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Re: CMT life threatening?

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CMT can be life threatening and it can also lead to opportunistic

infections that can be life threatening. I take that very seriously since

my son is only 14 and also my sister had CMT and MS together so I have to

deal with that in the future maybe. I have respiratory problems too. So

like we all say it is different in us all and some worse than others.

Donna

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In a message dated 2/2/00 2:12:38 PM Pacific Standard Time,

nene@... writes:

<< Dear ,

I have never heard of being told to get your affairs in order??? That seems

somewhat acute to me.

As far as being life threatening??? Well, to the best of my knowledge , it

is not. Although I do think it is life altering. CMT affects my life daily. I

have to exercise hard and alot, just to be able to get through a day. But

then it exhausts me too... pros and cons. But ya do what ya gotta do!!!

Becca >>

I have been told it was life threatening too. CMT can effect the lungs ,chest

and heart muscles. I know someone that has been dxed with atrophy of the

heart muscles CMT releted.

jenny

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