for Lucy

[Guest guest]

Hi, Lucy, and welcome to the group,

It is a sad thing that docs are so unaware of RLS. It's just beginning

to be recognized as something that a LOT of people have and that it

cannot just be ignored, or swept under the rug, or misdiagnosed ( as if

we are drug seekers or hypochondriacs). I'm so glad you have found that

oxycodone works for you to break up the attacks. One-half a Percocet

does it for me. It's related to oxycodone, and both require a

prescription written by someone with a DEA #. I've been in close contact

with Jill Gunzel, of Payson, AZ, who has given me a lot of ideas, most of

which help. Best of all has been the DHA neuromins, which are available

at most health food stores. An omega-3 fatty acid, it is derived from

plant sources, rather than fish oils. I take two 100 mg capsules morning

and evening. I also take magnesium 250 mg, folic acid 800 mg, B-complex,

and iron. Low serum ferritin levels can worsen the RLS but, before you

buy any iron, ask your doc to get a serum ferritin level on you to see if

is low. If it is low, or low normal, the iron might help, though it is

important not to get TOO MUCH iron. Jill finds that distractions help

her a lot; like jasmine candles, computer games, and such. I think most

people also find that some exercise helps, but over-fatigue makes it

worse.

I'm in Tucson. Where are you?

am, AZ

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