Guest guest Posted March 27, 2000 Report Share Posted March 27, 2000 http://members.medinex.com/members/d/g/o/dgosling/index.html " >Charco t-Marie-Tooth Disease Information on This Website click on me Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2000 Report Share Posted March 27, 2000 http://members.medinex.com/members/d/g/o/dgosling/index.html " >Charco t-Marie-Tooth Disease Information on This Website click on me Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2000 Report Share Posted March 28, 2000 Thanks to all my new frinds on CMTUS (AT) e, we all may be able to help my friend Steve a bit. I joined a few weeks ago in hopes that I could find holistic/homeopathic methods that would be of assistance to him. What I have gathered so far is mainly massage thereapy and physical therapy. I also have found a few herbal supliments that should help. These are: Moringa Oleifera, ST. sWort, and Ginko Biloba. The second two are widely known, but the first was ellusive. I was going to supply the web page, but I lost the link Sorry. Maybe some of you can find it and post it. I'm going to bed. Fast Somewhere In Virginia (the state) fast@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2000 Report Share Posted March 28, 2000 At __5:14 AM 3/28/2000 -0500, you wrote: Hi , You sure are a night hawk! Re herbal supplementation and vitamins. Don't know if this was already mentioned but I was told by my geneticist to take the antitoxidants, Vitamin C (500-1000mg),Vitamin E 400 mg, and Selenium approx. 50mcg. As well my chiropractor has me take Glucosamine Sulphate and Chondroitin 500 and 350 mg. 2-3 times a day. (these last 2 are very expensive though). I also take Lethicin powder or granules in a glass of juice or in porridge. Lecthicin is known to be very beneficial for the nerves. Also there is some research being done on Creatinine Monosulphate for CMTers for their muscles, to build up muscle tissue. Chiropractic treatment is very important in keeping the spine alingned and moving freely. There are also Valerian Root and Skull cap for getting a good nights sleep. , what are the problems that your friend is dealing with, and what symptoms does he want the herbs to help? Take care, Slow >Thanks to all my new frinds on CMTUS (AT) e, >we all may be able to help my friend Steve a bit. I joined >a few weeks ago in hopes that I could find holistic/homeopathic >methods that would be of assistance to him. What I have gathered >so far is mainly massage thereapy and physical therapy. I also >have found a few herbal supliments that should help. These are: >Moringa Oleifera, ST. sWort, and Ginko Biloba. The second >two are widely known, but the first was ellusive. I was going to supply >the web page, but I lost the link Sorry. Maybe some of you can find it >and post it. I'm going to bed. > >Fast >Somewhere In Virginia (the state) >fast@... > > > >------------------------------------------------------------------------ >MAXIMIZE YOUR CARD, MINIMIZE YOUR RATE! >Get a NextCard Visa, in 30 seconds! Get rates as low as >0.0% Intro or 9.9% Fixed APR and no hidden fees. >Apply NOW! >http://click.egroups.com/1/2122/7/_/616793/_/954238697/ >------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2000 Report Share Posted March 28, 2000 HI, I did not really choose what kind of work I wanted to do..I did not start working until later in life after my mother passed away, 7 years ago..A week after she had died, someone told me of a dispatcher job opening in small town where I live..I went and within two weeks I was working as a Police Dispatcher..It did not take me long to know that I wanted to do this or something in law enforcement for a very long time..I found the job very rewarding and very easy to handle in refrence to my CMT..It is mostly a sit down job except for when I had to be jailer also..I stayed there for two years and then I moved to a larger department..I have been there now 5 years, and am the night shift supervisor.. I know dispatch Sheriff, Police, Fire and EMS..I have been to the Police academy three times and was just certified as an EMD Dispatcher last year..Sometimes the stress of the job combined with the stress from CMT is a lot to handle, but the the feelings that I get when I know I have helped just one person, seems to take away most of it.. I have been lucky that the Sheriff I work for, is very understanding. He is always making sure that I am comfortable and if I am having any problems with being able to use the equipment.. Two years ago, I was finding it increasingly hard to get upstairs to the Dispatch office..And since our office is over the Jail annex, we have a very secured building.. It has an elevator, but in order to use it, we basically had to run from one area behind locked doors to outside area, before the door closed..After talking to my supervisor just once, I was given a special key within a weeks time to assist me in using the elevator..So far things are going well and I hope I am able to stay with it for a while.. Sorry this was such a long post, but as you can probably tell, I really love my job.. Alice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2000 Report Share Posted March 28, 2000 Thanks for the info, -- Steve is tired from the pain, and also fed up with the Dr's around here. I do understand, but think some of these suppliments will help him. I hadn't thought about Selineum- That's agood tip - neurotransmitters and all that! I'm not a nigth owl, really - a computer geek, and I had a computer crash at the plant thins morning. Therefore the time Fast Somewhere In Virginia (the state) fast@... Re: work and CMT > > > At __5:14 AM 3/28/2000 -0500, you wrote: > > Hi , You sure are a night hawk! > > Re herbal supplementation and vitamins. Don't know if this was already > mentioned but I was told by my geneticist to take the antitoxidants, > Vitamin C (500-1000mg),Vitamin E 400 mg, and Selenium approx. 50mcg. As > well my chiropractor has me take Glucosamine Sulphate and Chondroitin 500 > and 350 mg. 2-3 times a day. (these last 2 are very expensive though). > > I also take Lethicin powder or granules in a glass of juice or in porridge. > Lecthicin is known to be very beneficial for the nerves. Also there is > some research being done on Creatinine Monosulphate for CMTers for their > muscles, to build up muscle tissue. > > Chiropractic treatment is very important in keeping the spine alingned and > moving freely. > There are also Valerian Root and Skull cap for getting a good nights sleep. > > , what are the problems that your friend is dealing with, and what > symptoms does he want the herbs to help? > > Take care, > Slow > > > > >Thanks to all my new frinds on CMTUS (AT) e, > >we all may be able to help my friend Steve a bit. I joined > >a few weeks ago in hopes that I could find holistic/homeopathic > >methods that would be of assistance to him. What I have gathered > >so far is mainly massage thereapy and physical therapy. I also > >have found a few herbal supliments that should help. These are: > >Moringa Oleifera, ST. sWort, and Ginko Biloba. The second > >two are widely known, but the first was ellusive. I was going to supply > >the web page, but I lost the link Sorry. Maybe some of you can find it > >and post it. I'm going to bed. > > > >Fast > >Somewhere In Virginia (the state) > >fast@... > > > > > > > >------------------------------------------------------------------------ > >MAXIMIZE YOUR CARD, MINIMIZE YOUR RATE! > >Get a NextCard Visa, in 30 seconds! Get rates as low as > >0.0% Intro or 9.9% Fixed APR and no hidden fees. > >Apply NOW! > >http://click.egroups.com/1/2122/7/_/616793/_/954238697/ > >------------------------------------------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2000 Report Share Posted March 29, 2000 i have wanted to be a writer since i was six years old and i started writing poetry of my own (it was really really bad, though :-) ) but when i started physical therapy, i was told that writing for hours a day, especially typing (with the risk for carpal tunnel) was about the worst thing i could do to myself. i discovered just the opposite, though. while i have lost most of the use in my legs, and my hands hurt a great deal, i can still do alot of things with them that if i hadn't used them everyday, i might not be able to do. it's difficult to do some things, but i have more use of my hands than alot of my family members who are as badly, or less affected by CMT than i am. while i have a curvature to my fingers, and the muscles from the elbows down are going, i am proud of myself, because i still manage to do what i was put on this earth to do, my work. i used to paint and i played the guitar for about four years, but when i reached a certain point, i had to choose what i wanted to do, because of my hands, i couldn't do them all. i gave up the guitar, because it was hard for me to do, anyway, my hands are very very small, and you don't see alot of guitar players who can fit into xx small gloves, anyway. so i chose painting & writing, and about two years ago, i had to pretty much choose between painting & writing, and i chose writing. it wasn't as much the deformities in my hands as it was the pain, although i have been told over and over again that, becuase of my CMT & the way i am progressing, i might reach a point in five or so years when i won't be able to write at all. it only depresses me slightly, becauase i know no matter what happens to me physically, i will find a way to do what i want to do. they have voice recognition software that will enable me to use a computer, (although i can't afford it right now) so i'll keep on doing what i want to. irregardless, i'll think of a way. when monet got arthritis, he had to have his paintbrushes tied to his hands so he could paint, and when he went blind, he sculpted. but the point was, he went ahead and did it anyway, he thought of a way. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2000 Report Share Posted March 29, 2000 i have wanted to be a writer since i was six years old and i started writing poetry of my own (it was really really bad, though :-) ) but when i started physical therapy, i was told that writing for hours a day, especially typing (with the risk for carpal tunnel) was about the worst thing i could do to myself. i discovered just the opposite, though. while i have lost most of the use in my legs, and my hands hurt a great deal, i can still do alot of things with them that if i hadn't used them everyday, i might not be able to do. it's difficult to do some things, but i have more use of my hands than alot of my family members who are as badly, or less affected by CMT than i am. while i have a curvature to my fingers, and the muscles from the elbows down are going, i am proud of myself, because i still manage to do what i was put on this earth to do, my work. i used to paint and i played the guitar for about four years, but when i reached a certain point, i had to choose what i wanted to do, because of my hands, i couldn't do them all. i gave up the guitar, because it was hard for me to do, anyway, my hands are very very small, and you don't see alot of guitar players who can fit into xx small gloves, anyway. so i chose painting & writing, and about two years ago, i had to pretty much choose between painting & writing, and i chose writing. it wasn't as much the deformities in my hands as it was the pain, although i have been told over and over again that, becuase of my CMT & the way i am progressing, i might reach a point in five or so years when i won't be able to write at all. it only depresses me slightly, becauase i know no matter what happens to me physically, i will find a way to do what i want to do. they have voice recognition software that will enable me to use a computer, (although i can't afford it right now) so i'll keep on doing what i want to. irregardless, i'll think of a way. when monet got arthritis, he had to have his paintbrushes tied to his hands so he could paint, and when he went blind, he sculpted. but the point was, he went ahead and did it anyway, he thought of a way. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2000 Report Share Posted March 30, 2000 , I loved your post on the subject of work. I have always believed people should do what they love, and love what they do. If you are doing what you are meant to do on this earth, you will find a way despite any obstacles. Ruth >> > >i have wanted to be a writer since i was six years old >and i started writing poetry of my own (it was really >really bad, though :-) ) but when i started physical >therapy, i was told that writing for hours a day, >especially typing (with the risk for carpal tunnel) >was about the worst thing i could do to myself. > >i discovered just the opposite, though. while i have >lost most of the use in my legs, and my hands hurt a >great deal, i can still do alot of things with them >that if i hadn't used them everyday, i might not be >able to do. it's difficult to do some things, but i >have more use of my hands than alot of my family >members who are as badly, or less affected by CMT than >i am. while i have a curvature to my fingers, and the >muscles from the elbows down are going, i am proud of >myself, because i still manage to do what i was put on >this earth to do, my work. > >i used to paint and i played the guitar for about four >years, but when i reached a certain point, i had to >choose what i wanted to do, because of my hands, i >couldn't do them all. i gave up the guitar, because >it was hard for me to do, anyway, my hands are very >very small, and you don't see alot of guitar players >who can fit into xx small gloves, anyway. so i chose >painting & writing, and about two years ago, i had to >pretty much choose between painting & writing, and i >chose writing. > >it wasn't as much the deformities in my hands as it >was the pain, although i have been told over and over >again that, becuase of my CMT & the way i am >progressing, i might reach a point in five or so years >when i won't be able to write at all. it only >depresses me slightly, becauase i know no matter what >happens to me physically, i will find a way to do what >i want to do. they have voice recognition software >that will enable me to use a computer, (although i >can't afford it right now) so i'll keep on doing what >i want to. irregardless, i'll think of a way. > >when monet got arthritis, he had to have his >paintbrushes tied to his hands so he could paint, and >when he went blind, he sculpted. but the point was, >he went ahead and did it anyway, he thought of a way. ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2000 Report Share Posted April 16, 2000 Hi what is < >,and < >? thanks Dimitrios & Lance wrote: > > > At __5:14 AM 3/28/2000 -0500, you wrote: > > Hi , You sure are a night hawk! > > Re herbal supplementation and vitamins. Don't know if this was already > mentioned but I was told by my geneticist to take the antitoxidants, > Vitamin C (500-1000mg),Vitamin E 400 mg, and Selenium approx. 50mcg. As > well my chiropractor has me take Glucosamine Sulphate and Chondroitin 500 > and 350 mg. 2-3 times a day. (these last 2 are very expensive though). > > I also take Lethicin powder or granules in a glass of juice or in porridge. > Lecthicin is known to be very beneficial for the nerves. Also there is > some research being done on Creatinine Monosulphate for CMTers for their > muscles, to build up muscle tissue. > > Chiropractic treatment is very important in keeping the spine alingned and > moving freely. > There are also Valerian Root and Skull cap for getting a good nights sleep. > > , what are the problems that your friend is dealing with, and what > symptoms does he want the herbs to help? > > Take care, > Slow > > >Thanks to all my new frinds on CMTUS (AT) e, > >we all may be able to help my friend Steve a bit. I joined > >a few weeks ago in hopes that I could find holistic/homeopathic > >methods that would be of assistance to him. What I have gathered > >so far is mainly massage thereapy and physical therapy. I also > >have found a few herbal supliments that should help. These are: > >Moringa Oleifera, ST. sWort, and Ginko Biloba. The second > >two are widely known, but the first was ellusive. I was going to supply > >the web page, but I lost the link Sorry. Maybe some of you can find it > >and post it. I'm going to bed. > > > >Fast > >Somewhere In Virginia (the state) > >fast@... > > > > > > > >------------------------------------------------------------------------ > >MAXIMIZE YOUR CARD, MINIMIZE YOUR RATE! > >Get a NextCard Visa, in 30 seconds! Get rates as low as > >0.0% Intro or 9.9% Fixed APR and no hidden fees. > >Apply NOW! > >http://click.egroups.com/1/2122/7/_/616793/_/954238697/ > >------------------------------------------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
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