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Re: stings and things

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Chris

As with everything about RLS, you are

not alone. I experience burning or

stinging feelings usually in my side or

in the tips of my fingers or toes. As I

have said before, they are a signal to

get active in order to abort an upcoming

bout of RLS. The RLS usually appears

within 10-15 minutes if I don't get

going. These feelings usually appear in

the early evening. The sequence is

completely different than that occurring

at bedtime, when the legs and arms just

do their thing without skin burning

first. I find myself rubbing the burning

areas to attempt to make the burning

disappear. Strangely, the burning

episodes occur whether I am taking

medication or not. Mirapex takes care of

the bedtime RLS very well.

As to Susie's comment, I also found it

to be funny and didn't give it a second

thought. She frequently makes funny

remarks (some funnier than others) and I

took this as just another one. I,

personally, would rather see an attempt

at humor than an endless, repetitive

harangue that bores me to tears. I have

worn out my " delete " keys and have to

buy a new keyboard.

Dr. Levin

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I'm using new ISP and am not too familiar w/how to use it. On my AOL I

could respond to all persons chatting and I hope this is the way to do it

with the internet service I'm using now. I'm writing this morning to ask if

anyone who might be taking Neurontin has experienced any side effects from

it. Specifically what I'm experiencing is that my " feet " seem to constantly

move. Not when I'm sleeping, at least I don't think so. It's not the same

kind of creepy, crawly feeling we're used to, it's just the feet seem to

want to keep moving. I find myself just moving them or rubbing them

together. It happens when I go to bed and when I awaken in the morning if I

lay in bed awhile. When I realize I'm doing it, or it's happening I tell

myself to stop and I do. But, before I know it it's happening again. Oh

boy, just looked out my window and it's just the prettiest sight. Like a

glass ball being shaken full of snow. BEAUTIFUL. Sometimes it pays not to

be able to sleep. I would have missed this pretty sight. By the way Dr.

Levin if you see this a while ago I mentioned that I thought Mirapex was

making my joints ache. Since then for a number of reasons Dr. E. just my

med to the Neurontin. Am only taking 200 mgs at this point but it seems to

be helping me sleep, at least most of the time. My point is that the joint

aches have stopped, w/in a week after I stopped the Mirapex. I feel so much

better now not having all that added pain. The normal pain is bad enough.

Kathy

Re: stings and things

>

>

>Chris

>

>As with everything about RLS, you are

>not alone. I experience burning or

>stinging feelings usually in my side or

>in the tips of my fingers or toes. As I

>have said before, they are a signal to

>get active in order to abort an upcoming

>bout of RLS. The RLS usually appears

>within 10-15 minutes if I don't get

>going. These feelings usually appear in

>the early evening. The sequence is

>completely different than that occurring

>at bedtime, when the legs and arms just

>do their thing without skin burning

>first. I find myself rubbing the burning

>areas to attempt to make the burning

>disappear. Strangely, the burning

>episodes occur whether I am taking

>medication or not. Mirapex takes care of

>the bedtime RLS very well.

>

>As to Susie's comment, I also found it

>to be funny and didn't give it a second

>thought. She frequently makes funny

>remarks (some funnier than others) and I

>took this as just another one. I,

>personally, would rather see an attempt

>at humor than an endless, repetitive

>harangue that bores me to tears. I have

>worn out my " delete " keys and have to

>buy a new keyboard.

>

>Dr. Levin

>

>------------------------------------------------------------------------

>

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