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The School Years

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Hello Everyone, Kathy, your story about school and the stairs, brought up a

wonderful thing my sons teacher did for him . First of all, Cody has gone to

this school since kindergarden, so everybody know him: My son has a hard

time doing stairs,( this is the first time his class has been upstairs),

he's slow and is constantly scared that someone in their haste will run into

him, and he will fall down the rest of the steps. Well, his teacher, first

took his class aside and explained Cody's problem, and they got together and

thought up ways to help him. They now guard Co when he's walking down the

stairs and they, the kids, tell the other kids about Cody, and explain why

Cody needs room to walk down the stairs. My son, who hasn't been officially

dignosed with CMT, yet, may walk to a different drummer, but as his teacher

says, he's still in the band. Love and Kindness be your companion always,

Michele

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<< My son, who hasn't been officially dignosed with CMT, yet, may walk to a

different drummer, but as his teacher says, he's still in the band. >>

That is a delightful expression!

Kat

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<< My son, who hasn't been officially dignosed with CMT, yet, may walk to a

different drummer, but as his teacher says, he's still in the band. >>

That is a delightful expression!

Kat

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OH those school years were hard for me especially phys ed. In grade

school I was tired a lot and slower than the rest of the kids. I always

tried though and made it to middle school and thats when it really got

tough. In gym class I was expected to do what the other kids could do

like running the track 2 or 3 times and tumbling(UGH!) then there was

the parallel bars and the thing they called the horse and several other

things that a gymnast could master easily then there was what was called

free dance LOL! that one I managed fairly well except for tripping over

my feet a couple of times .....Again I tried because I had to or flunk.

Back then you couldn't get out of things as easily only if you were on

your period then you got lucky!! I didn't know I had CMT till I was 42

years old and when I look back today I can honestly give myself a pat on

the back for just simply doing the best I could. When I went to middle

school and high school there were stairs to climb for several of my

classes....that was difficult but even made worse by too many kids and a

crowded staircase thank goodness no falls except once getting off the

school bus which was terribly embarrassing because I had a crush on a

boy that lived down the street from me wow what an impression I must

have made. All in all I made it though and how I don't know maybe by

pure will.

Cathy

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In a message dated 7/28/2000 4:14:02 PM Pacific Daylight Time,

Grmifo91@... writes:

<< Hello Everyone, Kathy, your story about school and the stairs, brought up

a

wonderful thing my sons teacher did for him . First of all, Cody has gone to

this school since kindergarden, so everybody know him: My son has a hard

time doing stairs,( this is the first time his class has been upstairs),

he's slow and is constantly scared that someone in their haste will run into

him, and he will fall down the rest of the steps. Well, his teacher, first

took his class aside and explained Cody's problem, and they got together and

thought up ways to help him. They now guard Co when he's walking down the

stairs and they, the kids, tell the other kids about Cody, and explain why

Cody needs room to walk down the stairs. My son, who hasn't been officially

dignosed with CMT, yet, may walk to a different drummer, but as his teacher

says, he's still in the band. Love and Kindness be your companion always,

Michele

Cody needs a key to the elevator. It is so unsafe to have him going up and

down the steps.

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Hi , Cody is also autistic and elevators frighten him to death. He is

hyper sensitive to the air around him, kinda like claustraphobic. We are in

the process of desensitizing him, and that is a slow process. He also wants

so desperately to fit in, and riding an elevator would separate him from the

rest of the class, making him even more different, Thank-you for your

concern, Blessings to you, Michele

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When my son was in elementary school, he was very conscious of kids looking

at me and staring - it really bothered him. He never got angry at me, but

he got mad at them for doing it. I expressed this to his 1st grade teacher

and she did the most wonderful thing. During " disability awareness week "

she invited me to come in to his class and talk about mine, and answer any

questions the kids might have. My son was a little nervous (he does not

have CMT), but it went really well. His classmates asked questions and then

contributed stories of their own about relatives that they had who had

problems. They asked about my braces and I asked if they would like to see

them up close and they all gathered round me to check 'em out. (There were

2 or 3 kids who hung out at the back of the group who were not interested or

comfortable, but so what - they weren't my kid's friends anyway). My son's

face was beaming, he was so relieved and was so happy to see his friends

accept me with a smile. I will never forget that very wise teacher.

I volunteered in the classroom as much as I could thru the 5th grade (the

end of our elementary school years). Rather than walk around, I chose to

sit at the back of the room and assist the students who needed help. I

always came to the classroom with a smile -- I loved it! I would help each

year with the library fund-raiser and sell tickets at the carnivals. I

always explained to people calling on the phone for volunteering that I

could help, but had to have a sit down job.

I feel being known and visible at the school was a good lesson for my son

and for all the students - I knew the staring was something kids did but

still thought it was worth it for them to see me participating with the

school. I haven't had time to do anything for our middle school, but would

like to.

Melody

Re: The School Years

> Hello Everyone, Kathy, your story about school and the stairs, brought up

a

> wonderful thing my sons teacher did for him . First of all, Cody has gone

to

> this school since kindergarden, so everybody know him: My son has a hard

> time doing stairs,( this is the first time his class has been upstairs),

> he's slow and is constantly scared that someone in their haste will run

into

> him, and he will fall down the rest of the steps. Well, his teacher, first

> took his class aside and explained Cody's problem, and they got together

and

> thought up ways to help him. They now guard Co when he's walking down the

> stairs and they, the kids, tell the other kids about Cody, and explain why

> Cody needs room to walk down the stairs. My son, who hasn't been

officially

> dignosed with CMT, yet, may walk to a different drummer, but as his

teacher

> says, he's still in the band. Love and Kindness be your companion always,

> Michele

>

>

>

>

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