Guest guest Posted February 20, 1999 Report Share Posted February 20, 1999 Hi to Everyone, I'm a relatively new member, but I have come to value all of you very much. I think that the important thing is that we are here for each other. As someone who knows no one else with RLS (except you guys), it is very reassuring to know that there are people who understand what RLS is and how it can really do a number on you - continuously. I enjoy the jokes. It may not be that we have something illuminating to say re RLS all the time. We may not want to talk soley about our symptoms, medications, etc. all of the time. Friends support each other in many ways, just by keeping in touch, by letting people know that you are thinking of them. To share a joke is to share yourself. I appreciate everything I receive from the list, espcially the jokes that I get at 3 am while I'm up and around and around and around, Jane janegf@...> ---Jill Gunzel wrote: > > > > Dear Group, > This group has a list moderator. If you feel the group is going in a > detrimental direction, or needs guidance it isn't getting, you might want > to first contact the list moderator, Jodi: jmjudson@... > She will be able to either tell you where you are misunderstanding the > purpose of the group, or she will thank you for reporting your complaint > and she'll handle it appropriately. She'll also have an idea of whether > you are the only one with the complaint or whether your opinion is shared > by many and needs to be addressed. > > Keep in mind, this is a support group...with an evidently heavy emphasis on > " support " . It is not a newsgroup or a medical FAQ site. There are other > sources on the Internet where you can get information, medical advice, or > do research without having the personal input of a support group. If you > do a search for RLS, you'll find these. If you need help finding these, > I'm sure members of this group can help you. For some people, the less > personal lists are a much better way to go. Instead of getting daily > emails, the questions and answers are posted to a website. You can look > down the list of questions and answers and just pick topics that interest > you, when YOU have the time and interest. > > Another idea, is to remain subscribed to the RLS support group, but go to > your account page and set it up so you do NOT receive any mail. This can > always be done if you go on vacation or have a busy spell. Then, you will > still be subscribed, but you won't get mail...BUTTTTTT, you'll be able to > get in and view the archives whenever you want. The archives have all the > Digests. Each digest begins with a list of the names of the writers and > the subjects of that day's emails. It would be a pretty quick process to > go to the archives, periodically, and just scroll through the beginnings of > each digest to see if there's a subject or trend of discussion which would > interest you. > > To view your account status or the view the archives, follow these > instructions from a past email from Jodi: > " I just want everybody to know, especially the newcomers, that you can > review all of the " archives " of this list since I moved it to this server on > Oct. 25, 1998. To do this, just go to http://www.onelist.com Press " User > Center " ; type in your e-mail address (the one that you are subscribed to the > list under); and type in your password; If you don't know your password, you > can input your e-mail address and there is an option to have your password > mailed to you, which you will get within a few minutes. Then, on the user > center page, once you have logged in, you will see the lists that you > are subscribed to [and whether you are in the Digest or Regular version, > and whether you are set up to get mail or not]. Just press on " rlssupport " > and you will be taken to a page > where you will see " View Archives " . Just press it and read on.... " > > The Internet is wonderful, but it DOES consume a lot of time. Try to stay > in control of your computer time and use it to YOUR best advantage. A > support group is NOT for everyone. > > > Jill, 46 > Payson, AZ > http://www.netzone.com/~gunzel/rls.html > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 1999 Report Share Posted February 20, 1999 Hi Jane, I'll forward the article you asked about - I guess you didn't get it for some reason. Have to agree with you about the meaning of support - the jokes at 3 in the morning have often made me laugh instead of cry, which I sometimes feel like doing. I love and need this group. Each person is unique, despite our common bond of rls. A more caring group would be hard to find, on or off the computer. ne, 59, Lawrenceville, NJ ___________________________________________________________________ You don't need to buy Internet access to use free Internet e-mail. Get completely free e-mail from Juno at http://www.juno.com/getjuno.html or call Juno at (800) 654-JUNO [654-5866] Quote Link to comment Share on other sites More sharing options...
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