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CMT life threatening?

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Dear ,

I have never heard of being told to get your affairs in order??? That seems

somewhat acute to me.

As far as being life threatening??? Well, to the best of my knowledge , it is

not. Although I do think it is life altering. CMT affects my life daily. I have

to exercise hard and alot, just to be able to get through a day. But then it

exhausts me too... pros and cons. But ya do what ya gotta do!!!

Becca

http://www.onelist.com/subscribe/CMTweightmanagement

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Becca here---

WHY can't I find one of these doctors????!!!!!

GRR--- ugh---

http://www.onelist.com/subscribe/CMTweightmanagement

Re: CMT life threatening?

> From: JACEE17@...

>

> In a message dated 2/2/00 2:12:38 PM Pacific Standard Time,

> nene@... writes:

>

> << Dear ,

> I have never heard of being told to get your affairs in order??? That

seems

> somewhat acute to me.

> As far as being life threatening??? Well, to the best of my knowledge ,

it

> is not. Although I do think it is life altering. CMT affects my life

daily. I

> have to exercise hard and alot, just to be able to get through a day. But

> then it exhausts me too... pros and cons. But ya do what ya gotta do!!!

> Becca >>

> I have been told it was life threatening too. CMT can effect the lungs

,chest

> and heart muscles. I know someone that has been dxed with atrophy of the

> heart muscles CMT releted.

> jenny

>

> ---------------------------

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