Re: German people with CMT?

[Guest guest]

<< Nevertheless it is very important for me, to meet some people to share

some experience about this topic and how to live with CMT. Because of the

fact that this kind of illness isn't well known here, the first diagnosises

of several doctors in my case were wrong. I remarked the first symptoms of

CMT at the age of 12 because I was not able to use roller blades. Seven years

later a doctor found out, that it is CMT. >>

Hallo Marco,

Welcome.

The same thing happens in the US, sorry to say. Many doctors don't know about

CMT yet in all countries. You aren't alone, but I'm glad you found this

group. I hope we can help you with answers to your questions.

At least one of our members is fluent in German.

You wrote a very clear, good letter.

Kat in Seattle USA

[Guest guest]

HI MARCO AND WELCOME

I AM DIMITRIOS FROM GREECE. HERE IN MY COUNTRY WE HAVE THE SAME PROBLEM.

FORTUNATELY I HAVE A VERY GOOD DOCTOR, BUT I DON'T KNOW OTHER PEOPLE WITH

THE SAME PROBLEM (EXCEPT MY SISTER).

HAVE A GOOD TIME

DIMITRIOS

jentges@... wrote:

> I am a 25 years old german guy. While searching for information about

> CMT I found this website. By this way, I want try to get some contact

> with other german people with CMT.

> Unfortunatly CMT in germany is not as popular as in the US. I havn't

> found any homepages of CMT persons in german language yet.

> Nevertheless it is very important for me, to meet some people to

> share

> some experience about this topic and how to live with CMT. Because of

> the fact that this kind of illness isn't well known here, the

> first diagnosises of several doctors in my case were wrong. I

> remarked

> the first symptoms of CMT at the age of 12 because I was not able to

> use roller blades. Seven years later a doctor found out, that it is

> CMT.

> I think in the last years I learned to accept my CMT desease and I

> also learned a CMT handycap isn't the mayor thing of live and most

> activities are also possible. I am very sportive: Riding mountainbike

> and playing badminton are my most favorite sport activities.

>

> I hope that you have got some impressions of me now and do not

> hesitate to contact me, even if you are not living in my

> neighbourhood

> ;-)

> (I hope that the context of my sentences is quite correct.

> Unfortunatly I haven't found my dictionary.)

>

> Marco

>

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[Guest guest]

Marco, it's very nice to meet you.

Your sentence structure is very understandable.....

It sounds like you are very outgoing.

I hope you find this list to be as helpful as I have.

I am 38 and my CMT showed up at age 5. It affects both legs and feet and

both hands. I have a AFO (leg brace) and I use arm crutches to get around.

Jeanie (from Oregon)

Moonglow21@...

Jeanie421@...

come and visit my http://www.egroups.com/group/Charcot-Marie-Toothonlinechat " >CMT chat

room

http://www.egroups.com/group/Charcot-Marie-Toothonlinechat