Re: Visit to My Neurologist

[Guest guest]

Jane,

Again, all you know what broke lose, when my mother started taking Sinemet

CR, 50/200 with augmentation and rebound. She literally ended up pacing the

floors around the clock much to my horror as I tried to find out what was

causing the excruitatin feelings in her legs and went from neurologist to

neurologist to neurologist -- three to no avail!

This was two years ago. We then meet Dr. Elaty who had a medical journal

article documenting approximately 80% experience augmentation with Sinemet so

at least we then understood what was causing it to tackle the problem. Dr.

Elaty was horrified to see my mother looking like warmed over death from lack

of sleep and although it took time, did help us chart a course to tame the

monster and she is now doing extremely well. About the same time,

augmentation/rebound from Sinemet was mentioned in the RLS Foundation

newsletter.

Barbara

<< She has put

me on sustained release Sinemet (for daytime) - stay

on regular at night. >>

[Guest guest]

Hi Everyone,

I just got home from seeing my neurologist - today was

a really good day for me to go - I am sitting in the

waiting room fidgeting and tapping my feet, etc. and

she is standing there watching me - I didn't hear her

walk up.

I have been taking up to 5 Sinemet a day and 3 Mirapex

- 2 of the Sinemet for daytime symptoms. She has put

me on sustained release Sinemet (for daytime) - stay

on regular at night. She doesn't want to do anything

drastic right now like take me completely off Sinemet

since it does work for me and I am in the middle of a

major depression which may wind up with my entering a

hospital in the next week or so if switching to Zoloft

doesn't help.

Anyhow, she ordered ferritin and B-12 blood levels

(last B-12 was low) and something else - can't

remember. She is going to discuss adding Neurontin to

my RLS cocktail with my psychiatrist.

And the icing on the cake, I am scheduled for a brain

MRI on Friday - constant headaches. I think this is

just a precaution. But now I get to go to another

specialist - a headache specialist!

And then I am supposed to see a rheumatologist and a

vascular surgeon. Minor postscript - I see my Ob-Gyn

and dentist (oral surgery) next week.

I grew up in a small town in S.C. where Dr. Lee

Nesbitt (Dr. Lee) took care of you from the time you

were still in the womb until you were put into the

ground! I cannot afford to maintain myself. Any real

rich men on the list who are into restoring old

houses, works of art, middle-aged women who are

falling apart?

If there were were a blue book of values for

middle-aged women, I wonder if there would be an entry

for someone in my shape. I drive a 15 year old car

with 200,000 miles on it that has a higher trade-in

value than I do!!!

Anyhow, will let you all know about the ferritin and

the B-12 and if I have a brain tumor or am pregnant

(that would be a trick - no reproductive parts left

and no sex life) and how much the tooth fairy leaves

me!

Jane

Re: alternative vs. conventional - whatever works and

causes the least side effects - who cares which

one?????? I certainly don't. Just be careful if you

are like me and take a number of meds - both

alternative and conventional med cans be affected by

what you eat, drink and when you take a number of

meds, you always have to concern yourself (and you

better do this - don't count on your doctor to do it!)

with meds interferring with each other.

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