daughters new development

[Guest guest]

In a message dated 7/24/2000 11:15:09 PM Pacific Daylight Time,

mel2mars@... writes:

<< I have one flat foot that rotates to the left, and one high arch foot that

wants to rotate to the left (that action may be coming from my hips also).

So yes, barefoot they look like they are both pointed left. I don't want to

scare you, but I think it's part of the weakening and deformity process. I

was diagnosed when I was 6. Your daughter would probably benefit from some

sort of bracing and/or exercises. Has she seen her dr.?

Melody >>

Melody this sounds like my son Adam.. Braces have helped him a lot.

[Guest guest]

Hi, My names . When I was about 6, I started tripping over my feet, and

my left foot curved to the left. I was having weakness in my hands, and they

have slowly progressed to where one can hardly move. I have spells where I

get shaky, but with my asthma inhaler, its hard to tell where the shakiness

comes from. I just turned 14, so I have had all this progression over about 6

years. I still trip alot and I can't straighten out my foot when I walk; it's

pretty uncomfortable to do so. It's probably normal, if that helps.

-

[Guest guest]

HI all,

I do not know if any of you have had any similar experience with CMT

but I thought that I would give this a shot.

My daughter (Bethany who has CMT 1-a) has dtarted having problems

with

her right foot turning in towards her left foot and her whole walk

starts to drift toward the left. She is also having extreme weekness

in her hands and this is causing her to shake and spill more. I am

not sure if this is related to her CMT, but I can find no other

reason

for her to have such weakness.

Actually, this scars and I need to know if anybody else has had

similar experiences. I too have CMT but I was not diagnosed until I

was 22, she was diagnosed much ealier.

If anybody can help tell me what may be going on please do so.

Thanks a bunch.

Dawn