Re: WELCOME Rose-Marie

January 17, 2000

Thank you Gretchen for your friendly words and that you contacted me after

my little message at the CMTA.

Yes I have noticed that it is a lot of parents who are writing here and at

the CMTA. I must say I especially understand the tired mothers who calls

for help, my daily thoughts are often about: how shall I been able to

tidy, cook, do the wasing ups etc this evening when I´m already feeling so

exhausted (hope you don´t throw me out from this site now while sounding

so negative).

I have also been following the messages about how it can be meeting

doctors. Here is often exactly the same problems i must say.

Yes I agree with you about these (sometimes) wonderful computers. I use to

say to my 13 years old son: isn´t it fantastic that I can sit here writing

messages to you in america and you can read it within the next second. " So

what " is the answere (a thought from the

new generation?)

W´ll keep in touch, Rose-Marie

January 17, 2000

Thank you Gretchen for your friendly words and that you contacted me after

my little message at the CMTA.

Yes I have noticed that it is a lot of parents who are writing here and at

the CMTA. I must say I especially understand the tired mothers who calls

for help, my daily thoughts are often about: how shall I been able to

tidy, cook, do the wasing ups etc this evening when I´m already feeling so

exhausted (hope you don´t throw me out from this site now while sounding

so negative).

I have also been following the messages about how it can be meeting

doctors. Here is often exactly the same problems i must say.

Yes I agree with you about these (sometimes) wonderful computers. I use to

say to my 13 years old son: isn´t it fantastic that I can sit here writing

messages to you in america and you can read it within the next second. " So

what " is the answere (a thought from the

new generation?)

W´ll keep in touch, Rose-Marie

January 17, 2000

Hi welcome to all who have recently joined- I am in Missouri- they call me a

spontaneous mutant- no one in my family as far back as they could go had any

symptoms of CMT. I have 3 too many kids- none of which are showing signs- as

of yet- I was dx'd as a child- i am 36 now- my ankles are fused, I wear

afo's, have clawed hands, and a paralysed vocal cord....but I have a great

personality!!

Elena

January 18, 2000

In a message dated 1/17/00 11:31:35 AM Pacific Standard Time,

Rose-Marie.Isakson@... writes:

<< I must say I especially understand the tired mothers who calls

for help, my daily thoughts are often about: how shall I been able to

tidy, cook, do the wasing ups etc this evening when I´m already feeling so

exhausted (hope you don´t throw me out from this site now while sounding

so negative). >>

Just do what you can. This saying helps me a lot. Don't do anything that

won't matter in 10 years. I have learned that if I can't get around to

something that I need to do in the weeks to follow I find the perfect time

for everything.

January 18, 2000

In a message dated 1/17/00 11:31:35 AM Pacific Standard Time,

Rose-Marie.Isakson@... writes:

<< I must say I especially understand the tired mothers who calls

for help, my daily thoughts are often about: how shall I been able to

tidy, cook, do the wasing ups etc this evening when I´m already feeling so

exhausted (hope you don´t throw me out from this site now while sounding

so negative). >>

Just do what you can. This saying helps me a lot. Don't do anything that

won't matter in 10 years. I have learned that if I can't get around to

something that I need to do in the weeks to follow I find the perfect time

for everything.

January 18, 2000

In a message dated 1/17/00 11:31:35 AM Pacific Standard Time,

Rose-Marie.Isakson@... writes:

<< I must say I especially understand the tired mothers who calls

for help, my daily thoughts are often about: how shall I been able to

tidy, cook, do the wasing ups etc this evening when I´m already feeling so

exhausted (hope you don´t throw me out from this site now while sounding

so negative). >>

Just do what you can. This saying helps me a lot. Don't do anything that

won't matter in 10 years. I have learned that if I can't get around to

something that I need to do in the weeks to follow I find the perfect time

for everything.

January 18, 2000

In a message dated 1/17/00 5:18:49 PM Pacific Standard Time,

klydesid@... writes:

<< Hi, again. Marc here. I was wondering where everyone is writing from. I am

here in a very rural community in the mountains of Northern California

(Humboldt County). I have been living here for a year and a half. Before

moving here, I lived most of my life in Massachusetts (Cape Cod). Most of

the doctors I've seen were at Mass. General Hospital. In fact, some of you

might have heard of my first neurologist, . He's retired now,

but was fairly famous for his work. I guess he's written text books...

Anyway, it is interesting to know where about everyone is writing from. M

>>

I live in Southern Ca .

January 18, 2000