Re: thanks for welcome - About CMT

[Guest guest]

<< PS Does anyone live in the Seattle area?

Would like to hear from anybody who does. . >>

Hi ,

There are a few others in the area. I'm actually in Seattle, one mile north

of the UW.

I'm the only one of 5 kids who inherited. My mom passed away (age 86) before

I was diagnosed. After she passed away, and I was dxd, we knew why she had

become very weak during her last 10 years of life. She didn't know what was

wrong with her. Doctors told her she had suddenly gotten lazy and needed to

exercise. BAD advice for her! Anyway, I wish she had known her weak legs

weren't her fault at all, but I'm glad she didn't know she had passed it on

to me. We don't have the characteristic CMT feet - we have low arches. Mom

had no calf muscles, but I have normal-looking calves.

CMTers vary a LOT!!!

Many people go through life not knowing they have CMT because it is so mild.

When one member of the family is affected more seriously, and is diagnosed,

others MAY then realize why they have funny feet, or fall too much, or are

weaker than average. If my mom had passed away in her 70s, like her mom did,

we would not have known she had CMT. Her mom was just starting to have weak

legs a year or two before she passed on. Mom's sister, in her 70s, was

starting to complain of weak legs, but then she passed away before it

developed. For both my aunt and grandmother the doctors told them it was old

age. Both had atrophied calf muscles. Timing is everything.

For most types, each child has a 50% chance of inheriting, so in some

families all the children may inherit, or none, or any mix in between. EACH

one has the same chance, not 50% OF the children.

And some cases are spontaneous with no traceable family history.

I hope this helps. Keep in touch.

Kat in Seattle

[Guest guest]

--- KathleenLS@... wrote:

>

> In a message dated 7/29/00 12:35:04 AM,

> scottthom50@... writes:

>

> << PS Does anyone live in the Seattle area?

> Would like to hear from anybody who does. . >>

>

> Hi ,

>

> There are a few others in the area. I'm actually in

> Seattle, one mile north

> of the UW.

>

> I'm the only one of 5 kids who inherited. My mom

> passed away (age 86) before

> I was diagnosed. After she passed away, and I was

> dxd, we knew why she had

> become very weak during her last 10 years of life.

> She didn't know what was

> wrong with her. Doctors told her she had suddenly

> gotten lazy and needed to

> exercise. BAD advice for her! Anyway, I wish she had

> known her weak legs

> weren't her fault at all, but I'm glad she didn't

> know she had passed it on

> to me. We don't have the characteristic CMT feet -

> we have low arches. Mom

> had no calf muscles, but I have normal-looking

> calves.

>

> CMTers vary a LOT!!!

>

> Many people go through life not knowing they have

> CMT because it is so mild.

> When one member of the family is affected more

> seriously, and is diagnosed,

> others MAY then realize why they have funny feet, or

> fall too much, or are

> weaker than average. If my mom had passed away in

> her 70s, like her mom did,

> we would not have known she had CMT. Her mom was

> just starting to have weak

> legs a year or two before she passed on. Mom's

> sister, in her 70s, was

> starting to complain of weak legs, but then she

> passed away before it

> developed. For both my aunt and grandmother the

> doctors told them it was old

> age. Both had atrophied calf muscles. Timing is

> everything.

>

> For most types, each child has a 50% chance of

> inheriting, so in some

> families all the children may inherit, or none, or

> any mix in between. EACH

> one has the same chance, not 50% OF the children.

>

> And some cases are spontaneous with no traceable

> family history.

>

> I hope this helps. Keep in touch.

>

> Kat in Seattle

> Kat in Seattle, hi and thanks for the info. I live

in Everett so we aren't too far apart. My mother will

be 79 next month. If it weren't for her emphazema she

would be in good health. I remember when I was 11 or

12 she had a spell of Bell's palsy which is a nerve

type disorder but it went away after 6-8 months.

[Guest guest]

Hi, ....

I used to live in Seattle, but I started to rust. I creaked my way back to

Southern California to dry out. I get oiled once in a while too. )