Gait, Hips, curious Web site, ETC

[Guest guest]

Hi, All. Several folks have talked about hip pain. I too have this,

sometimes less, sometimes more. Worst problem is in the hip that

adjoins the leg with the severe osteoarthritis, which is a result of

the CMT (sounds like the House that Jack Built...) Have had an

occasional cortisone shot in that joint, which was good for a kind of

long-term temporary effect. I think the poor gait that we develop as

the result of CMT, regardless of type, must surely have an effect on

the hips - right? Also, I find that my posture has suffered from the

effect of the feet pronating, and the knees deteriorating. I wish it

were not so, but it is. For me, when the hip pain gets bad, the " Bed

Buddy " helps a lot. Any other non-drug therapy out there?

Today in the Sunday Parade magazine, I ran across an ad having to do

with Fibromyalgia relief in the form of a " bed underquilt. " The

company is called " Cuddle Ewe " and they make a bed pad out of " thick,

natural wool batting. " Web site www.cuddleewe.com. Kind of

interesting, but quite expensive (for my budget). Sounds like it

could be helpful for CMT. Wish it weren't so expensive.

Feet: Maybe most of you have this - but I'm noticing more and more

that my feet are just getting more and more tender in shoes. Is it

more bone-on-bone stuff, because the muscles are wasting more? Do you

wear any kind of padded insoles that help with that?

I mentioned earlier that I think some of my chronic sleep problems

are that my body is not comfortable being in itself. Too many aches

and pains and not able to find comfortable positions, etc. Does

anyone use a water bed, or other kind of bed that helps?

Love the Group! Regards to All, Carolyn

[Guest guest]

I have a foam egg-crate cushion and plan to double up with two of them. I

am also menopausal and I have read that it can also cause sleep disruption.

I know I am tossing and turning more than I used to and I think that is not

helping it.

Melody

Gait, Hips, curious Web site, ETC

> Hi, All. Several folks have talked about hip pain. I too have this,

> sometimes less, sometimes more. Worst problem is in the hip that

> adjoins the leg with the severe osteoarthritis, which is a result of

> the CMT (sounds like the House that Jack Built...) Have had an

> occasional cortisone shot in that joint, which was good for a kind of

> long-term temporary effect. I think the poor gait that we develop as

> the result of CMT, regardless of type, must surely have an effect on

> the hips - right? Also, I find that my posture has suffered from the

> effect of the feet pronating, and the knees deteriorating. I wish it

> were not so, but it is. For me, when the hip pain gets bad, the " Bed

> Buddy " helps a lot. Any other non-drug therapy out there?

>

> Today in the Sunday Parade magazine, I ran across an ad having to do

> with Fibromyalgia relief in the form of a " bed underquilt. " The

> company is called " Cuddle Ewe " and they make a bed pad out of " thick,

> natural wool batting. " Web site www.cuddleewe.com. Kind of

> interesting, but quite expensive (for my budget). Sounds like it

> could be helpful for CMT. Wish it weren't so expensive.

>

> Feet: Maybe most of you have this - but I'm noticing more and more

> that my feet are just getting more and more tender in shoes. Is it

> more bone-on-bone stuff, because the muscles are wasting more? Do you

> wear any kind of padded insoles that help with that?

>

> I mentioned earlier that I think some of my chronic sleep problems

> are that my body is not comfortable being in itself. Too many aches

> and pains and not able to find comfortable positions, etc. Does

> anyone use a water bed, or other kind of bed that helps?

>

> Love the Group! Regards to All, Carolyn

>

>

>

>

>

[Guest guest]

Good thought about the egg-crate cushion. I've used the pillows in

the past and found them to be excellent, but haven't tried the

mattress pad. Makes a great deal of sense, though. Thanks.

Carolyn

> I have a foam egg-crate cushion and plan to double up with two of

them. I

> am also menopausal and I have read that it can also cause sleep

disruption.

> I know I am tossing and turning more than I used to and I think

that is not

> helping it.

>

> Melody

> Gait, Hips, curious Web site, ETC

>

>

> > Hi, All. Several folks have talked about hip pain. I too have

this,

> > sometimes less, sometimes more. Worst problem is in the hip that

> > adjoins the leg with the severe osteoarthritis, which is a result

of

> > the CMT (sounds like the House that Jack Built...) Have had an

> > occasional cortisone shot in that joint, which was good for a

kind of

> > long-term temporary effect. I think the poor gait that we develop

as

> > the result of CMT, regardless of type, must surely have an effect

on

> > the hips - right? Also, I find that my posture has suffered from

the

> > effect of the feet pronating, and the knees deteriorating. I wish

it

> > were not so, but it is. For me, when the hip pain gets bad,

the " Bed

> > Buddy " helps a lot. Any other non-drug therapy out there?

> >

> > Today in the Sunday Parade magazine, I ran across an ad having to

do

> > with Fibromyalgia relief in the form of a " bed underquilt. " The

> > company is called " Cuddle Ewe " and they make a bed pad out

of " thick,

> > natural wool batting. " Web site www.cuddleewe.com. Kind of

> > interesting, but quite expensive (for my budget). Sounds like it

> > could be helpful for CMT. Wish it weren't so expensive.

> >

> > Feet: Maybe most of you have this - but I'm noticing more and more

> > that my feet are just getting more and more tender in shoes. Is it

> > more bone-on-bone stuff, because the muscles are wasting more? Do

you

> > wear any kind of padded insoles that help with that?

> >

> > I mentioned earlier that I think some of my chronic sleep problems

> > are that my body is not comfortable being in itself. Too many

aches

> > and pains and not able to find comfortable positions, etc. Does

> > anyone use a water bed, or other kind of bed that helps?

> >

> > Love the Group! Regards to All, Carolyn

> >

> >

> >

> >

> >