerry and all he has done to raise funds for all the neuromuscular diseases that MDA covers (including us!). There have been great advances - y'all know that we know about the gene now, where we didn't a few years ago. Progress is great. But in the meantime, I'm going to try to accept that this is me, CMT is what I have, and I'm going to try to stop fighting anyone or anything. Please pardon the soapbox. Warm regards to all. Carolyn > Thanks Ella & , > > you know I'm not going to give in or accept that > there is no cure. :-) > > In Love & Light, > Al Hasim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2000 Report Share Posted July 20, 2000 Al, I feel compelled to comment: For such a long time, I fought so much in my life - not just the CMT, but just the way life was, as opposed to the way I wanted it to be. And you know what? All that fighting just tired me out and made me sicker! Acceptance has a peace and serenity that gives me hope. However, it doesn't mean letting myself get slapped around. For me, I can accept the fact that - at least at present - there's not a cure for this disease, but there are ways to cope, ways to manage, ways to survive and to do so with peace and serenity, and even comfort. I have a huge number of stressors in my life right now, and several of them are not going to go away. And I know they are affecting the progression of my disease. But my serenity is directly proportional to my level of acceptance about one and all these stressors. So I'm working on acceptance all the time. Otherwise, I would just crumble! This may be a can of worms - but I support the MDA, and I love Jerry and all he has done to raise funds for all the neuromuscular diseases that MDA covers (including us!). There have been great advances - y'all know that we know about the gene now, where we didn't a few years ago. Progress is great. But in the meantime, I'm going to try to accept that this is me, CMT is what I have, and I'm going to try to stop fighting anyone or anything. Please pardon the soapbox. Warm regards to all. Carolyn > Thanks Ella & , > > you know I'm not going to give in or accept that > there is no cure. :-) > > In Love & Light, > Al Hasim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2000 Report Share Posted July 20, 2000 Al, I feel compelled to comment: For such a long time, I fought so much in my life - not just the CMT, but just the way life was, as opposed to the way I wanted it to be. And you know what? All that fighting just tired me out and made me sicker! Acceptance has a peace and serenity that gives me hope. However, it doesn't mean letting myself get slapped around. For me, I can accept the fact that - at least at present - there's not a cure for this disease, but there are ways to cope, ways to manage, ways to survive and to do so with peace and serenity, and even comfort. I have a huge number of stressors in my life right now, and several of them are not going to go away. And I know they are affecting the progression of my disease. But my serenity is directly proportional to my level of acceptance about one and all these stressors. So I'm working on acceptance all the time. Otherwise, I would just crumble! This may be a can of worms - but I support the MDA, and I love Jerry and all he has done to raise funds for all the neuromuscular diseases that MDA covers (including us!). There have been great advances - y'all know that we know about the gene now, where we didn't a few years ago. Progress is great. But in the meantime, I'm going to try to accept that this is me, CMT is what I have, and I'm going to try to stop fighting anyone or anything. Please pardon the soapbox. Warm regards to all. Carolyn > Thanks Ella & , > > you know I'm not going to give in or accept that > there is no cure. :-) > > In Love & Light, > Al Hasim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2000 Report Share Posted July 20, 2000 << you know I'm not going to give in or accept that there is no cure. :-) In Love & Light, Al Hasim >> Good attitude Al. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2000 Report Share Posted July 20, 2000 In a message dated 07/20/2000 11:31:36 AM Eastern Daylight Time, cmontana@... writes: << Carolyn >> Hi Carolyn, I respect your opinion on accepting CMT and the peace it gives you, but for me that is quitting. I feel by accepting it, your are giving up and I don't give up in anything I do, that's just me. I can accept certain things, like I will never be a concert pianist or the best guitarist, but that does not stop me from playing my guitar or writing songs on the piano, if I gave up I would sell my instruments. I am determined to not let CMT beat me. I think if blacks accepted slavery, there would still be slaves. I think if people accepted small pox there wouldn't be a cure for it and many other diseases that didn't have a cure. I think if Columbus accepted that the world was flat, we wouldn't have the USA. I also think if scientists accepted that CMT is incurable and that's it, the gene would not have been found. You can accept many things, but by accepting those things it does not mean that it is the best thing for you. In Love & Light, Al Hasim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2000 Report Share Posted July 21, 2000 Good morning, Al. And I, too, respect your opinion and agree with much that you've said. All I'm saying is that I'm not fighting it, because that causes inner turmoil for me, and I've been there, done that in too many areas of my life. And all that fighting took virtually all my energy. But in no way am I giving up!! I have to admit that today it's not as easy talking about acceptance because this is not a good day physically. Just have a lot of pain - I know you and many others appreciate that! But it will pass, one way or another. Still feel, however, that fighting it is not going to decrease the pain. Hope that makes some sense. Have a great day. Regards. Carolyn > In a message dated 07/20/2000 11:31:36 AM Eastern Daylight Time, > cmontana@s... writes: > > << Carolyn >> > Hi Carolyn, > > I respect your opinion on accepting CMT and the peace it gives > you, but for me that is quitting. I feel by accepting it, your are giving up > and I don't give up in anything I do, that's just me. I can accept certain > things, like I will never be a concert pianist or the best guitarist, but > that does not stop me from playing my guitar or writing songs on the piano, > if I gave up I would sell my instruments. I am determined to not let CMT beat > me. I think if blacks accepted slavery, there would still be slaves. I think > if people accepted small pox there wouldn't be a cure for it and many other > diseases that didn't have a cure. I think if Columbus accepted that the world > was flat, we wouldn't have the USA. I also think if scientists accepted that > CMT is incurable and that's it, the gene would not have been found. You can > accept many things, but by accepting those things it does not mean that it is > the best thing for you. > > In Love & Light, > Al Hasim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2000 Report Share Posted July 27, 2000 In a message dated 7/20/2000 10:31:24 AM US Eastern Standard Time, cmontana@... writes: << But in the meantime, I'm going to try to accept that this is me, CMT is what I have, and I'm going to try to stop fighting anyone or anything. Please pardon the soapbox. Warm regards to all. Carolyn >> Well said, Carolyn. Acceptance is half of the battle. I did that many years ago, but continued to live with so many stressful and unhappy things in my life. I made an enormous decision to start over at the age of 51. Not all stress left of course, but the only ones I had remaining were those of MY making and not of someone else. I am happier than I've ever been in my entire life. Has there been a lot of changes with my CMT and the discomfort? Not really, but there is such peace of mind and heart. I've lived with CMT all of my life, trying to figure out to control it here or there. What to do and not to do. I found out, CMT can get the best of you, no matter what you try. Certain obvious things we've learned, do help the affects and outcomes, but sometimes when you've done all you know to do, you still have CMT. Hang in there, everyone and seek that inner peace and acceptance. from IN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2000 Report Share Posted July 27, 2000 In a message dated 7/20/2000 10:31:24 AM US Eastern Standard Time, cmontana@... writes: << But in the meantime, I'm going to try to accept that this is me, CMT is what I have, and I'm going to try to stop fighting anyone or anything. Please pardon the soapbox. Warm regards to all. Carolyn >> Well said, Carolyn. Acceptance is half of the battle. I did that many years ago, but continued to live with so many stressful and unhappy things in my life. I made an enormous decision to start over at the age of 51. Not all stress left of course, but the only ones I had remaining were those of MY making and not of someone else. I am happier than I've ever been in my entire life. Has there been a lot of changes with my CMT and the discomfort? Not really, but there is such peace of mind and heart. I've lived with CMT all of my life, trying to figure out to control it here or there. What to do and not to do. I found out, CMT can get the best of you, no matter what you try. Certain obvious things we've learned, do help the affects and outcomes, but sometimes when you've done all you know to do, you still have CMT. Hang in there, everyone and seek that inner peace and acceptance. from IN Quote Link to comment Share on other sites More sharing options...
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