New Group

[Guest guest]

Hi Group,

Don't remember if I told you I'm starting a new support group in my area,

on the Delmarva Peninsula. It includes all of Delaware, Eastern Shore of

land, and part of upper Eastern Shore Virginia. I'm waiting to hear

from Debra at the foundation on the go ahead, then I will contact the

newspapers, TV bulletin board, flyer, etc. with a time, place and date for

the first meeting. My plans aren't carved in stone, but I've contacted a

few of the other support group leaders for advise and tips on how to get

started, and they have been a great help. The foundation will supply hand

out info. for me to pass out to the members, and of course Debra will help

me. Like I said before, I'm a brave, not a chief. But this time, it's

either Chief or nothing, The only experience I have is " restless legs " .

I'll need your prayers, and if any of you live in this area, or have

relatives with RLS in this area, I'd like for you to come to the meetings.

I'll still be a part of this support group, I've gotten a world of good

advice from all of you, and really, that's where my courage is coming from.

Without your input I wouldn't have realized the need for others to know

what it is they have without knowing it (does that make sense?) maybe a

comma needs to be in there somewhere.

Today I was talking to a group leader from South Carolina. She told me

they had a neurologist to speak at at their last meeting, and he said that

if you are taking Permax, to be careful that you aren't getting any more

than 25% mg of B-6 (pyroxidine). Said it does something to the Permax.

She asked a pharmacist, and he said 5%mg. She wasn't sure just how he put

it, whether it kept it from working or what, and was wondering if I knew

anything about it. I told her I didn't, but maybe our Dr. Levin knows and

I would ask him. Please, if you are reading this Dr. Levin, do you know

anything about this? Thank you in advance.

June 64, Delaware