Guest guest Posted February 13, 1999 Report Share Posted February 13, 1999 I am still in touch with EJude. I understand he may come back after a while. I am the scientific reviewer who got into the discussion of trauma-induced vs genetic RLS. Although I'm relatively new to the group and may not be aware of what went on prior to two weeks ago (when I joined), I am interested in hearing what everyone has to say. In the case of EJude, no matter whether you agreed with him or not, he apparently is close to people who are researching RLS ... no matter what the cause of the RLS. I hope he rejoins the group and I plan on keeping in touch with him. Whenever you get a group of people together, whether in person or via the net, there are going to be debates or animated discussions from time to time. I think that as long as no deliberate personal attacks are made, this is healthy. We who have RLS (no matter why or how} need to support each other. This group and my neurologist are the ONLY PEOPLE who know what I live with ... my attempts to explain it to others have certainly gotten nowhere! Happy Valentine's Day to Each and Every One of You!!!!!!!!!! Jane janegf@...> ---ne M Isbill wrote: > > > > It's kind of been bothering me that a member recently left the group > after I was involved in an on-line conflict with him. Hate when that > happens! It's true I did send him a private post, questioning his > motives, but in my own defense, he did ask me the question! Anyway, it's > a tricky business, this relationship we all have, feeling like we know > each other, but without the other visual clues that ordinarily round out > friendships. Lack of facial expression and other body language may > contribute to hurt feelings, anger, etc. that in " real life " wouldn't > necessarily happen. My apologies for my part in the group's loosing an > interesting, if somewhat contentious, member. Also, I resisted the > almost overwhelming urge to respond to his last post. I knew I would > loose it! > Those of you who did were great - I would think he will miss so many > really intelligent interesting people who can debate an issue without > getting personal. > ne, 59, Lawrenceville, NJ > > ___________________________________________________________________ > You don't need to buy Internet access to use free Internet e-mail. > Get completely free e-mail from Juno at http://www.juno.com/getjuno.html > or call Juno at (800) 654-JUNO [654-5866] > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 1999 Report Share Posted February 13, 1999 I am still in touch with EJude. I understand he may come back after a while. I am the scientific reviewer who got into the discussion of trauma-induced vs genetic RLS. Although I'm relatively new to the group and may not be aware of what went on prior to two weeks ago (when I joined), I am interested in hearing what everyone has to say. In the case of EJude, no matter whether you agreed with him or not, he apparently is close to people who are researching RLS ... no matter what the cause of the RLS. I hope he rejoins the group and I plan on keeping in touch with him. Whenever you get a group of people together, whether in person or via the net, there are going to be debates or animated discussions from time to time. I think that as long as no deliberate personal attacks are made, this is healthy. We who have RLS (no matter why or how} need to support each other. This group and my neurologist are the ONLY PEOPLE who know what I live with ... my attempts to explain it to others have certainly gotten nowhere! Happy Valentine's Day to Each and Every One of You!!!!!!!!!! Jane janegf@...> ---ne M Isbill wrote: > > > > It's kind of been bothering me that a member recently left the group > after I was involved in an on-line conflict with him. Hate when that > happens! It's true I did send him a private post, questioning his > motives, but in my own defense, he did ask me the question! Anyway, it's > a tricky business, this relationship we all have, feeling like we know > each other, but without the other visual clues that ordinarily round out > friendships. Lack of facial expression and other body language may > contribute to hurt feelings, anger, etc. that in " real life " wouldn't > necessarily happen. My apologies for my part in the group's loosing an > interesting, if somewhat contentious, member. Also, I resisted the > almost overwhelming urge to respond to his last post. I knew I would > loose it! > Those of you who did were great - I would think he will miss so many > really intelligent interesting people who can debate an issue without > getting personal. > ne, 59, Lawrenceville, NJ > > ___________________________________________________________________ > You don't need to buy Internet access to use free Internet e-mail. > Get completely free e-mail from Juno at http://www.juno.com/getjuno.html > or call Juno at (800) 654-JUNO [654-5866] > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 1999 Report Share Posted February 13, 1999 Jane: I know that you haven't been with the group for long, so I thought that I would try and add my input, for what it's worth. Since Ed joined the group, he has done " informal " surveys about " trauma-induced " RLS, mentioned quite a few things about it, and his messages pretty much were about it. I, myself, do believe that trauma may have a part in aggravating RLS, and quite possibly, causing it, but I think that he overdid it a bit. At times, he got kind of defensive when people said that there was no way that RLS could be caused by trauma. Who knows, he may have had it all of his life and it just happened to start flaring up after his accident. I don't know, and I don't believe that anybody else really does. I know that in my case, I had intermittent RLS attacks starting in my early teens (about 1-3 a month or so) and it wasn't until I severely herniated a disc in my lower back that the RLS became a daily problem, so there is definitely some merit there when it comes to trauma affecting RLS, but I still don't know about it " causing " RLS. If you're interested, I'll be glad to forward you all of Ed's messages, as I do same them all, for some reason or another in special files (maybe for reason's like this). Just let me know. Sincerely, Jodi Judson Cyberspace RLS Support Group List Facilitator Jane wrote: > > > I am still in touch with EJude. I understand he may come back after a > while. I am the scientific reviewer who got into the discussion of > trauma-induced vs genetic RLS. Although I'm relatively new to the > group and may not be aware of what went on prior to two weeks ago > (when I joined), I am interested in hearing what everyone has to say. > In the case of EJude, no matter whether you agreed with him or not, he > apparently is close to people who are researching RLS ... no matter > what the cause of the RLS. I hope he rejoins the group and I plan on > keeping in touch with him. Whenever you get a group of people > together, whether in person or via the net, there are going to be > debates or animated discussions from time to time. I think that as > long as no deliberate personal attacks are made, this is healthy. > > We who have RLS (no matter why or how} need to support each other. > This group and my neurologist are the ONLY PEOPLE who know what I live > with ... my attempts to explain it to others have certainly gotten > nowhere! > > Happy Valentine's Day to Each and Every One of You!!!!!!!!!! > > Jane janegf@...> > > ---ne M Isbill wrote: > > > > > > > > It's kind of been bothering me that a member recently left the group > > after I was involved in an on-line conflict with him. Hate when that > > happens! It's true I did send him a private post, questioning his > > motives, but in my own defense, he did ask me the question! Anyway, > it's > > a tricky business, this relationship we all have, feeling like we know > > each other, but without the other visual clues that ordinarily round > out > > friendships. Lack of facial expression and other body language may > > contribute to hurt feelings, anger, etc. that in " real life " wouldn't > > necessarily happen. My apologies for my part in the group's loosing > an > > interesting, if somewhat contentious, member. Also, I resisted the > > almost overwhelming urge to respond to his last post. I knew I would > > loose it! > > Those of you who did were great - I would think he will miss so many > > really intelligent interesting people who can debate an issue without > > getting personal. > > ne, 59, Lawrenceville, NJ > > > > ___________________________________________________________________ > > You don't need to buy Internet access to use free Internet e-mail. > > Get completely free e-mail from Juno at > http://www.juno.com/getjuno.html > > or call Juno at (800) 654-JUNO [654-5866] > > > > > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 1999 Report Share Posted February 13, 1999 Jane: I know that you haven't been with the group for long, so I thought that I would try and add my input, for what it's worth. Since Ed joined the group, he has done " informal " surveys about " trauma-induced " RLS, mentioned quite a few things about it, and his messages pretty much were about it. I, myself, do believe that trauma may have a part in aggravating RLS, and quite possibly, causing it, but I think that he overdid it a bit. At times, he got kind of defensive when people said that there was no way that RLS could be caused by trauma. Who knows, he may have had it all of his life and it just happened to start flaring up after his accident. I don't know, and I don't believe that anybody else really does. I know that in my case, I had intermittent RLS attacks starting in my early teens (about 1-3 a month or so) and it wasn't until I severely herniated a disc in my lower back that the RLS became a daily problem, so there is definitely some merit there when it comes to trauma affecting RLS, but I still don't know about it " causing " RLS. If you're interested, I'll be glad to forward you all of Ed's messages, as I do same them all, for some reason or another in special files (maybe for reason's like this). Just let me know. Sincerely, Jodi Judson Cyberspace RLS Support Group List Facilitator Jane wrote: > > > I am still in touch with EJude. I understand he may come back after a > while. I am the scientific reviewer who got into the discussion of > trauma-induced vs genetic RLS. Although I'm relatively new to the > group and may not be aware of what went on prior to two weeks ago > (when I joined), I am interested in hearing what everyone has to say. > In the case of EJude, no matter whether you agreed with him or not, he > apparently is close to people who are researching RLS ... no matter > what the cause of the RLS. I hope he rejoins the group and I plan on > keeping in touch with him. Whenever you get a group of people > together, whether in person or via the net, there are going to be > debates or animated discussions from time to time. I think that as > long as no deliberate personal attacks are made, this is healthy. > > We who have RLS (no matter why or how} need to support each other. > This group and my neurologist are the ONLY PEOPLE who know what I live > with ... my attempts to explain it to others have certainly gotten > nowhere! > > Happy Valentine's Day to Each and Every One of You!!!!!!!!!! > > Jane janegf@...> > > ---ne M Isbill wrote: > > > > > > > > It's kind of been bothering me that a member recently left the group > > after I was involved in an on-line conflict with him. Hate when that > > happens! It's true I did send him a private post, questioning his > > motives, but in my own defense, he did ask me the question! Anyway, > it's > > a tricky business, this relationship we all have, feeling like we know > > each other, but without the other visual clues that ordinarily round > out > > friendships. Lack of facial expression and other body language may > > contribute to hurt feelings, anger, etc. that in " real life " wouldn't > > necessarily happen. My apologies for my part in the group's loosing > an > > interesting, if somewhat contentious, member. Also, I resisted the > > almost overwhelming urge to respond to his last post. I knew I would > > loose it! > > Those of you who did were great - I would think he will miss so many > > really intelligent interesting people who can debate an issue without > > getting personal. > > ne, 59, Lawrenceville, NJ > > > > ___________________________________________________________________ > > You don't need to buy Internet access to use free Internet e-mail. > > Get completely free e-mail from Juno at > http://www.juno.com/getjuno.html > > or call Juno at (800) 654-JUNO [654-5866] > > > > > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 1999 Report Share Posted February 15, 1999 Jane wrote: > Whenever you get a group of people >together, whether in person or via the net, there are going to be >debates or animated discussions from time to time. I think that as >long as no deliberate personal attacks are made, this is healthy. I wholeheartedly agree. From what I saw, however, Ed was the only person making deliberate personal attacks. It seems to me that he can dish it out but he can't take it when people give it back. I hope he comes back too, but I also hope he learns to choose his words a bit more carefully. Kate in Minnesota ___________________________________________________________________ You don't need to buy Internet access to use free Internet e-mail. Get completely free e-mail from Juno at http://www.juno.com/getjuno.html or call Juno at (800) 654-JUNO [654-5866] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 1999 Report Share Posted February 15, 1999 Jane wrote: > Whenever you get a group of people >together, whether in person or via the net, there are going to be >debates or animated discussions from time to time. I think that as >long as no deliberate personal attacks are made, this is healthy. I wholeheartedly agree. From what I saw, however, Ed was the only person making deliberate personal attacks. It seems to me that he can dish it out but he can't take it when people give it back. I hope he comes back too, but I also hope he learns to choose his words a bit more carefully. Kate in Minnesota ___________________________________________________________________ You don't need to buy Internet access to use free Internet e-mail. Get completely free e-mail from Juno at http://www.juno.com/getjuno.html or call Juno at (800) 654-JUNO [654-5866] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 1999 Report Share Posted February 18, 1999 Group. I missed all the hoop-la on Ed leaving, but I am putting it together piece by piece. I think it was over something to do with inherited rls or trama induced rls. I have the inherited kind, got it from my dad and now my mom (89) has it from a series of tramas. I have to say her's is worse, I don't know if it is her age or that there some other underlying factors that are going on with her health, but she has it about as bad as any I have heard of any of us discuss. Her's is worsened by the fact she is in a wheel chair and can't move about when an attack hits her. She wishes for a chain saw!!!!!! Really. Is Ed a dead subject or do I need to know about why he left us??? Just being noisy I guess...lol Lee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 1999 Report Share Posted February 19, 1999 Hi , My understanding is that Ed is taking a break and may very well return. I am interested in the RLS research that he seems to be connected with so I requested that I be updated by him and have been. Jane janegf@...> ---LINDA5222@... wrote: > > From: LINDA5222@... > > Group. > I missed all the hoop-la on Ed leaving, but I am putting it together piece by > piece. I think it was over something to do with inherited rls or trama > induced rls. I have the inherited kind, got it from my dad and now my mom > (89) has it from a series of tramas. I have to say her's is worse, I don't > know if it is her age or that there some other underlying factors that are > going on with her health, but she has it about as bad as any I have heard of > any of us discuss. Her's is worsened by the fact she is in a wheel chair and > can't move about when an attack hits her. She wishes for a chain saw!!!!!! > Really. Is Ed a dead subject or do I need to know about why he left us??? > Just being noisy I guess...lol > > Lee > > ------------------------------------------------------------------------ > We have a new web site! http://www.onelist.com > Quote Link to comment Share on other sites More sharing options...
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