Guest guest Posted March 4, 2000 Report Share Posted March 4, 2000 << The CMTA newsletter claims that people with CMT can use it " with caution " but that it may be toxic to you peripheral nervous system. Just wanted you to know. Best wishes! >> Zoloft is being taken OFF the list of cautions because only one CMT person was adversely affected, and it's not been proven that taking Zoloft was the culprit. Kat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2000 Report Share Posted March 4, 2000 << The CMTA newsletter claims that people with CMT can use it " with caution " but that it may be toxic to you peripheral nervous system. Just wanted you to know. Best wishes! >> Zoloft is being taken OFF the list of cautions because only one CMT person was adversely affected, and it's not been proven that taking Zoloft was the culprit. Kat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2000 Report Share Posted March 4, 2000 << The CMTA newsletter claims that people with CMT can use it " with caution " but that it may be toxic to you peripheral nervous system. Just wanted you to know. Best wishes! >> Zoloft is being taken OFF the list of cautions because only one CMT person was adversely affected, and it's not been proven that taking Zoloft was the culprit. Kat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2000 Report Share Posted March 5, 2000 >>I am getting put on Zoloft. I remember reading about a few people here taking it as well, but I don't remember what anyone said. What do you think of it? Does it help w/fatigue? Depression? Thanks!<< Rhonda, Hi, Jeanie here, At one time I was onn Zoloft and it did help me. It can cause dry mouth and possible bowel side affects. After awhile the side affects lightened. I would probably still be onn it, but it was too expensiive even with my health insurance. I now am on Welbutrin and it has worked wonders for me. I had no side affects wiith Welbutrin. Jeanie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2000 Report Share Posted March 8, 2000 Rhonda- Jill here- I was put on Zoloft for CFS- it helped with the fatigue and depression that happens with CFS- the main side effect I had was dry mouth- I could not drink enough water! Zoloft also caused headacxhes at first. good luck- Jill > > >>I am getting put on Zoloft. I remember reading about a few people here >taking it as well, but I don't remember what anyone said. What do you >think of it? Does it help w/fatigue? Depression? Thanks!<< > >Rhonda, Hi, Jeanie here, > >At one time I was onn Zoloft and it did help me. It can cause dry mouth >and >possible bowel side affects. After awhile the side affects lightened. I >would probably still be onn it, but it was too expensiive even with my >health insurance. I now am on Welbutrin and it has worked wonders for me. >I >had no side affects wiith Welbutrin. > >Jeanie > >------------------------------------------------------------------------ >DON'T HATE YOUR RATE! >Get a NextCard Visa, in 30 seconds! Get rates as low as >0.0% Intro or 9.9% Fixed APR and no hidden fees. >Apply NOW! >http://click.egroups.com/1/2120/5/_/616793/_/952293833/ >------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2000 Report Share Posted March 8, 2000 Rhonda- Jill here- I was put on Zoloft for CFS- it helped with the fatigue and depression that happens with CFS- the main side effect I had was dry mouth- I could not drink enough water! Zoloft also caused headacxhes at first. good luck- Jill > > >>I am getting put on Zoloft. I remember reading about a few people here >taking it as well, but I don't remember what anyone said. What do you >think of it? Does it help w/fatigue? Depression? Thanks!<< > >Rhonda, Hi, Jeanie here, > >At one time I was onn Zoloft and it did help me. It can cause dry mouth >and >possible bowel side affects. After awhile the side affects lightened. I >would probably still be onn it, but it was too expensiive even with my >health insurance. I now am on Welbutrin and it has worked wonders for me. >I >had no side affects wiith Welbutrin. > >Jeanie > >------------------------------------------------------------------------ >DON'T HATE YOUR RATE! >Get a NextCard Visa, in 30 seconds! Get rates as low as >0.0% Intro or 9.9% Fixed APR and no hidden fees. >Apply NOW! >http://click.egroups.com/1/2120/5/_/616793/_/952293833/ >------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 I am so happy to hear about your success with Zoloft. I went to my internist last week, I have lost about 15 lbs. since I was diagnosed with rosacea, and probably because of the depression and frustration in dealing with it. He prescribed zoloft, but I was afraid to start taking it because I was afraid it might make the rosacea worse.! Anyways, I have had it pretty much under control, haven't had terrible flares for about 3 weeks. I started the rosacea diet, I splurged and spent the 10.00 it costs and I think it has definitely helped me..., it doesn't cure, but it seems to be under much better control. I had no success with other diet options, anyways, Pascoe recently reviewed it and info is available at the site. Thanks for your input on Zoloft, I am starting it tomorrow! Elena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 I am so happy to hear about your success with Zoloft. I went to my internist last week, I have lost about 15 lbs. since I was diagnosed with rosacea, and probably because of the depression and frustration in dealing with it. He prescribed zoloft, but I was afraid to start taking it because I was afraid it might make the rosacea worse.! Anyways, I have had it pretty much under control, haven't had terrible flares for about 3 weeks. I started the rosacea diet, I splurged and spent the 10.00 it costs and I think it has definitely helped me..., it doesn't cure, but it seems to be under much better control. I had no success with other diet options, anyways, Pascoe recently reviewed it and info is available at the site. Thanks for your input on Zoloft, I am starting it tomorrow! Elena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 I am so happy to hear about your success with Zoloft. I went to my internist last week, I have lost about 15 lbs. since I was diagnosed with rosacea, and probably because of the depression and frustration in dealing with it. He prescribed zoloft, but I was afraid to start taking it because I was afraid it might make the rosacea worse.! Anyways, I have had it pretty much under control, haven't had terrible flares for about 3 weeks. I started the rosacea diet, I splurged and spent the 10.00 it costs and I think it has definitely helped me..., it doesn't cure, but it seems to be under much better control. I had no success with other diet options, anyways, Pascoe recently reviewed it and info is available at the site. Thanks for your input on Zoloft, I am starting it tomorrow! Elena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2002 Report Share Posted February 25, 2002 Zac, Everyone with MSA reacts differently to all medicines. I am sorry you had a bad reaction to Zoloft, I personally do not take it, so I would not know except for my wife's experience with it. My wife was diagnosed with PD in 1990, possible OPCA as early as 1993, and MSA (at NIH) in 1995. She was seen by several top experts in the field from 1993-1995 and by a top movement disorder specialist until her death late last year. Charlotte was put on Prozac as early as 1992 and switched to Zoloft about 1994. She took Zoloft until her death last year. In addition, many people take Zoloft on this list. It is probably the single most used anti-depressant on this (MSA) list. Yes, you should know the side effects of ANY medicine you take and in some people Zoloft may cause you to lose sodium which could affect OH, BUT that is rare. Charlotte did not have POTS, her OH was controlable with Florinef. She did have more of the OPCA and PD symptoms of MSA than OH. She also took trazadone (another SSRI) at bedtime to help her sleep, which again is common with MSA patients. It is never good to condemn a specific medicine with MSA. Many here take medicines (like Tasmar) which are no longer on the market, BECAUSE they help specific people. I find it hard to believe that a doctor told you that " many MSA patients " react so bad to Zoloft, as that has not been the experience here. It sounds as if your doctors have taken you off ANY SSRI not just Zoloft. That may work well for you, but not all MSA patients. All MSA patients should CAREFULLY check out possible side effects of new medicines. That is a given. Note too that SSRI's do not go well with alcohol, so be aware of that item. There are a whole list of drug interactions with SSRI's so you must tell your doctors ALL of the medicines you take as well as any natural supplements you take. In addition, you must " ramp up " on SSRI's. Charlotte took one a day for two weeks, then two a day for some time before going up to three. Any " ramp up " medicine, should also be " ramped down " when coming off of it. There are over 600 patients represented here with MSA and I can only remember about 4 or 5 who had adverse reactions to Zoloft. We have seen well over 1000 people with MSA in the three years I have been here. Do NOT stop taking Zoloft on the adverse reaction of one person, always talk to your doctor. Take care, Bill Werre ---------------------------------------------------------------------- carterzachery wrote: > To all those considering Zoloft, please be careful. When my bp > was high sitting for the first time while having dysautonomia but > still hypotensive upon standing, one of my previous doctors > thought Zoloft would help me. Why, I asked? He said that I was > serotonin deficient. I told him that I did not think so. I lived in > Wales for awhile where it rains almost everyday, and I was not > deppressed at all. . . In the end, I tried Zoloft hoping that having > more serotonin would help speed up the blood pressure > response mechanism. I reacted terribly to it though even starting > out with a very small dose and trying to remain on it for two > weeks. I curled up in the corner, could not be around people, > wanted to cut my face off with a razor, cried for no reason, > besides having some odd spaciness and some precursors of > motor symptoms to come later. Terrible... The nurse told me to > increase the medication, it should help with those feelings. > What? I did not have depression and all of these feelings before. > I called a pharmacologist friend of mine who told me to tapper > back off the Zoloft and get another doctor. > > The neurologists I am seeing now said not to ake any > antidepressant and if I felt I really needed one discuss it with > them first. Interestingly, they also added that many MSA patients > do not react well to Zoloft. > > My advice is just be cautious in regards to antidepressants, and > get the presciption from a doctor you really trust with your MSA. > Perhaps, patients with POTS, etc. considering Zoloft or another > serotonin reputake inhibitor could have there serotonin levels > checked to at least avoid a reaction to too much serotonin? I do > not know about such tests though and whether they even exist. > > Nevertheless, I just wanted to share my anxiety about Zoloft. I > hope those with depression do find a medication that helps. > > Zac > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2002 Report Share Posted February 25, 2002 Zac, Everyone with MSA reacts differently to all medicines. I am sorry you had a bad reaction to Zoloft, I personally do not take it, so I would not know except for my wife's experience with it. My wife was diagnosed with PD in 1990, possible OPCA as early as 1993, and MSA (at NIH) in 1995. She was seen by several top experts in the field from 1993-1995 and by a top movement disorder specialist until her death late last year. Charlotte was put on Prozac as early as 1992 and switched to Zoloft about 1994. She took Zoloft until her death last year. In addition, many people take Zoloft on this list. It is probably the single most used anti-depressant on this (MSA) list. Yes, you should know the side effects of ANY medicine you take and in some people Zoloft may cause you to lose sodium which could affect OH, BUT that is rare. Charlotte did not have POTS, her OH was controlable with Florinef. She did have more of the OPCA and PD symptoms of MSA than OH. She also took trazadone (another SSRI) at bedtime to help her sleep, which again is common with MSA patients. It is never good to condemn a specific medicine with MSA. Many here take medicines (like Tasmar) which are no longer on the market, BECAUSE they help specific people. I find it hard to believe that a doctor told you that " many MSA patients " react so bad to Zoloft, as that has not been the experience here. It sounds as if your doctors have taken you off ANY SSRI not just Zoloft. That may work well for you, but not all MSA patients. All MSA patients should CAREFULLY check out possible side effects of new medicines. That is a given. Note too that SSRI's do not go well with alcohol, so be aware of that item. There are a whole list of drug interactions with SSRI's so you must tell your doctors ALL of the medicines you take as well as any natural supplements you take. In addition, you must " ramp up " on SSRI's. Charlotte took one a day for two weeks, then two a day for some time before going up to three. Any " ramp up " medicine, should also be " ramped down " when coming off of it. There are over 600 patients represented here with MSA and I can only remember about 4 or 5 who had adverse reactions to Zoloft. We have seen well over 1000 people with MSA in the three years I have been here. Do NOT stop taking Zoloft on the adverse reaction of one person, always talk to your doctor. Take care, Bill Werre ---------------------------------------------------------------------- carterzachery wrote: > To all those considering Zoloft, please be careful. When my bp > was high sitting for the first time while having dysautonomia but > still hypotensive upon standing, one of my previous doctors > thought Zoloft would help me. Why, I asked? He said that I was > serotonin deficient. I told him that I did not think so. I lived in > Wales for awhile where it rains almost everyday, and I was not > deppressed at all. . . In the end, I tried Zoloft hoping that having > more serotonin would help speed up the blood pressure > response mechanism. I reacted terribly to it though even starting > out with a very small dose and trying to remain on it for two > weeks. I curled up in the corner, could not be around people, > wanted to cut my face off with a razor, cried for no reason, > besides having some odd spaciness and some precursors of > motor symptoms to come later. Terrible... The nurse told me to > increase the medication, it should help with those feelings. > What? I did not have depression and all of these feelings before. > I called a pharmacologist friend of mine who told me to tapper > back off the Zoloft and get another doctor. > > The neurologists I am seeing now said not to ake any > antidepressant and if I felt I really needed one discuss it with > them first. Interestingly, they also added that many MSA patients > do not react well to Zoloft. > > My advice is just be cautious in regards to antidepressants, and > get the presciption from a doctor you really trust with your MSA. > Perhaps, patients with POTS, etc. considering Zoloft or another > serotonin reputake inhibitor could have there serotonin levels > checked to at least avoid a reaction to too much serotonin? I do > not know about such tests though and whether they even exist. > > Nevertheless, I just wanted to share my anxiety about Zoloft. I > hope those with depression do find a medication that helps. > > Zac > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2002 Report Share Posted February 25, 2002 My husband takes Zoloft because we were told that it helps with the bowel problem with out damaging the bowel. Marilyn in TN > > Reply-To: shydrager > Date: Mon, 25 Feb 2002 13:35:28 -0500 > To: shydrager > Subject: Re: Zoloft > > Zac, > > Everyone with MSA reacts differently to all medicines. I am sorry you had a > bad reaction to Zoloft, I personally do not take it, so I would not know > except for my wife's experience with it. My wife was diagnosed with PD in > 1990, possible OPCA as early as 1993, and MSA (at NIH) in 1995. She was seen > by several top experts in the field from 1993-1995 and by a top movement > disorder specialist until her death late last year. > > Charlotte was put on Prozac as early as 1992 and switched to Zoloft about > 1994. She took Zoloft until her death last year. In addition, many people > take Zoloft on this list. It is probably the single most used > anti-depressant on this (MSA) list. Yes, you should know the side effects of > ANY medicine you take and in some people Zoloft may cause you to lose sodium > which could affect OH, BUT that is rare. Charlotte did not have POTS, her OH > was controlable with Florinef. She did have more of the OPCA and PD symptoms > of MSA than OH. She also took trazadone (another SSRI) at bedtime to help > her sleep, which again is common with MSA patients. > > It is never good to condemn a specific medicine with MSA. Many here take > medicines (like Tasmar) which are no longer on the market, BECAUSE they help > specific people. I find it hard to believe that a doctor told you that " many > MSA patients " react so bad to Zoloft, as that has not been the experience > here. It sounds as if your doctors have taken you off ANY SSRI not just > Zoloft. That may work well for you, but not all MSA patients. > > All MSA patients should CAREFULLY check out possible side effects of new > medicines. That is a given. Note too that SSRI's do not go well with > alcohol, so be aware of that item. There are a whole list of drug > interactions with SSRI's so you must tell your doctors ALL of the medicines > you take as well as any natural supplements you take. In addition, you must > " ramp up " on SSRI's. Charlotte took one a day for two weeks, then two a day > for some time before going up to three. Any " ramp up " medicine, should also > be " ramped down " when coming off of it. > > There are over 600 patients represented here with MSA and I can only remember > about 4 or 5 who had adverse reactions to Zoloft. We have seen well over > 1000 people with MSA in the three years I have been here. Do NOT stop taking > Zoloft on the adverse reaction of one person, always talk to your doctor. > > Take care, Bill Werre > > ---------------------------------------------------------------------- > carterzachery wrote: > >> To all those considering Zoloft, please be careful. When my bp >> was high sitting for the first time while having dysautonomia but >> still hypotensive upon standing, one of my previous doctors >> thought Zoloft would help me. Why, I asked? He said that I was >> serotonin deficient. I told him that I did not think so. I lived in >> Wales for awhile where it rains almost everyday, and I was not >> deppressed at all. . . In the end, I tried Zoloft hoping that having >> more serotonin would help speed up the blood pressure >> response mechanism. I reacted terribly to it though even starting >> out with a very small dose and trying to remain on it for two >> weeks. I curled up in the corner, could not be around people, >> wanted to cut my face off with a razor, cried for no reason, >> besides having some odd spaciness and some precursors of >> motor symptoms to come later. Terrible... The nurse told me to >> increase the medication, it should help with those feelings. >> What? I did not have depression and all of these feelings before. >> I called a pharmacologist friend of mine who told me to tapper >> back off the Zoloft and get another doctor. >> >> The neurologists I am seeing now said not to ake any >> antidepressant and if I felt I really needed one discuss it with >> them first. Interestingly, they also added that many MSA patients >> do not react well to Zoloft. >> >> My advice is just be cautious in regards to antidepressants, and >> get the presciption from a doctor you really trust with your MSA. >> Perhaps, patients with POTS, etc. considering Zoloft or another >> serotonin reputake inhibitor could have there serotonin levels >> checked to at least avoid a reaction to too much serotonin? I do >> not know about such tests though and whether they even exist. >> >> Nevertheless, I just wanted to share my anxiety about Zoloft. I >> hope those with depression do find a medication that helps. >> >> Zac >> >> If you do not wish to belong to shydrager, you may >> unsubscribe by sending a blank email to >> >> shydrager-unsubscribe >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 I've been on Zoloft for several years but didn't develop cea until after I had been on it. However, when I took certain Blood Pressure Pills my face turned beet red so my doctor changed them for me until we found a combination I could take. Ask your doctor before changing any dosages of any meds. Good Luck! Dawn --- edith1580 edith1580@...> wrote: > > > Adam, > I had problems with taking Zoloft; after one week my > head looked like > a balloon with chicken-pox. And one more weird > thing. The skin on my > thighs broke out which never hapenned to me before. > Some people > though take Zoloft and have no such problems, which > proves that we > react to certain things differently. > If you suspect that Zoloft is causing you any > trouble, try to taper > off and see what happens. > Edith > > > > -- > Please read the list highlights before posting to > the whole group (http://rosacea.ii.net/toc.html). > Your post will be delayed if you don't give a > meaningful subject or trim your reply text. You must > change the subject when replying to a digest ! > > See http://www.drnase.com for info on his recently > published book. > > To leave the list send an email to > rosacea-support-unsubscribe > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 I've been on Zoloft for several years but didn't develop cea until after I had been on it. However, when I took certain Blood Pressure Pills my face turned beet red so my doctor changed them for me until we found a combination I could take. Ask your doctor before changing any dosages of any meds. Good Luck! Dawn --- edith1580 edith1580@...> wrote: > > > Adam, > I had problems with taking Zoloft; after one week my > head looked like > a balloon with chicken-pox. And one more weird > thing. The skin on my > thighs broke out which never hapenned to me before. > Some people > though take Zoloft and have no such problems, which > proves that we > react to certain things differently. > If you suspect that Zoloft is causing you any > trouble, try to taper > off and see what happens. > Edith > > > > -- > Please read the list highlights before posting to > the whole group (http://rosacea.ii.net/toc.html). > Your post will be delayed if you don't give a > meaningful subject or trim your reply text. You must > change the subject when replying to a digest ! > > See http://www.drnase.com for info on his recently > published book. > > To leave the list send an email to > rosacea-support-unsubscribe > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 I've been on Zoloft for several years but didn't develop cea until after I had been on it. However, when I took certain Blood Pressure Pills my face turned beet red so my doctor changed them for me until we found a combination I could take. Ask your doctor before changing any dosages of any meds. Good Luck! Dawn --- edith1580 edith1580@...> wrote: > > > Adam, > I had problems with taking Zoloft; after one week my > head looked like > a balloon with chicken-pox. And one more weird > thing. The skin on my > thighs broke out which never hapenned to me before. > Some people > though take Zoloft and have no such problems, which > proves that we > react to certain things differently. > If you suspect that Zoloft is causing you any > trouble, try to taper > off and see what happens. > Edith > > > > -- > Please read the list highlights before posting to > the whole group (http://rosacea.ii.net/toc.html). > Your post will be delayed if you don't give a > meaningful subject or trim your reply text. You must > change the subject when replying to a digest ! > > See http://www.drnase.com for info on his recently > published book. > > To leave the list send an email to > rosacea-support-unsubscribe > > Quote Link to comment Share on other sites More sharing options...
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