Re: Re: swallowing ad Leg Cramps

[Guest guest]

Cathy,

Kudos on reaching out to the media! You are right, if we don't start

speaking up for ourselves, no one is going to know or care. When the

article comes out, let us know if we can link to it on the internet!!!

Hope your grandson feels better with the exercises.

Ruth

>From: cat926@...

>Reply-To: CMTUS (AT) onelist (DOT) com

>To: CMTUS (AT) onelist (DOT) com

>Subject: Re: swallowing ad Leg Cramps

>Date: Tue, 29 Feb 2000 06:29:43 -0600 (CST)

>

>From: cat926@...

>

>Hi all Cathy here,

>Joan, I have trouble swallowing at times and tend to choke if not

>careful I am real careful because I had a scare about 6 mos. ago and I

>was home alone If I remember right I was eating chicken at the time . I

>have had this ever since my neck surgeries so may be related to that but

>don't know for sure I am only 46 so it does scare me a little. Well

>regarding my Grandson Chance and his leg cramps he is still hurting and

>I believe that the exercise that I think wrote about would be good

>for him to do and I am going to start working with him myself on these.

>I called our local newspaper Friday and told them they need to do a

>story on CMT and get folks enlightened on this subject. The lady called

>me back yesterday and she is looking into everything I told her and is

>suppose to get hold of CMT international and get information and said

>she ha already talked to some Doctors on the subject. I had told her

>about Chance and everything he is going through at school and that the

>school system needs a little education on

>CMT so they can better work with the kids. So far all the people I have

>talked to thought CMT had something to do with the teeth and

>gums...........SO I am doing my part here in Northrn Ind. to get the

>news out about this disease. I want the kids to have it easier than I

>did and if it takes a newspaper story to get it out than so be it. I am

>also thinking about cotacting some of these television shows like Maury

>Povich and Leeza and Oprah to have them help..............Gee I wonder

>if Jerry Springer would obligeLOL!!!!! We need to get off our rears and

>speak out about CMT if we spread the word to our locals then maybe from

>there it will spread even farther. There are still to many people who

>do not know about this disease and we have a responsibility to educate

>the public. What we really have a responsibility to is the young people

>that its effecting...........Thanks for listening.

>Cathy

>

>

>

> CSCluv**

>

>

>

>http://community.webtv.net/cat926/doc

>

>http://community.webtv.net/cat926/CATHYSCOOLCATCORNER

>

>

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[Guest guest]

Cathy, GO GIRL!!!!!! Yes!!!! GOOD FOR YOU!!!!