Hi Bud

[Guest guest]

Hello Bud...We just found out that we have the x linked also.....I was tested

as a teenager and was told that I didn't have CMT....but then I had children

and our middle son didn't walk until 18 months...he is just 4 now and falls

alllll the time...we had a DNA blood test done the end of January and found

out that yes...he has CMT...linked to the x chromosome...that means that I

have it also...the women in our family don't really show the disease at all,

just a very slight low tone in the feet, besides that...no other signs of the

disease. This came to a huge shock to me...just now getting over it and

trying to do everything I can for my son...it breaks my heart everyday to see

him struggle...along with this, he is delayed in speech and fine motor

skills. He has been in all therapies since he was 2.

Sincerely,

Tana

[Guest guest]

--- Bud I thank-you for the information on CMT type X.

> I am the only one in my famliy that has CMT.

> There is not any sign of CMT on my mothers side of the family or my

fathers side of the family.

>I have two childrn and my son is the only one that got CMT.My

daughter is fine.

Thank-you again

Sherry Ont.Canada

[Guest guest]

In a message dated 5/13/00 11:23:05 PM Central Daylight Time,

mguitar@... writes:

<< Bud I thank-you for the information on CMT type X.

> I am the only one in my famliy that has CMT. >>

Sherry:

Here is a link that someone put on the list. It tells a lot about CMTX.

^^^^http://www.geneclinics.org/profiles/cmtx/.

someone inquired about the cmt-x I believe.

the URL above came through the cmtus links. great info for the cmt-x if you

haven't run across it already

Best wishes,

CMTer Bud in TX