Re: Caring People,Not RLS Related

[Guest guest]

Hi, I feel that I'm kinda in the same situation as you are. I don't take any

meds for my RLS and the only input and support that I can give to the group

are my butterfly troops that I send out to help make others in the group

hopefully feel a little better. I've always enjoyed your input to the group.

Kristy, 43, Fountain Hills, AZ

Hot today, and getting hotter...in the high 90's

[Guest guest]

Hi, I feel that I'm kinda in the same situation as you are. I don't take any

meds for my RLS and the only input and support that I can give to the group

are my butterfly troops that I send out to help make others in the group

hopefully feel a little better. I've always enjoyed your input to the group.

Kristy, 43, Fountain Hills, AZ

Hot today, and getting hotter...in the high 90's

[Guest guest]

Hi, I feel that I'm kinda in the same situation as you are. I don't take any

meds for my RLS and the only input and support that I can give to the group

are my butterfly troops that I send out to help make others in the group

hopefully feel a little better. I've always enjoyed your input to the group.

Kristy, 43, Fountain Hills, AZ

Hot today, and getting hotter...in the high 90's

[Guest guest]

I think I need to express myself to some persons in the group. 2 in

particular but I won't mention names. I am one of the most soft hearted

people you would ever care to meet. I would bend over backwards almost

to help anybody that deserved it. I understand that there is a definite

lack of sleep going on here. But what I don't understand is why would

anybody think they can tell me what I can or cannot contribute to the

group? My understanding is Jodi is the Moderator of the group. Isn't

she the ONE who is to decide what is appropriate or not? Wouldn't she

tell me so? Somehow,I think she would. I'm not trying to be mean. But

I'm not a marshmallow either. I have done nothing but give of myself

and have asked for very little in return. I get many responses in

private encouraging me to keep on giving information to the group even

if it isn't about medication. You see,I don't take meds,and I'm not

bragging,but that means I have to find other area's of conversation. I

am really interested in the natural means of healing myself. And yes,I

consider myself to be unhealthy. And I very much want to find ways to

make my body healthy again. But not with prescriptions. And I realize

that is my choice. Just as your choices are yours. I also realize

there are some who don't have a choice because the symptoms are so bad

that they cannot tolerate without meds. And believe me,if I could take

away the pain and misery,I would. But,that is not within my power. But

what is in my power is to keep trying to help in ALL the way's I can.

And I will continue to give info about things to do with helping to be

healthy to hopefully eliminate the RLS. It's all I know how to do. So

the ones that appreciate the learning and info please let me know. And

the rest,please be tolerant of us. COCO MO.

[Guest guest]

I think I need to express myself to some persons in the group. 2 in

particular but I won't mention names. I am one of the most soft hearted

people you would ever care to meet. I would bend over backwards almost

to help anybody that deserved it. I understand that there is a definite

lack of sleep going on here. But what I don't understand is why would

anybody think they can tell me what I can or cannot contribute to the

group? My understanding is Jodi is the Moderator of the group. Isn't

she the ONE who is to decide what is appropriate or not? Wouldn't she

tell me so? Somehow,I think she would. I'm not trying to be mean. But

I'm not a marshmallow either. I have done nothing but give of myself

and have asked for very little in return. I get many responses in

private encouraging me to keep on giving information to the group even

if it isn't about medication. You see,I don't take meds,and I'm not

bragging,but that means I have to find other area's of conversation. I

am really interested in the natural means of healing myself. And yes,I

consider myself to be unhealthy. And I very much want to find ways to

make my body healthy again. But not with prescriptions. And I realize

that is my choice. Just as your choices are yours. I also realize

there are some who don't have a choice because the symptoms are so bad

that they cannot tolerate without meds. And believe me,if I could take

away the pain and misery,I would. But,that is not within my power. But

what is in my power is to keep trying to help in ALL the way's I can.

And I will continue to give info about things to do with helping to be

healthy to hopefully eliminate the RLS. It's all I know how to do. So

the ones that appreciate the learning and info please let me know. And

the rest,please be tolerant of us. COCO MO.

[Guest guest]

I think I need to express myself to some persons in the group. 2 in

particular but I won't mention names. I am one of the most soft hearted

people you would ever care to meet. I would bend over backwards almost

to help anybody that deserved it. I understand that there is a definite

lack of sleep going on here. But what I don't understand is why would

anybody think they can tell me what I can or cannot contribute to the

group? My understanding is Jodi is the Moderator of the group. Isn't

she the ONE who is to decide what is appropriate or not? Wouldn't she

tell me so? Somehow,I think she would. I'm not trying to be mean. But

I'm not a marshmallow either. I have done nothing but give of myself

and have asked for very little in return. I get many responses in

private encouraging me to keep on giving information to the group even

if it isn't about medication. You see,I don't take meds,and I'm not

bragging,but that means I have to find other area's of conversation. I

am really interested in the natural means of healing myself. And yes,I

consider myself to be unhealthy. And I very much want to find ways to

make my body healthy again. But not with prescriptions. And I realize

that is my choice. Just as your choices are yours. I also realize

there are some who don't have a choice because the symptoms are so bad

that they cannot tolerate without meds. And believe me,if I could take

away the pain and misery,I would. But,that is not within my power. But

what is in my power is to keep trying to help in ALL the way's I can.

And I will continue to give info about things to do with helping to be

healthy to hopefully eliminate the RLS. It's all I know how to do. So

the ones that appreciate the learning and info please let me know. And

the rest,please be tolerant of us. COCO MO.

[Guest guest]

Kristy,

Your butterflies are a very welcome addition to the group, as are

COCO's ongoing investigations. Please don't stop sharing, everyone.

During my sleepless nights prior to finding this group, my mind used to

go into some very dark places. Now I can check my mail and feel

connected rather than isolated. Thank-you all so much!

ne, 59, Lawrenceville, NJ

--- KIPSFAV1@... wrote:

> From: KIPSFAV1@...

>

> Hi, I feel that I'm kinda in the same situation as

> you are. I don't take any

> meds for my RLS and the only input and support that

> I can give to the group

> are my butterfly troops that I send out to help make

> others in the group

> hopefully feel a little better. I've always enjoyed

> your input to the group.

> Kristy, 43, Fountain Hills, AZ

> Hot today, and getting hotter...in the high 90's

>

>

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> This forum is for support only. The information

> posted to this List is for support purposes

> and is not intended to replace the examination,

> diagnosis and treatment of a licensed

> physician and no such claims are inferred.

>

_________________________________________________________

[Guest guest]

COCO:

Yes, I am the Moderator of the group, but I try and stay out of that " position "

as much as

possible, and just be another " member " of the group. I haven't seen anything in

your messages

that was not appropriate for the group. When I set up this group on OneList, in

the description

of the group, I did put in " this group exists especially for those who don't

have a local

support group in their area, and even for those that do. Topics covered are

medications,

therapies, alternative techniques, experiences, etc. " So, in my book, that

covers what you are

doing, also. I applaud what you are doing, even though some people might not

appreciate it, or

better yet, probably just don't understand it. I am one of those people. My RLS

has been so

severe that I had to turn to prescription medications, but I'm always open to

hearing of other

ways that people try to make life liveable with this disorder. Different strokes

for different

folks, in my opinion and I think that the information that you have passed on to

the group is a

great addition to what we already have. That's why this group is here. So,

please don't be

offended or stop sending in posts when people don't agree with what you're doing

or ask you to

stop posting. This group is here for support, encouragement and sharing.

Restful Nights to All,

Jodi, 39, Nashville, TN

mainard wrote:

>

>

> I think I need to express myself to some persons in the group. 2 in

> particular but I won't mention names. I am one of the most soft hearted

> people you would ever care to meet. I would bend over backwards almost

> to help anybody that deserved it. I understand that there is a definite

> lack of sleep going on here. But what I don't understand is why would

> anybody think they can tell me what I can or cannot contribute to the

> group? My understanding is Jodi is the Moderator of the group. Isn't

> she the ONE who is to decide what is appropriate or not? Wouldn't she

> tell me so? Somehow,I think she would. I'm not trying to be mean. But

> I'm not a marshmallow either. I have done nothing but give of myself

> and have asked for very little in return. I get many responses in

> private encouraging me to keep on giving information to the group even

> if it isn't about medication. You see,I don't take meds,and I'm not

> bragging,but that means I have to find other area's of conversation. I

> am really interested in the natural means of healing myself. And yes,I

> consider myself to be unhealthy. And I very much want to find ways to

> make my body healthy again. But not with prescriptions. And I realize

> that is my choice. Just as your choices are yours. I also realize

> there are some who don't have a choice because the symptoms are so bad

> that they cannot tolerate without meds. And believe me,if I could take

> away the pain and misery,I would. But,that is not within my power. But

> what is in my power is to keep trying to help in ALL the way's I can.

> And I will continue to give info about things to do with helping to be

> healthy to hopefully eliminate the RLS. It's all I know how to do. So

> the ones that appreciate the learning and info please let me know. And

> the rest,please be tolerant of us. COCO MO.

>

> ------------------------------------------------------------------------

> Looking for a fun, easy way to stay in touch with family members?

> http://www.onelist.com

> Create a ONElist community just for your family!

> ------------------------------------------------------------------------

> This forum is for support only. The information posted to this List is for

support purposes

> and is not intended to replace the examination, diagnosis and treatment of a

licensed

> physician and no such claims are inferred.

[Guest guest]

If we need to take meds, we take them, if we don't, it's great. I have to

take RX meds, and am sad about it, but would be a mess without them, which

would be sadder, so I take them. Nat Dean, Santa Fe, NM

----------

>

>To: mainard@...

>Subject: Re: Caring People,Not RLS Related

>Date: Sat, May 8, 1999, 7:02 PM

>

>

>

> COCO:

> Yes, I am the Moderator of the group, but I try and stay out of that

> " position " as much as

> possible, and just be another " member " of the group. I haven't seen

> anything in your messages

> that was not appropriate for the group. When I set up this group on

> OneList, in the description

> of the group, I did put in " this group exists especially for those who

> don't have a local

> support group in their area, and even for those that do. Topics covered are

> medications,

> therapies, alternative techniques, experiences, etc. " So, in my book, that

> covers what you are

> doing, also. I applaud what you are doing, even though some people might

> not appreciate it, or

> better yet, probably just don't understand it. I am one of those people. My

> RLS has been so

> severe that I had to turn to prescription medications, but I'm always open

> to hearing of other

> ways that people try to make life liveable with this disorder. Different

> strokes for different

> folks, in my opinion and I think that the information that you have passed

> on to the group is a

> great addition to what we already have. That's why this group is here. So,

> please don't be

> offended or stop sending in posts when people don't agree with what you're

> doing or ask you to

> stop posting. This group is here for support, encouragement and sharing.

>

> Restful Nights to All,

> Jodi, 39, Nashville, TN

>

> mainard wrote:

>

>>

>>

>> I think I need to express myself to some persons in the group. 2 in

>> particular but I won't mention names. I am one of the most soft hearted

>> people you would ever care to meet. I would bend over backwards almost

>> to help anybody that deserved it. I understand that there is a definite

>> lack of sleep going on here. But what I don't understand is why would

>> anybody think they can tell me what I can or cannot contribute to the

>> group? My understanding is Jodi is the Moderator of the group. Isn't

>> she the ONE who is to decide what is appropriate or not? Wouldn't she

>> tell me so? Somehow,I think she would. I'm not trying to be mean. But

>> I'm not a marshmallow either. I have done nothing but give of myself

>> and have asked for very little in return. I get many responses in

>> private encouraging me to keep on giving information to the group even

>> if it isn't about medication. You see,I don't take meds,and I'm not

>> bragging,but that means I have to find other area's of conversation. I

>> am really interested in the natural means of healing myself. And yes,I

>> consider myself to be unhealthy. And I very much want to find ways to

>> make my body healthy again. But not with prescriptions. And I realize

>> that is my choice. Just as your choices are yours. I also realize

>> there are some who don't have a choice because the symptoms are so bad

>> that they cannot tolerate without meds. And believe me,if I could take

>> away the pain and misery,I would. But,that is not within my power. But

>> what is in my power is to keep trying to help in ALL the way's I can.

>> And I will continue to give info about things to do with helping to be

>> healthy to hopefully eliminate the RLS. It's all I know how to do. So

>> the ones that appreciate the learning and info please let me know. And

>> the rest,please be tolerant of us. COCO MO.

>>

>> ------------------------------------------------------------------------

>> Looking for a fun, easy way to stay in touch with family members?

>> http://www.onelist.com

>> Create a ONElist community just for your family!

>> ------------------------------------------------------------------------

>> This forum is for support only. The information posted to this List is

> for support purposes

>> and is not intended to replace the examination, diagnosis and treatment

> of a licensed

>> physician and no such claims are inferred.

>

>

> ------------------------------------------------------------------------

> ONElist: the best source for group communications.

> http://www.onelist.com

> Join today!

> ------------------------------------------------------------------------

> This forum is for support only. The information posted to this List is for

> support purposes

> and is not intended to replace the examination, diagnosis and treatment of

> a licensed

> physician and no such claims are inferred.

>

[Guest guest]

I agree with all these letters so far. I myself get so sick of the drone on

and on anbout Itake this many ml of this and that. You all need to remember

that not everyone is taking medications and we need a place to test our

thoughts and vent our frustrations.

Peace...

Brynn