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Re: RLS in infants

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Hi Everyone,

I have a 8 month old grandson who I suspect has RLS. He has a very difficult

time

getting to sleep. His left leg is constantly moving. I babysat over the week

end and the only way I got him to sleep was to massage his left leg. When he

finally fell asleep he would jerk awake every so often. Does anyone know

wether or not

if it has ever been documented that a child this young can have RLS. My

family

thinks I'm over reacting that he's just fighting his sleep. I truely believe

it's

RLS. Anybody else have anyone this young suffering. I really could use some

feedback on this.

Thanks

Jan/IL

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<< I also suspect that my 3-year-old granddaughter has had RLS since she was

a

newborn. >>

Geez, that is a real tough one and definitely in unknown territory.

The good news is that I think that they are finally starting to do sleep

studies in children and yes, even infants.

The bad news is that RLS per se can't really be diagnosed by sleep study

alone, you know. How can a 3 year old describe the symptoms of RLS? Tough

one!

Good luck!

RAINBOWPED@...

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Dear Jan,

I also suspect that my 3-year-old granddaughter has had RLS since she was a

newborn. Since she was born, she has always had difficulty going to sleep

and when she is half asleep, looks just like I feel when I have RLS

symptoms. She stretches and kicks and whimpers and looks like she just

can't get comfortable. She sleeps much better now, but I am still seeing

those symptoms when she is sleeping.....just not as severe. My daughter

hasn't always had the same pediatrician because they have moved a couple of

times, and now that it seems to be better, I don't believe she has

mentioned it to her present doctor. I do believe, however that it is RLS.

Cindy Stier

Director of Outreach

RLS Foundation

4410 19th Street NW, Suite 201

Rochester, MN 55901-6624

Re: RLS in infants

From: JANWILS@...

Hi Everyone,

I have a 8 month old grandson who I suspect has RLS. He has a very

difficult

time

getting to sleep. His left leg is constantly moving. I babysat over the

week

end and the only way I got him to sleep was to massage his left leg. When

he

finally fell asleep he would jerk awake every so often. Does anyone know

wether or not

if it has ever been documented that a child this young can have RLS. My

family

thinks I'm over reacting that he's just fighting his sleep. I truely

believe

it's

RLS. Anybody else have anyone this young suffering. I really could use some

feedback on this.

Thanks

Jan/IL

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support purposes

and is not intended to replace the examination, diagnosis and treatment of

a licensed

physician and no such claims are inferred.

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Hi,

Wow! Thanks for writing in about these little ones. I'm trying to collect

information on people's experiences with children and RLS so that I might be

able to put together a brochure that the Foundation can send out to

pediatricians, parents, and expectant parents. I really wished something existed

when we got pregnant last year (and I still wish), so I've decided to try to

write something.

I am really worried about our daughter as my husband clearly remembers having

RLS as a child. For her first three months (she is now six months), she jerked

and woke herself up every time she was just on the edge of sleep. She looked so

much like her dad falling asleep that it was scary. At the moment, she seems to

have out grown it and we are trying hard to teach her good sleeping habits.

With the research I've done so far, the consensus seems to be to follow Dr.

Picchietti's recommendations from the chapter in " Sleep Thief " . That is, stick

to a sleep schedule and if you can't always get quality sleep use the strict

sleep schedule to get quantity.

In April, a few people told me about how they help their children to cope. I'm

hoping that more people will let me know.

BTW, I am trying to work on the brochure. This new baby thing has just got me a

little busy.

Anita

At 11:31 AM 06/07/1999 -0500, Cindy Stier wrote:

>

>

>Dear Jan,

>

>I also suspect that my 3-year-old granddaughter has had RLS since she was a

>newborn. Since she was born, she has always had difficulty going to sleep

>and when she is half asleep, looks just like I feel when I have RLS

>symptoms. She stretches and kicks and whimpers and looks like she just

>can't get comfortable. She sleeps much better now, but I am still seeing

>those symptoms when she is sleeping.....just not as severe. My daughter

>hasn't always had the same pediatrician because they have moved a couple of

>times, and now that it seems to be better, I don't believe she has

>mentioned it to her present doctor. I do believe, however that it is RLS.

>

>Cindy Stier

>Director of Outreach

>RLS Foundation

>4410 19th Street NW, Suite 201

>Rochester, MN 55901-6624

>

>

> Re: RLS in infants

>

>From: JANWILS@...

>

>Hi Everyone,

>

>I have a 8 month old grandson who I suspect has RLS. He has a very

>difficult

>time

>getting to sleep. His left leg is constantly moving. I babysat over the

>week

>end and the only way I got him to sleep was to massage his left leg. When

>he

>finally fell asleep he would jerk awake every so often. Does anyone know

>wether or not

>if it has ever been documented that a child this young can have RLS. My

>family

>thinks I'm over reacting that he's just fighting his sleep. I truely

>believe

>it's

>RLS. Anybody else have anyone this young suffering. I really could use some

>feedback on this.

>

>Thanks

>Jan/IL

>

>------------------------------------------------------------------------

>How many communities do you think join ONElist each day?

>http://www.onelist.com

>More than 1,000! Create yours now!

>------------------------------------------------------------------------

>This forum is for support only. The information posted to this List is for

>support purposes

>and is not intended to replace the examination, diagnosis and treatment of

>a licensed

>physician and no such claims are inferred.

>

>

>------------------------------------------------------------------------

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>http://www.onelist.com

>Discuss your thoughts; get informed at ONElist. See our homepage.

>------------------------------------------------------------------------

>This forum is for support only. The information posted to this List is for

support purposes

>and is not intended to replace the examination, diagnosis and treatment of a

licensed

>physician and no such claims are inferred.

>

Anita Raj

Project Manager

GTE Internetworking

araj@...

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Guest guest

It does make it tough as she is too young to describe her symptoms. I am

just glad that her symptoms seem to be decreasing and she is getting more

sleep. My daughter and son-in-law may not have to do anything about this

if she continues to improve. Nothing has been done about it in the past

because no one really knew what to do about it and her doctors weren't

really concerned.

Perplexing?!

Cindy Stier

Director of Outreach

RLS Foundation

4410 19th Street NW, Suite 201

Rochester, MN 55901-6624

Re: RLS in infants

From: RAINBOWPED@...

In a message dated 6/7/99 4:28:25 PM !!!First Boot!!!, stier@...

writes:

<< I also suspect that my 3-year-old granddaughter has had RLS since she

was

a

newborn. >>

Geez, that is a real tough one and definitely in unknown territory.

The good news is that I think that they are finally starting to do sleep

studies in children and yes, even infants.

The bad news is that RLS per se can't really be diagnosed by sleep study

alone, you know. How can a 3 year old describe the symptoms of RLS? Tough

one!

Good luck!

RAINBOWPED@...

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This forum is for support only. The information posted to this List is for

support purposes

and is not intended to replace the examination, diagnosis and treatment of

a licensed

physician and no such claims are inferred.

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